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1,042 total results
Comments (925)
Hello @carpe_bean. I have never used this site before & just joined. I just wanted to...
was not informed at the time that it would ... but on secondary testing no sign of Lupus ... 's thought I might have either Lupus ... Again, your symptoms could be due to ... other issues but I just thought I would
Support Group: Autoimmune Diseases
Posted: Mar 27, 2018
I had 3 puncture biopsies done recently. The ones below my knee showed normal, but the...
He mentioned Lupus, but didn't elaborate ... Maybe you would have some input that ... would bring me better understanding
Support Group: Neuropathy
Posted: Oct 15, 2017
It's like you are writing my story except I am now fighting with a rheumatologist who...
rheumatologist who is trying to say I dont have Lupus ... even have to convince this dr I have Lupus ... Any advice would be appreciated!
Support Group: Autoimmune Diseases
Posted: Jun 28, 2017
I am not sure what Tumid Lupus is or how it differs from the type of...
I am not sure what Tumid Lupus is or ... I would be sweating yet at the same ... time I would have goosebumps and be ... The thing was I would only sweat on ... My only advice to you would be to find
Discussion: Tumid Lupus
Support Group: Autoimmune Diseases
Posted: Oct 11, 2016
A symptom overlay like that would be impossible to parse out as a single ideas diagnosis...
A symptom overlay like that would be ... like of course a cancer, or again, lupus ... failures, the usual servo systems that would ... reestablish homeostasis couldn't handle
Support Group: Just Want to Talk
Posted: Sep 14, 2016
Hi @johnwburns, thank you for your thoughts and the test link. Prednisone 5mg is one of...
How would they treat adrenal insufficiency ... But no ACTH test, which I wish they would ... They consider my lupus inactive. ... nifedipine for Raynauds are used to manage Lupus ... week for EMG...he thought I may have lupus
Support Group: Autoimmune Diseases
Posted: Jul 21, 2016
Disease modifying drugs like plaquenil can take months to provide any relief. As far as what...
for with systemic involvement are Lupus ... guess that they think that you have Lupus ... some fairly common antibody tests would
Support Group: Autoimmune Diseases
Posted: Jul 20, 2016
Hi Robin, To answer the question regarding the titanium fusion. Yes, it really worked. I had...
actually making a crunching noise when I would ... I don't know what motives I could have ... Or secondary to lupus, R/A, Hashimoto's ... She should have the Lupus A and B profile
Support Group: Autoimmune Diseases
Posted: Jul 13, 2012
I was diagnosed with Autoimmune hepatitis with fibrosis 3-4 in 2023, my liver enzymes had been...
started feeling very fatigued and would ... weeks on it I was in extreme pain and could ... Fibromyalgia and in remission for Lupus
Support Group: Autoimmune Diseases
Posted: Jan 5 6:02pm
@quazar I am on 140mg Aimovig. I began to improve 4 days after the medication was...
Emgality does have a problem in that Lupus ... Emgality increases the toxicity of the Lupus ... think that the Aimovig side effects would ... digestive issues, like gastroparesis, would ... If I could convince my insurance company
Support Group: Headache & Migraine
Posted: Dec 31, 2018
I'm 36 now, my first onset was when I was 17 and ever since then I've...
I couldn't be in an upright position ... They began diagnosing me as having lupus ... I was hoping he would have said, there's ... There could be hope.
Support Group: Headache & Migraine
Posted: Jun 9, 2012
@tilou I have side effects too. It took me 15 years of trying to get onto...
I literally could not tolerate bisphosphonates ... I have afib, lupus, alleriges and kidney
Posted: Oct 30, 2024
I see the Neurologist on the 10th of January and he will do another EMG test,...
A MRI is also scheduled, it could show ... white matter , which would coincide ... with DSDNA test results.. so it could ... also be Neuro Lupus .. it sucks to