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75 total results
Comments (69)
I am new to this group, having been diagnosed with PMF within the last month. I...
https://connect.mayoclinic.org/comment/1312290/
group, having been diagnosed with PMF
Hi lynnebgraham, Was that your first bone marrow biopsy or did you have them in the...
https://connect.mayoclinic.org/comment/1244745/
visiting her stating that I may have PMF ... triple negative mutations and not PMF
I don't know what current thinking about CALR is. It was discovered as an MPN driver...
https://connect.mayoclinic.org/comment/1247480/
else that makes yr doc think you are PMF
68 yr old diagnosed 2 years ago with PMF, Jak2 mutation. Have managed foot pain symtoms...
https://connect.mayoclinic.org/comment/132637/
yr old diagnosed 2 years ago with PMF
My platlets were at over a million and pain in my feet was unbearable. I had...
https://connect.mayoclinic.org/comment/599861/
JAK-2 mutation and mild scarring so PMF
Hello all. About a year ago, I had a nephrectomy due to renal cell carcinoma. Since...
https://connect.mayoclinic.org/comment/194266/
positive in X% of patients with PV, ET, PMF
Hi Lynne, I guess I made a big mistake asking my O/H why my platelets were...
https://connect.mayoclinic.org/comment/1244990/
her message that I might now have PMF
@apr931 Hi there! I wanted to chime in on your question regarding the number 32. I...
https://connect.mayoclinic.org/comment/231785/
thrombocythemia (ET), or primary myelofibrosis (PMF
Hi all, Honestly, I have not taken any Hydrea although it was prescribed for me on...
https://connect.mayoclinic.org/comment/1246991/
of ET to “might be transitioning to PMF ... before such rash diagnoses of ET and PMF
Hi @samlupowitz , I had to look up what ECD is because I never heard of...
https://connect.mayoclinic.org/comment/1504945/
I have only been diagnosed with PMF
There is a lot of amazing info in this group. Kudos to many of you have...
https://connect.mayoclinic.org/comment/657917/
Confirmed PMF, though early, it is present
Hi @roughanne , My bone marrow biopsy was graded 1.5 so my former O/H changed my...
https://connect.mayoclinic.org/comment/1501578/
/H changed my diagnosis from ET to PMF
I am a 68 yr old, originally diagnosed with ET in late 2017. After a Bone...
https://connect.mayoclinic.org/comment/57947/
turns out I have the next level up...PMF ... lucky....when mine got stepped up to PMF
I too was diagnosed with PMF in my 40s at 47; though that is truly the...
https://connect.mayoclinic.org/comment/658898/
I too was diagnosed with PMF in my 40s
Hi all... I am 69 and was diagnosed with ET and some fibrosis so Early PMF...
https://connect.mayoclinic.org/comment/146324/
with ET and some fibrosis so Early PMF
Hi, I feel for your frustration. I, too, am experiencing some frustration too as my O/H...
https://connect.mayoclinic.org/comment/1250438/
transitioning to Primary Melofibrosis (PMF
Hi @nohrt4me , Good for you not making any hasty surgery decisions for your valve issue....
https://connect.mayoclinic.org/comment/1563999/
So I not only have CALR 1 and ET or PMF
Thank you for your kind words. It's so comforting to know there are others out there...
https://connect.mayoclinic.org/comment/1312504/
BTW Thank you for the link to the PMF
Welcome to Connect @jv4430. There are a number bone marrow disorders related to the JAK2 gene...
https://connect.mayoclinic.org/comment/969785/
PV, ET, PMF?
Hi @anahata1962 , You did better than I did about even trying Hydrea. The dose my...
https://connect.mayoclinic.org/comment/1608440/
ET January 2025 and changed it to PMF
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