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Comments (10,000+)

For anyone diagnosed with cancer I can say three things: (1) Doing what your doctor wants...

https://connect.mayoclinic.org/comment/1063199/

with cancer I can say three things: (1)

Discussion: 75 year old father just diagnosed with AML

Support Group: Blood Cancers & Disorders

Posted: May 6, 2024

For anyone following this, other than Duke, 40 sites have been added for the exercise intolerance...

https://connect.mayoclinic.org/comment/1140286/

amp;term=RECOVER-ENERGIZE&rank=1

Discussion: NIH to Open Clinical Trials for Long COVID Post Exertional Malaise

Support Group: Post-COVID Recovery & COVID-19

Posted: Sep 12, 2024

I only take 1/4 of the lowest dose pill. But yes doctors don't prescribe many at...

https://connect.mayoclinic.org/comment/1137626/

I only take 1/4 of the lowest dose pill

Discussion: What can be done to help with hyperacusis?

Support Group: Hearing Loss

Posted: Sep 7, 2024

Keep it simple. Divide CTX by PINP. For you that number is 9.08 which is essentially...

https://connect.mayoclinic.org/comment/1098980/

essentially equal to the "magic" 10:1

Discussion: Bone turnover markers (CTX and P1NP): do you have a baseline?

Support Group: Osteoporosis & Bone Health

Posted: Jul 4, 2024

I was started at 1 mg. Had problems. Waited a week and started at 0.5. That...

https://connect.mayoclinic.org/comment/1058890/

I was started at 1 mg.

Discussion: Low Dose Naltrexone and Neuropathy

Support Group: Neuropathy

Posted: Apr 28, 2024

I was on Forteo for 2 years. The first year I gained, the second I had...

https://connect.mayoclinic.org/comment/1009316/

year I gained, the second I had a .1

Discussion: disappointing results: would you continue or skip 2nd year of tymlos?

Support Group: Osteoporosis & Bone Health

Posted: Feb 4, 2024

This is interesting my CTX went down a lot but my P1NP went down also by...

https://connect.mayoclinic.org/comment/1005234/

interesting my CTX went down a lot but my P1NP ... likes to see a ratio of CTX 10 to 1 ... ( N1NP). ... gave was if your CTX is 600 then N1NP

Discussion: Bone care choices? (After 2nd atypical femur fracture)

Support Group: Osteoporosis & Bone Health

Posted: Jan 28, 2024

Hello, I did not have any change yet, however they told me they do not expect...

https://connect.mayoclinic.org/comment/979029/

they do not expect much change after 1

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Dec 12, 2023

Had RARP last January 31st. Gleason 8 before surgery, re-scored to 7 afterwards. All contained in...

https://connect.mayoclinic.org/comment/941474/

Down to 1 Depends a day. 3 words - Kegel

Discussion: Choose between robotic surgery and proton therapy.

Support Group: Prostate Cancer

Posted: Oct 3, 2023

MTX truly takes 2-3 months to really know how it will work. I’ve never been on...

https://connect.mayoclinic.org/comment/899878/

I’ve just started now on 9mg for 1 month

Discussion: Successfully treated for Polymyalgia Rheumatica

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 21, 2023

Hello, I order from a company called ReadiSorb GO. One packet contains 500 mg. taken first...

https://connect.mayoclinic.org/comment/872850/

I’ve been taking about 2 1/2 years.

Discussion: Permanent SIBO due to removal of ileocecal valve

Support Group: Digestive Health

Posted: Jun 5, 2023

I take 3 caps in the morning and 2 at night on days 1 - 14....

https://connect.mayoclinic.org/comment/834697/

the morning and 2 at night on days 1

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 30, 2023

my experience is that you are not told until you are in stage 3.You cant help...

https://connect.mayoclinic.org/comment/804595/

but wonder what happened to stage 1

Discussion: Is kidney disease becoming an epidemic?

Support Group: Kidney Conditions

Posted: Jan 31, 2023

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https://connect.mayoclinic.org/comment/793776/

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Discussion: heart issues

Support Group: Heart & Blood Health

Posted: Jan 7, 2023

Welcome @mohdtaif. I'm so sorry to hear that Ewing sarcoma continues to recur. You may wish...

https://connect.mayoclinic.org/comment/793769/

connect.mayoclinic.org/discussion/ewings-sarcoma-1/

Discussion: Tumor Humor Resources

Support Group: Adolescent & Young Adult (AYA) Cancer

Posted: Jan 7, 2023

Had to lower my husbands dose after first session. He is on his 6 session of...

https://connect.mayoclinic.org/comment/780465/

He is on his 6 session of 2 on 1 off