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131 total results

Comments (120)

Welcome to Connect, @barbaraak I'd like to bring others into this discussion, like @lmp1 @myminnie @spangles...

https://connect.mayoclinic.org/comment/199417/

dawn_giacabazi, who have experience with Temodar ... related discussions: - Side effects of Temodar ... connect.mayoclinic.org/discussion/side-effects-of-temodar ... side effects have you experience with Temodar

Discussion: 2nd year of Temodar for GBM: Should I expect worse side effects?

Support Group: Brain Tumor

Posted: May 9, 2018

@kc2, thank you for your willingness to share your experiences. If you wish to connect with...

https://connect.mayoclinic.org/comment/1086435/

connect with others on temozolomide (Temodar ... search=Temodar How are you doing

Discussion: Pituitary Macroadenoma-Operate or Wait?

Support Group: Brain Tumor

Posted: Jun 13, 2024

I have had Radiation and Chemo and am on Temodar now. Should I come to the...

https://connect.mayoclinic.org/comment/381960/

had Radiation and Chemo and am on Temodar

Event: #MayoClinicNeuroChat on Brain Tumors

Posted: Feb 3, 2017

My husband was 40 days on Temodar during brain radiation and then 12 cycles /2016/.astrocytoma grade...

https://connect.mayoclinic.org/comment/182091/

My husband was 40 days on Temodar during ... ,now the tumor is growing.He is on temodar

Discussion: Side Effects of Temozolomide (Temodar)

Support Group: Brain Tumor

Posted: Mar 16, 2018

Anyone have Oligodendroglioma? Mine is stage 3. Had surgery. Did radiation. Now doing chemo(temodar).

https://connect.mayoclinic.org/comment/1204276/

Now doing chemo(temodar).

Discussion: Looking for Others with Brain Tumors

Support Group: Brain Tumor

Posted: Jan 5 7:52am

@forgetfulannie, how is your husband doing on the higher dose of Temodar? Did you talk to...

https://connect.mayoclinic.org/comment/1309813/

husband doing on the higher dose of Temodar

Discussion: Anyone dealing with brain cancer

Support Group: Brain Tumor

Posted: May 21 5:41pm

I was diagnosed with GBM in April 2017 and given a 2 year life expectancy. I...

https://connect.mayoclinic.org/comment/211470/

the standard of care - radiation and temodar ... and now on the maintenance temodar

Discussion: Share Your Brain Tumor type & Years since Diagnosis

Support Group: Brain Tumor

Posted: Sep 11, 2018

My husband was diagnosed with GBM multiforme in January. He's finished the 30 days of radiation...

https://connect.mayoclinic.org/comment/1299575/

30 days of radiation and low-dose Temodar ... Waiting for the high-dose Temodar to

Discussion: Anyone dealing with brain cancer

Support Group: Brain Tumor

Posted: May 8 7:31am

I haven’t started yet, waiting till my next scan on 9/24. The oncologist wants me to...

https://connect.mayoclinic.org/comment/1098610/

oncologist wants me to take Avastin and Temodar

Discussion: Diagnosed with sarcoma? Let's share

Support Group: Sarcoma

Posted: Jul 3, 2024

For low grade brain tumor received SOC, Temodar and IMRT. Have experienced cognitive impairment vis a...

https://connect.mayoclinic.org/comment/214951/

low grade brain tumor received SOC, Temodar

Discussion: Glioblastoma Multiforme and Cognitive Loss

Support Group: Brain Tumor

Posted: Apr 18, 2019

I am having 6 weeks of radiation for a total of 6000 (?eGY) by linear accelerator,...

https://connect.mayoclinic.org/comment/1091933/

during the same time, I am taking temodar

Discussion: My Husband's journey with Glioblastoma

Support Group: Brain Tumor

Posted: Jun 22, 2024

Has anyone had experience with optune. Going to start optune with Temodar . How is the...

https://connect.mayoclinic.org/comment/270037/

Going to start optune with Temodar .

Discussion: Surgery or no surgery: possible low-grade glioma?

Support Group: Brain Tumor

Posted: Jun 17, 2020

My husband also has glioblastoma. He took his Temodar at night, a half hour after the...

https://connect.mayoclinic.org/comment/1022460/

He took his Temodar at night, a half

Discussion: My Husband's diagnosis of glioblastoma grade 4

Support Group: Brain Tumor

Posted: Feb 25, 2024

Thanks Colleen ! My husband started this week with radiation along with the chemo pill ,...

https://connect.mayoclinic.org/comment/1034084/

radiation along with the chemo pill , Temodar

Discussion: Glioblastoma: My husband's journey, what's yours?

Support Group: Brain Tumor

Posted: Mar 15, 2024

Spangles, I'm glad you've connected with a few other members here. I will also tag additional...

https://connect.mayoclinic.org/comment/155379/

dawn_giacabazi who have had experience with Temodar

Discussion: astrocytoma in cerebellum, need advice

Support Group: Brain Tumor

Posted: Jul 15, 2017

My husband was diagnosed with a glioblastoma 6 weeks ago. He had surgery at Mayo Phoenix....

https://connect.mayoclinic.org/comment/1310928/

radiation (Proton Beam) and low dose Temodar

Discussion: Anyone dealing with brain cancer

Support Group: Brain Tumor

Posted: May 23 8:52am

Thanks, Coleen. How would I get in touch with the other people you mentioned? I really...

https://connect.mayoclinic.org/comment/155374/

Just finished my first 5-day Temodar ... completing six weeks of radiation with Temodar

Discussion: astrocytoma in cerebellum, need advice

Support Group: Brain Tumor

Posted: Jul 15, 2017

Yes....that was the plan for my husband, but he never got to start it as his...

https://connect.mayoclinic.org/comment/934335/

and that made the difference, as the temodar

Discussion: My Husband's journey with Glioblastoma

Support Group: Brain Tumor

Posted: Sep 22, 2023

Here are a couple of discussions related to oligodendrogliomas: - Oligodendroglioma with IDH mutation https://connect.mayoclinic.org/discussion/oligodendroglioma-ihd/ -...

https://connect.mayoclinic.org/comment/1210832/

brain-cancer/ @bitzy, how are you doing on Temodar

Discussion: Looking for Others with Brain Tumors

Support Group: Brain Tumor

Posted: Jan 13 6:10pm

Sorry to hear that eJacobs. My wife’s situation is similar to David’s daughters one. She is...

https://connect.mayoclinic.org/comment/154123/

She is still in the Temodar phase.

Discussion: Pleomorphic xanthoastrocytoma tumor (Pxa): help

Support Group: Brain Tumor

Posted: May 4, 2019