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861 total results

Comments (821)

@dklaus @harley22 Since both of you are dealing with the same issues I thought I would...

https://connect.mayoclinic.org/comment/1101205/

I don’t have CIDP, so really can’t compare

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Jul 7 5:40pm

To @janstar61 I am sorry to hear you had such a bad experience with a provider....

https://connect.mayoclinic.org/comment/825100/

I have a diagnosis of CIDP and I get

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Mar 12, 2023

You have been through a lot. I'm sorry for your pain. Here are some things that...

https://connect.mayoclinic.org/comment/92574/

I have cidp and sfn.

Discussion: Anyone here dealing with peripheral neuropathy?

Support Group: Neuropathy

Posted: Dec 30, 2018

I just finished my third immunoglobulin infusion for CIDP. I am on a path that requires...

https://connect.mayoclinic.org/comment/901407/

third immunoglobulin infusion for CIDP

Discussion: Is this an autoimmune rash?

Support Group: Autoimmune Diseases

Posted: Jul 24, 2023

Yes, I have JUST after 13 years of all the symptoms, FINALLY BEEN DIAGNOSED WITH CIDP...

https://connect.mayoclinic.org/comment/824353/

symptoms, FINALLY BEEN DIAGNOSED WITH CIDP

Discussion: Anyone been diagnosed with CIDP? It's very rare

Support Group: Autoimmune Diseases

Posted: Mar 11, 2023

Hi @lucy84 I have MCL stage 2A which was diagnosed last April. It's taken an indolent...

https://connect.mayoclinic.org/comment/817585/

However, I also was diagnosed with CIDP

Discussion: Most effective way to administer IVIG

Support Group: Blood Cancers & Disorders

Posted: Feb 26, 2023

I am trying to navigate IVIG for CIDP and Medicare coverage. My wife has a Medicare...

https://connect.mayoclinic.org/comment/837920/

I am trying to navigate IVIG for CIDP

Discussion: CIDP, Diagnosis, Treatment, Insurance - Medicare and Medicare Part D

Support Group: Neuropathy

Posted: Apr 5, 2023

Yes CIDP and most likely from the Covid Vaccine! UCLA nueromuscular is fast and great! They...

https://connect.mayoclinic.org/comment/1100544/

Yes CIDP and most likely from the Covid

Discussion: Leg Weakness and Mobility Issues

Support Group: Autoimmune Diseases

Posted: Jul 6 5:24pm

Hand, I get an infusion of Reclast once a year. I've had four infusions so far...

https://connect.mayoclinic.org/comment/99628/

over 13 months to be diagnosed with CIDP

Discussion: Chronic Pain members - Welcome, please introduce yourself

Support Group: Chronic Pain

Posted: Nov 5, 2020

I was diagnosed with CIDP last summer but have had symptoms for several years. I am...

https://connect.mayoclinic.org/comment/1060891/

I was diagnosed with CIDP last summer

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: May 2 12:23pm

Sorry for the side effects you are having. I can give you a "success" story --...

https://connect.mayoclinic.org/comment/1121363/

was given a tentative diagnosis of CIDP ... said he was now 99% certain of the CIDP

Discussion: Now Receiving GammaGard Bi-Weekly Infusions

Support Group: Autoimmune Diseases

Posted: Aug 10 7:29pm

Hi bburleson1, it sounds like you are telling my story. I've been dealing with this for...

https://connect.mayoclinic.org/comment/91969/

One Dr said it was CIDP and one Dr said ... came back that I had indicators for CIDP

Discussion: Anyone here dealing with peripheral neuropathy?

Support Group: Neuropathy

Posted: Jul 12, 2017

@supernat10 My gastro appointment with the surgeon was good. I really liked her. We are going...

https://connect.mayoclinic.org/comment/1040727/

especially to check/rule out MS and/or CIDP ... , bloodwork for MS, spinal tap for CIDP

Discussion: Unknown illness

Support Group: Autoimmune Diseases

Posted: Mar 26 4:59pm

Hi! My name is Libby and my husband is suffering from peripheral neuropathy mainly in his...

https://connect.mayoclinic.org/comment/636071/

Medical Center thought maybe it was CIDP

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Sep 16, 2021

I refused plasmaphoresis, IVIG did nothing for me, Gabapentin and other meds did not help me...

https://connect.mayoclinic.org/comment/1064564/

recommending Rituxan infusions for my CIDP

Discussion: Chronic Inflammatory Demyelinating Polyneuropathy and IVIG reactions

Support Group: Neuropathy

Posted: May 9 3:09am

My husband had crazy blood work, weak legs, bad balance and many tests. Saw 4 neurologists,...

https://connect.mayoclinic.org/comment/1001636/

's, and a rare genetic disease CIDP

Discussion: At my wits end. Not sure where to go from here.

Support Group: Blood Cancers & Disorders

Posted: Jan 22 7:28am

Hello @jhn48110, I might be mistaken but I think CFS and BFS are a similar condition...

https://connect.mayoclinic.org/comment/603003/

Living Each Day to the Fullest - GBS/CIDP ... Foundation: https://www.gbs-cidp.org

Discussion: Benign Cramp Fasciculation Syndrome

Support Group: Brain & Nervous System

Posted: May 19, 2021

Hi @shariday and welcome to Mayo Clinic Connect. It sounds like you’ve just had the rug...

https://connect.mayoclinic.org/comment/604965/

has-anyone-on-this-feed-been-diagnosed-with-cidp-its-very-rare

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: May 26, 2021

That’s wonderful news that your numbers are lower than first considered. I know, watch and wait...

https://connect.mayoclinic.org/comment/746730/

started on the treatments for the CIDP

Discussion: Anyone else have Mantle Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Sep 7, 2022

@jshdma Hello, I started to have paresthesia (numbness, tingling, and burning) in one of my lower...

https://connect.mayoclinic.org/comment/892834/

BINGO diagnosis of CIDP

Discussion: CIDP Support Group

Support Group: Autoimmune Diseases

Posted: Jul 9, 2023