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Comments (2,427)

My ANA was 170 if I’m not mistaken. I have tons of pain. Was diagnosed with...

https://connect.mayoclinic.org/comment/1311368/

I thought I had lupus too. ... right away or it can be drug induced lupus

Discussion: I have an ANA of positive speckled at 1:80 .

Support Group: Autoimmune Diseases

Posted: May 23 4:52pm

Hi Terriann - I'm sorry you have so much to contend with right now. A psychologist...

https://connect.mayoclinic.org/comment/1010183/

MS and Lupus seem fairly similar to ... My first cousin has Lupus and our issues

Discussion: Multiple Sclerosis (MS) - please introduce yourself

Support Group: Brain & Nervous System

Posted: Feb 5, 2024

Hi Lisa Beans. I am not sure if this will help or not hour for the...

https://connect.mayoclinic.org/comment/137369/

heart and finally decided that it was lupus ... Over your symptoms for you sound like lupus

Discussion: Undiagnosed auto immune disease, put on Leflunomide

Support Group: Autoimmune Diseases

Posted: Aug 23, 2019

Hello @luserm1, I'd like to introduce you to Connect members @atorset, @myminnie @gretagean, @mommynumberone, @avonlady38, @vmbreier,...

https://connect.mayoclinic.org/comment/167547/

wish to view these conversations: – Lupus ... /connect.mayoclinic.org/discussion/lupus-autoimmune-hepatitis

Discussion: Autoimmune hepatitis*

Support Group: Autoimmune Diseases

Posted: Sep 18, 2017

I have systemic lupus, and I find an afternoon rest period or nap refreshes me. I...

https://connect.mayoclinic.org/comment/1117720/

I have systemic lupus, and I find an

Discussion: Fatigue every afternoon - How can I get more energy?

Support Group: Aging Well

Posted: Aug 4, 2024

My daughter isn't showing symptoms so no treatment right now; she also was diagnosed with Lupus...

https://connect.mayoclinic.org/comment/814758/

right now; she also was diagnosed with Lupus

Discussion: Diagnosed with asymptomatic CLL 6 years ago: Starting to have symptoms

Support Group: Blood Cancers & Disorders

Posted: Feb 21, 2023

Testing for Hashimotos is anti (antibody) TPO. and anti TG. TSH and free T4 are often...

https://connect.mayoclinic.org/comment/1237217/

Lots of tests for lupus but first screening

Discussion: Mast Cell Activation Syndrome or Histamine Intolerance

Support Group: Autoimmune Diseases

Posted: Feb 15 6:33am

@susanfalcon52 Reclast IS a bisphosphonate :) A very potent one! I am still recovering from COVID...

https://connect.mayoclinic.org/comment/977958/

recovering from COVID with a probably lupus

Discussion: My Experience on Evenity for Treating Osteoporosis

Support Group: Osteoporosis & Bone Health

Posted: Dec 10, 2023

My hair is falling out also, but I blame it on aging. I’m 83, and was...

https://connect.mayoclinic.org/comment/877320/

But I have a Lupus type illness, and

Discussion: Having problems with dry mouth possibly from medications

Support Group: Aging Well

Posted: Jun 12, 2023

For the leg pain and not walking ask your dr about hydroxychloroquine. It saved me. I...

https://connect.mayoclinic.org/comment/875872/

Our long Covid symptoms mimic lupus

Discussion: Long Haul Covid Devastation

Support Group: Post-COVID Recovery & COVID-19

Posted: Jun 10, 2023

My wife was diagnosed with Lupul 11 years into our marriage. We had a good marriage...

https://connect.mayoclinic.org/comment/1061557/

My wife was diagnosed with Lupul 11 ... or more times a week then came the lupus ... female hormones but they caused her lupus

Discussion: Sexless Marriage (when one partner is ill)

Support Group: Men's Health

Posted: May 3, 2024

@tpriyaleela , hello and welcome to Connect. You’ve had lupus for about 7 years, but now...

https://connect.mayoclinic.org/comment/685839/

You’ve had lupus for about 7 years, ... where many people are talking about lupus

Discussion: Lupus nephritis

Support Group: Autoimmune Diseases

Posted: Mar 2, 2022

Thank you! I was diagnosed with papillary thyroid cancer in March 2020. I had severe collar...

https://connect.mayoclinic.org/comment/287220/

October 2020 I was diagnosed with Lupus ... I have a strong family history of lupus

Discussion: Thyroid Cancer Group: Introduce yourself and connect with others

Support Group: Thyroid Cancer

Posted: Feb 25, 2021

I was diagnosed with Tumid Lupus in 2004. It is rare, and dermatologists and rheumatologists don't...

https://connect.mayoclinic.org/comment/117623/

I was diagnosed with Tumid Lupus in ... forever thankful though that this lupus

Discussion: Tumid Lupus

Support Group: Autoimmune Diseases

Posted: Sep 10, 2017

If you're not taking opioids anymore, you might ask about taking LDN - Low Dose Naltrexone...

https://connect.mayoclinic.org/comment/895050/

A friend of mine with Lupus has used

Discussion: What was your experience with a pain pump?

Support Group: Chronic Pain

Posted: Jul 13, 2023

Morning, maybe this will help. I have Cutaneous Lupus. I have had it for a number...

https://connect.mayoclinic.org/comment/704604/

I have Cutaneous Lupus.

Discussion: Insomnia, depression, anxiety

Support Group: Depression & Anxiety

Posted: May 2, 2022

@csage1010 Well, gosh, thank you so much! I have had to be educated on my own...

https://connect.mayoclinic.org/comment/638359/

when I was diagnosed with Systemic Lupus

Discussion: CKD numbers increased

Support Group: Kidney & Bladder

Posted: Sep 23, 2021

Thursday the FDA gave final approval to what the studies suggest is a novel, effective, non-opioid...

https://connect.mayoclinic.org/comment/1226771/

help your pain, you might ask your Lupus

Discussion: Lupus pain

Support Group: Autoimmune Diseases

Posted: Feb 1 9:14am

I had a high ANA and strange pains and was told I had Lupus and would...

https://connect.mayoclinic.org/comment/1312260/

and strange pains and was told I had Lupus

Discussion: I have an ANA of positive speckled at 1:80 .

Support Group: Autoimmune Diseases

Posted: May 25 6:49am

I have been tested by 4 different rheumatologists for 12 years. They thought I had Lupus,...

https://connect.mayoclinic.org/comment/1341333/

They thought I had Lupus, but I was ... rheumatologist who stated that I don't have Lupus

Discussion: Can glucosamine and chondroitin help relieve fibromyalgia pain?

Support Group: Fibromyalgia

Posted: Jul 5 5:54am