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83 total results
Comments (75)
Hi everybody, As Moderator of this incredible group, I just want to say how much I...
https://connect.mayoclinic.org/comment/185304/
instance, people who are born with Marfan ... syndrome are particularly at risk of
My understanding is that there are two kinds: fusiform and saccular. The saccular is what I...
https://connect.mayoclinic.org/comment/1154797/
Indeed, if this patient had Marfan syndrome
Thank you for sharing your post. I survived a complete Type A-1 ascending aortic dissection at...
https://connect.mayoclinic.org/comment/1199655/
genetic testing for conditions like Marfan ... syndrome, Loeys-Dietz syndrome, or
I’m 60 now. I had a complete sudden dissection at 50. I understand how worried you...
https://connect.mayoclinic.org/comment/1222113/
Communities like Aortic Hope or Marfan ... Foundation (even if you don’t have Marfan ... syndrome, they deal with connective
Hi Colleen, Thanks for asking... I worked hard last night to get some of the symptoms...
https://connect.mayoclinic.org/comment/592867/
connective tissue disorders (Ehlers-Danlos Syndrome ... , Marfan Syndrome, Chiari Malformation ... (head pounds to beat of heart)
Marfan ... Abnormal thumb joints
Reynauds Syndrome
I’m sorry to hear about the challenges you’re facing with your ascending aortic aneurysm and the...
https://connect.mayoclinic.org/comment/1200343/
Conditions like Loeys-Dietz syndrome ... or Marfan syndrome could predispose
I just want to add this: Knowing that you have an enlarged aorta means you can...
https://connect.mayoclinic.org/comment/1199663/
RISK FACTOR: Certain genetic syndromes ... potentially fatal aortic dissection: Marfan ... syndrome, Loeys-Dietz syndrome, Turner ... syndrome and Vascular Ehlers-Danlos ... syndrome.
Am sorry this mystery is messing with your lives. Some are more prone to multiple aneurysms....
https://connect.mayoclinic.org/comment/1351572/
Defects: Marfan's and other (many ... example: people born with Down's Syndrome
My husband also has an elevated lp(a). He is on Repatha. He also has an aneurysm...
https://connect.mayoclinic.org/comment/1362633/
testing basically seems to screen for Marfans ... syndrome.
@help123 Hello, Maran. I have so much to say, and offer, especially given your age and...
https://connect.mayoclinic.org/comment/724983/
@help123 Hello, Maran. ... talking about Central Sensitization Syndrome
I think it grows, (dialates) because the wall of the aorta becomes stretched and compromised perhaps...
https://connect.mayoclinic.org/comment/274652/
fever(from severe “scarlet fever“), Marfans ... Syndrome( inherited disorder), or some
hi, this is Thomas young i doin fact have marfans syndrom Im here for whatever i...
https://connect.mayoclinic.org/comment/88363/
this is Thomas young i doin fact have marfans ... syndrom Im here for whatever i havnt
A 3.8 cm ascending aortic aneurysm is on the smaller side and, in most cases, doesn't...
https://connect.mayoclinic.org/comment/1237746/
connective tissue disorders (like Marfan ... or Loeys-Dietz syndrome), but it’s
I am 70 and was diagnosed about 5 years ago. Yes it is slow moving and...
https://connect.mayoclinic.org/comment/673378/
I have marfans syndrome which is a connective ... Marfans causes many things so every
As to mjm's concerns about imminent risk of a rupture/dissection, there are published risk statistics on...
https://connect.mayoclinic.org/comment/1125462/
unless there other risk factors, like Marfan ... 's syndrome or some identified genetic
I’ve had this throat issue since I was a teen and like your son went through...
https://connect.mayoclinic.org/comment/1069922/
indicators of having some form of marfans ... symdrome, you can’t tell by looking
Thank you, both. I know one of the primary recommendations will be to lose weight and...
https://connect.mayoclinic.org/comment/940564/
conditions popped pretty hot: Behcet's syndrome ... of things I clearly do not have: Marfan
My son is 16 and their saying he has every sign of Marfans syndrome. His aortic...
https://connect.mayoclinic.org/comment/309709/
their saying he has every sign of Marfans ... syndrome.
-I requested an appointment with Mayo Clinic and was declined. Apparently there are several collagen based...
https://connect.mayoclinic.org/comment/56552/
Apparently there are several collagen based syndromes ... -including Marfans but few people specialize ... and specializes in collagen based syndromes-anyone
My 12 year old has marfans syndrome and suffers from leg length discrepency, loose joints,low muscle...
https://connect.mayoclinic.org/comment/88370/
My 12 year old has marfans syndrome ... would like to be in touch with other marfans ... patients or parents of marfans patients
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