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1,156 total results

Comments (1,069)

Certainly, I have found dry eyes a problem for some time now, despite being diagnosed with...

https://connect.mayoclinic.org/comment/984944/

now, despite being diagnosed with PV

Discussion: Polycythemia: Does anyone have a problem with dryness?

Support Group: Blood Cancers & Disorders

Posted: Dec 22, 2023

Hi, I was diagnosed last week and am awaiting my hematologist/oncologist appt. But, one of my...

https://connect.mayoclinic.org/comment/871122/

is just a rough side effect of my PV

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: Jun 2, 2023

Hi Wendy, it’s my pleasure to help any way I can. Going through my leukemia and...

https://connect.mayoclinic.org/comment/876086/

Back to the PV…sorry this is getting ... understanding, there are several subtypes of PV ... and hematocrit levels with primary PV ... There is also secondary PV which is

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jun 10, 2023

Wow, so sorry you are going thru so much… I have it easy compared to you.....

https://connect.mayoclinic.org/comment/811979/

differently… I have no pain despite having PV

Discussion: Your tips as I prepare for first phlebotomy

Support Group: Blood Cancers & Disorders

Posted: Feb 15, 2023

I definitely had a stressful time up to and after being diagnosed. I’ve always been healthy...

https://connect.mayoclinic.org/comment/926834/

and just being 56 was shocked at a PV

Discussion: Bone Marrow Biopsy & Aspiration

Support Group: Blood Cancers & Disorders

Posted: Sep 9, 2023

Yes, as soon as I stopped them my platelets shot up over 600 so back on...

https://connect.mayoclinic.org/comment/888968/

There’s only one other medication for PV

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: Jul 2, 2023

Hi @anitarose, Welcome to Connect! Thank you for sharing your experience with PV. We often only...

https://connect.mayoclinic.org/comment/842787/

you for sharing your experience with PV

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 13, 2023

Hello themyth, I have been able to work a very physical job. I did and do...

https://connect.mayoclinic.org/comment/821972/

medication to get comfortable living with PV

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 6, 2023

Hi there, I was diagnosed with PV in march, Hg 198 and Hct 60%. Had three...

https://connect.mayoclinic.org/comment/892615/

Hi there, I was diagnosed with PV in

Discussion: Has anyone had another therapeutic phlebotomy one week later?

Support Group: Blood Cancers & Disorders

Posted: Jul 9, 2023

I was diagnosed with Polycythemia Vera (PV) a year ago. The pruritus was a symptom before...

https://connect.mayoclinic.org/comment/1236497/

diagnosed with Polycythemia Vera (PV

Discussion: MDS-CMML-1: Anyone dealing with pruritus (itching)?

Support Group: Blood Cancers & Disorders

Posted: Feb 14, 2025

Thank you for your response. Since JAK2 test was negative, I chose to go with phlebotomy....

https://connect.mayoclinic.org/comment/1370131/

I view this secondary PV diagnosis

Discussion: What hematocrit (HCT) targets indicate phlebotomy needed for PVC?

Support Group: Blood Cancers & Disorders

Posted: Aug 13, 2025

I know it’s a shocking diagnosis but keeping up with your labs will dictate how much...

https://connect.mayoclinic.org/comment/1234170/

I have PV, diagnosed tow years ago and

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Feb 11, 2025

Thanks for your question. This should eliminate AF, just as the more common radio frequency ablation...

https://connect.mayoclinic.org/comment/981622/

are ablated in isolation from the PV

Discussion: Pulse Field Ablation Approved By FDA

Support Group: Heart Rhythm Conditions

Posted: Dec 16, 2023

My iron is also very low and I’m anemic from phlebotomies at 5. I’m on Besremi...

https://connect.mayoclinic.org/comment/1223016/

But as PV patients, we sure do feel

Discussion: Polycythemia Vera and low iron

Support Group: Blood Cancers & Disorders

Posted: Jan 27, 2025

Hi @hollz784 Oh golly, you have a lot going on right now and it’s understandable to...

https://connect.mayoclinic.org/comment/1442132/

red cells such as Polycythemia Vera (PV ... You’ll see replies from members with PV

Discussion: Jak2 mutations w/high WBC

Support Group: Blood Cancers & Disorders

Posted: Nov 18, 2025

I have documented (JAK2 positive) PV and on hydrox..I understand your fear and there are many...

https://connect.mayoclinic.org/comment/1097487/

I have documented (JAK2 positive) PV ... all ,we can live a long time with PV

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Jul 1, 2024

Good morning, @onthejoedock. These are lovely photos of your handsome husband…so active and vital. But the...

https://connect.mayoclinic.org/comment/1082921/

though as to whether your husband has PV ... of members in this group who have PV ... causing a blood condition such as PV

Discussion: How fast do you start to feel hydroxyurea symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jun 8, 2024

Hey Christine...I am 49, diagnosed with PV about a year and half ago. Have very similar...

https://connect.mayoclinic.org/comment/1189593/

Christine...I am 49, diagnosed with PV ... did watch a female doctor who has PV

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Dec 13, 2024

I have just been diagnosed with pv and didn't know anything about it my primary doctor...

https://connect.mayoclinic.org/comment/825257/

I have just been diagnosed with pv and ... said it wasn't a reaction I had PV

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 12, 2023

Welcome to Connect @jv4430. There are a number bone marrow disorders related to the JAK2 gene...

https://connect.mayoclinic.org/comment/969785/

have developed Polycythemia Vera (PV ... PV, ET, PMF?

Discussion: JAK2 V617F positive, now what?

Support Group: Blood Cancers & Disorders

Posted: Nov 24, 2023