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963 total results
Comments (917)
Jim, I too have CIDP with neuropathy (up to my knees). I have lupus which also...
https://connect.mayoclinic.org/comment/1014897/
Jim, I too have CIDP with neuropathy
My husband also a big drinker had his legs give out. He was also given a...
https://connect.mayoclinic.org/comment/744546/
inflammatory demyelinating polyneuropathy (CIDP
Numbness, and lack of sensation in outer limbs and extreme fatigue. Some variants have a lot...
https://connect.mayoclinic.org/comment/1265841/
and nerve conduction test and found CIDP
Nope, same here, all suggestions regarding meds,I’ve already done with no positive results. Suggestions made for...
https://connect.mayoclinic.org/comment/1027999/
Possibly new med coming out this year for CIDP
@wisfloj The only insight I've got is it can rule out another specific type of neuropathy...
https://connect.mayoclinic.org/comment/313610/
Also, CIDP, Chronic Inflammatory Demylenating
Headaches are common after the infusions. I’m given 2 Tylenol for the headache and 2 Benadryl...
https://connect.mayoclinic.org/comment/81512/
CIDP exacerbates my fibromyalgia pain
These autoimmune diseases are tough. I’m suffering for 12 yrs now with CIDP and it’s really...
https://connect.mayoclinic.org/comment/1199396/
I’m suffering for 12 yrs now with CIDP
I also wasn’t sure if my bowel and bladder issues were just age related nd female,...
https://connect.mayoclinic.org/comment/1017381/
Is this also part of my CIDP or is it
I also recommend consulting your PCP but unfortunately the days when I can put all my...
https://connect.mayoclinic.org/comment/938820/
disorders (I know far more about GBS/CIDP
It's worth the trip to get a competent diagnosis and treatment recommendation. It certainly was in...
https://connect.mayoclinic.org/comment/932389/
in my case, where I finally got a CIDP
My husband had balance & falling issues. One neurologist said he had CIDP. He got 3...
https://connect.mayoclinic.org/comment/797366/
One neurologist said he had CIDP.
Hello @mrsfitz, Welcome to Connect. While we wait for those members to share personal experience you...
https://connect.mayoclinic.org/comment/639460/
." --- GBS|CIDP Foundation International ... and Vaccinations: https://www.gbs-cidp.org
@kimegraves good morning. I am being treated for Lyme disease as I have 2 dogs and...
https://connect.mayoclinic.org/comment/799734/
doc ordered IVIG and diagnosed the CIDP ... a wonderful FB Support group for CIDP
Sorry got interrupted. She should be checked for ALL treatable causes of peripheral neuropathy in case...
https://connect.mayoclinic.org/comment/1238795/
CIDP is a form of Guillian-Barre Syndrome ... and there are foundations for GBS/CIDP
Becky, started LDN 7/2020 for PMR pain and have continued ever since. It helped relieve the...
https://connect.mayoclinic.org/comment/853302/
side effects and progression of GBS/CIDP
It's so stressful. Doing computer searches helped me find my direction and then I had to...
https://connect.mayoclinic.org/comment/827734/
would still be getting infusions for CIDP
Hello and I feel for you. I am in year 5 of similar pain, I woke...
https://connect.mayoclinic.org/comment/1233372/
visits they finaly realized I had cidp
Met with pain doc. He looked at mri interpretation and some images. Didn’t really seem to...
https://connect.mayoclinic.org/comment/1097854/
said that I seen a condition called CIDP
@terriann I never heard about neuropsychiatric SLE/Lupus. I will talk to my new rheumatologist about this...
https://connect.mayoclinic.org/comment/1071361/
rheumatologist about this and also about CIDP
Previgin infusions did not help me. Had 7 mos of infusions every 3 weeks x2 days...
https://connect.mayoclinic.org/comment/979107/
guarantee that it will work for my CIDP
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