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Comments (10,000+)

Getting PMR into remission is the goal. Just about everybody starts with the prednisone because, as...

https://connect.mayoclinic.org/comment/995835/

Getting PMR into remission is the goal ... My PMR was managed but just barely for

Discussion: How does Kevzara help with PMR symptoms and pain? I am being weaned

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 12, 2024

I’m some odd hybrid of PMR and RA. In 2011, I had acute onset of profound...

https://connect.mayoclinic.org/comment/975618/

I’m some odd hybrid of PMR and RA. ... Has anyone encountered this RA/PMR symptom

Discussion: How to avoid flares

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 5, 2023

I hope Actemra works for you. Being optimistic is important I think. I lost all hope...

https://connect.mayoclinic.org/comment/972782/

was the "only option" for PMR ... because of something unrelated to PMR

Discussion: GCA conserns

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 30, 2023

Dear @alissahe Have you and your Dr. thought about combining your prednisone with Low dose Naltrexone...

https://connect.mayoclinic.org/comment/955901/

I was diagnosed with PMR eight months ... Good luck to you in your PMR journey

Discussion: How to address PMR pain while decreasing prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 29, 2023

My experience is similar to yours. I have had a hard time reducing my dose and...

https://connect.mayoclinic.org/comment/952997/

It’s been over 4 years since PMR diagnosis ... effects of advancing old age from PMR

Discussion: Wrist and finger pain while tapering prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 24, 2023

Yes, GCA can present with minor symptoms. When I was first diagnosed in 2019 with PMR...

https://connect.mayoclinic.org/comment/940432/

I was first diagnosed in 2019 with PMR ... Rheumatologist started me on 15mg Of Pred for PMR

Discussion: Does GCA ever present with mild symptoms ?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 2, 2023

Hello! I have not been diagnosed by an MD. Two separate rheum work ups missed it...

https://connect.mayoclinic.org/comment/902231/

A friend sent me info on Pmr and I sent ... Before I got the Pmr info I had another

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 25, 2023

Good Morning Misery3, So glad you found this support group. It is filled with wonderful people...

https://connect.mayoclinic.org/comment/892049/

us in this group had never heard of PMR ... conditions but that doesn’t matter to PMR

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 8, 2023

Wednesday I went to my regular GP to have a thyroid blood test to see if...

https://connect.mayoclinic.org/comment/695359/

I told him about PMR and he said he ... have had no problems with it prior to PMR

Discussion: How did you cope with the side effects tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 1, 2022

@jhatchett. This is a suggestion for you. Both myself and my sister-in-law had been diagnosed with...

https://connect.mayoclinic.org/comment/137612/

sister-in-law had been diagnosed with PMR ... I feel since this was two of us PMR

Discussion: How to address PMR pain while decreasing prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 27, 2017

I’m feeling ambivalent about the shingles vaccine. I had the onset of my PMR within two...

https://connect.mayoclinic.org/comment/1221954/

I had the onset of my PMR within two

Discussion: Has everyone had their Shingles vaccine?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 26 8:42am

Hi Gail. Would you be willing to share a little about your PMR? How did it...

https://connect.mayoclinic.org/comment/1055876/

willing to share a little about your PMR ... yet, but pretty darned sure I have PMR

Discussion: Has anyone fought Polymyalgia without prednisone successfully?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 23, 2024

"My shoulders are killing me. But and this is a big but the right-side hurts more...

https://connect.mayoclinic.org/comment/1042242/

criteria that I'm aware of says PMR ... an absolute criteria ... just that PMR

Discussion: Is this a possible relapse to PMR or something entirely different??

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 29, 2024

John - I thought so as well until this week when I went to my Endocrinologist...

https://connect.mayoclinic.org/comment/966797/

being whackers ever since the onset of PMR ... fatigue when we are on steroids for PMR

Discussion: Chronic Fatigue while tapering Prednisone for PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 18, 2023

My experience with LDN and PMR is some what unique in that I tried LDN out...

https://connect.mayoclinic.org/comment/825550/

My experience with LDN and PMR is some ... switched docs to one that recognised the PMR

Discussion: Low Dose Naltrexone and Prednisone for PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 13, 2023

After being diagnosed with PMR on Feb 3, 2023 and getting on prednisone (now at 60...

https://connect.mayoclinic.org/comment/821986/

After being diagnosed with PMR on Feb ... would have been nothing for me before PMR

Discussion: I have questions: Can you work out while on Prednisone? Options?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 6, 2023

Hi @jmcc I'm wondering if the pain in your shoulders is related to PMR or something...

https://connect.mayoclinic.org/comment/658986/

pain in your shoulders is related to PMR ... I first had PMR, then Giant Cell Arteritis

Discussion: Supplements to reduce inflammation

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 1, 2021

It is now 5 months later since I wrote here about my ear/nasal issues. I thought...

https://connect.mayoclinic.org/comment/641564/

had lost 25 lbs and diagnosed with PMR ... The prednisone I was taking for PMR

Discussion: Nasal passage blocked

Support Group: Ear, Nose & Throat (ENT)

Posted: Oct 3, 2021

@chals What has helped me taper off of prednisone the 2 times that it was active...

https://connect.mayoclinic.org/comment/607156/

Each time my PMR was active I was started ... six months of my first occurrence of PMR

Discussion: Prednisone support group?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 5, 2021

Hi @jump, Welcome to Mayo Clinic Connect. You mentioned you have to be on prednisone the...

https://connect.mayoclinic.org/comment/145169/

occurrences of polymyalgia rheumatica (PMR ... but was able to taper off once the PMR

Discussion: Small Fiber Neuropathy: What helps?

Support Group: Neuropathy

Posted: Feb 20, 2019