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126 total results

Comments (113)

We are on the same timeline as y'all! It is consistent with what our local Onc...

https://connect.mayoclinic.org/comment/937033/

weeks of radiation and 45 doses of temodar ... Luckily, he tolerated temodar fairly ... he shows a response on MRI to the temodar ... radiation, he will start maintenance temodar

Discussion: My Husband's journey with Glioblastoma

Support Group: Brain Tumor

Posted: Sep 26, 2023

I do believe that is what I have been diagnosed with. Started with a liver sarcoma...

https://connect.mayoclinic.org/comment/1094505/

suggested that I take Avastin and Temodar

Discussion: Synovial spindle cell sarcoma, left lung. Anyone else have this?

Support Group: Sarcoma

Posted: Jun 26 9:54am

@colleenyoung Thanks for checking in. Sorry I have been slow to respond - got busy with...

https://connect.mayoclinic.org/comment/310290/

post radiation since he is NOT on temodar

Discussion: Radiation with or without Temodar for Glioblastoma?

Support Group: Brain Tumor

Posted: Jun 1, 2020

@megxoxo, welcome to Connect. I moved your message to this discussion in the Brain Tumor group...

https://connect.mayoclinic.org/comment/214952/

you mention that you've had SOC, Temodar

Discussion: Glioblastoma Multiforme and Cognitive Loss

Support Group: Brain Tumor

Posted: Apr 18, 2019

My husband just finished cycle 3 of Temodar yesterday. He has experienced no nausea at all....

https://connect.mayoclinic.org/comment/1015494/

My husband just finished cycle 3 of Temodar

Discussion: My Husband's diagnosis of glioblastoma grade 4

Support Group: Brain Tumor

Posted: Feb 14 8:03am

Thank you for sharing the photos I just saw them that is so helpful. I was...

https://connect.mayoclinic.org/comment/323008/

across lomustine its after 5 cycles of temodar

Discussion: My Husband's journey with Glioblastoma

Support Group: Brain Tumor

Posted: Jan 18, 2021

hi David, Thanks so much for posting your experiences. I’ve been trying to find others who...

https://connect.mayoclinic.org/comment/154101/

The radiation and temodar didn’t seem

Discussion: Pleomorphic xanthoastrocytoma tumor (Pxa): help

Support Group: Brain Tumor

Posted: Dec 18, 2018

I read the article and it does sound encouraging. It does note using the Prozac along...

https://connect.mayoclinic.org/comment/961296/

week post cycle one of the increased Temodar

Discussion: My Husband's journey with Glioblastoma

Support Group: Brain Tumor

Posted: Nov 8, 2023

Temodar taken on a very strict schedule one hour before radiation if you are a Mayo...

https://connect.mayoclinic.org/comment/1002338/

Temodar taken on a very strict schedule

Discussion: My Husband's diagnosis of glioblastoma grade 4

Support Group: Brain Tumor

Posted: Jan 23 9:21am

Hi @kc2, I appreciate reading your story and your fighting spirit. I added your post to...

https://connect.mayoclinic.org/comment/1110626/

How often to receive temozolomide (Temodar

Discussion: Aggressive Pituitary Tumor (APA) PitNET TMZ (Temodar)

Support Group: Brain Tumor

Posted: Jul 23 3:44pm

@klpetts Hello Karin I'm disappointed to hear that the results of your tests were not more...

https://connect.mayoclinic.org/comment/257066/

doctor said regarding the Xeloda and Temodar

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 25, 2021

I checked out all the members you listed and none are active so I do not...

https://connect.mayoclinic.org/comment/155375/

Even some help on how to deal with Temodar

Discussion: astrocytoma in cerebellum, need advice

Support Group: Brain Tumor

Posted: Jul 15, 2017

Hi @eileen61, thank you for your insight. I'm sorry to hear you're going through a bit...

https://connect.mayoclinic.org/comment/310286/

methylation, etc.) when deciding on using Temodar ... risk/crisis, he does not think giving Temodar

Discussion: Radiation with or without Temodar for Glioblastoma?

Support Group: Brain Tumor

Posted: May 11, 2020

Welcome to Mayo Clinic Connect, @daughterfuturemd. You are asking some great questions. Allow me to tag...

https://connect.mayoclinic.org/comment/310281/

barbaraak, who have experience with Temodar

Discussion: Radiation with or without Temodar for Glioblastoma?

Support Group: Brain Tumor

Posted: May 10, 2020

Hey @Imp1 how is your daughter doing on the clinical trial? My wife has PXA grade...

https://connect.mayoclinic.org/comment/154093/

grade 3 and finished her radiation and temodar

Discussion: Pleomorphic xanthoastrocytoma tumor (Pxa): help

Support Group: Brain Tumor

Posted: Nov 24, 2018

Friend, I wish you the best, whatever you decide. My husband now age 73, was diagnosed...

https://connect.mayoclinic.org/comment/1106333/

radiation, and a short break, we began Temodar ... The Temodar pills pack a punch.

Discussion: How Have Your Glioblastoma Experiences With Temozolomide Been?

Support Group: Brain Tumor

Posted: Jul 16 12:56am

Hi @clavallee2, I am in remission but had Large B cell CNS Lymphoma. I had three...

https://connect.mayoclinic.org/comment/286905/

methotrexate which is an infused Chemo and Temodar

Discussion: Anyone diagnosed with Primary Central Nervous System (CNS) Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Dec 22, 2019

The treatment is going pretty well. He hasn't had too many side effects. Has lost his...

https://connect.mayoclinic.org/comment/1015006/

His last day on Temodar and radiation

Discussion: My Husband's diagnosis of glioblastoma grade 4

Support Group: Brain Tumor

Posted: Feb 13 10:36am

I am currently taking 5 nightly doses of 300 mg of temodar (last month I took...

https://connect.mayoclinic.org/comment/270041/

taking 5 nightly doses of 300 mg of temodar

Discussion: Surgery or no surgery: possible low-grade glioma?

Support Group: Brain Tumor

Posted: Jul 19, 2020

My tumor is quite rare...it is an Anaplastic Pleomorphic Xanthoastrocytoma, or short form is Anaplastic PXA....

https://connect.mayoclinic.org/comment/88277/

radiation treatments I was treated with Temodar

Discussion: Recurrent anaplastic oligoastrocytoma or necrosis?

Support Group: Brain Tumor

Posted: Mar 23, 2016