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821 total results
Comments (750)
@robbinr, sounds like you have some real issues there. But may I suggest you talk to...
https://connect.mayoclinic.org/comment/153219/
mis-folded protein disease deposit, or Amyloidosis ... And contact Amyloidosis.org for info
@z4upper, Glad you are making progress with your diagnosis., but it is not great surprise. Every...
https://connect.mayoclinic.org/comment/691763/
Much of this is Multiple Myeloma, >Amyloidosis
@tayleebuzz As Lori said, this can be very confusing. I live in rural Oregon, and the...
https://connect.mayoclinic.org/comment/594415/
know that I have a large package of Amyloidosis
I have a co worker with MM Amyloidosis but his was with his lungs. He received...
https://connect.mayoclinic.org/comment/903269/
I have a co worker with MM Amyloidosis
Hi @johnbishop, while your comment about not finding a cure is surely true for the vast...
https://connect.mayoclinic.org/comment/803417/
t know the status) for one type of amyloidosis
@grace02 Hi, Melissa. I have had spots in my eyes since about age 8 or 9....
https://connect.mayoclinic.org/comment/76409/
inherited Transthyretin wild type Amyloidosis
Hi @mrperezy50 Welcome to Mayo Clinic Connect. It’s easy to feel alone when you’ve been diagnosed...
https://connect.mayoclinic.org/comment/787456/
connect.mayoclinic.org/discussion/waldenstroms-and-amyloidosis
@doub2018 Yes, doug, I have heard of this. I have the spurs and stenosis and the...
https://connect.mayoclinic.org/comment/184388/
pretty sure it is hereditary Gelsolin Amyloidosis
I also a very disappointed that Mayo isn’t taking any new neurology patients. I have been...
https://connect.mayoclinic.org/comment/1117638/
symptoms, and MS was ruled out, as was Amyloidosis
@nsnipes11 (Nan), I just had another thought. It's quite possible that your primary care doctor just...
https://connect.mayoclinic.org/comment/995165/
showed why I was concerned about AL amyloidosis ... multiple myeloma, higher risk for AL amyloidosis
Now having a diagnosis, I just filled out my Bio and will repost here, because it...
https://connect.mayoclinic.org/comment/981394/
alarmed at the prospect of having AL amyloidosis ... disorders OTHER than MM, such as AL amyloidosis
@peabody No, I think you made your question quite clear. That is, how to stay on...
https://connect.mayoclinic.org/comment/213888/
't see anything that indicates Amyloidosis ... that all point to Hereditary Gelsolin Amyloidosis
Great to hear from you! I’m sorry about your disappointing experience at Mayo. I think it’s...
https://connect.mayoclinic.org/comment/831605/
wonderful that they found you do not have amyloidosis
Knowledge is power. You’ll find the doctors and the medical teams at Mayo are very approachable,...
https://connect.mayoclinic.org/comment/726744/
the leading research specialists in Amyloidosis
@oldkarl I agree with you 100% about doctors, nurses, etc. I'm excited for my first visit...
https://connect.mayoclinic.org/comment/177364/
Sorry to hear about your Amyloidosis
I do think there is more happening with some of us than the research or statistics...
https://connect.mayoclinic.org/comment/1061564/
trigger much beyond the typical MM, Amyloidosis
@Peach414144 (Peachy?) I like that name. Anyway, to answer your question, no! My diagnosis for years...
https://connect.mayoclinic.org/comment/167743/
some of the most important signs of Amyloidosis ... Or go to Amyloidosis.org, the Amy Foundation
Hi Susan, I’m sorry to hear you’re also not being heard, and I hope you have...
https://connect.mayoclinic.org/comment/883939/
terms of secondary harm to tissues (amyloidosis
Just for info, I was diagnosed with prostate cancer in 2012. I am part of a...
https://connect.mayoclinic.org/comment/155101/
was probably my "Primary Systemic AL Amyloidosis
Hello Bob, so sorry to hear of your wife’s diagnosis. Hopefully her treatment can be performed...
https://connect.mayoclinic.org/comment/88336/
at Mayo Rochester indicated I had Amyloidosis
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