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80 total results
Comments (71)
Thank you for sharing your post. I survived a complete Type A-1 ascending aortic dissection at...
https://connect.mayoclinic.org/comment/1199655/
genetic testing for conditions like Marfan ... syndrome, Loeys-Dietz syndrome, or
Hi Colleen, Thanks for asking... I worked hard last night to get some of the symptoms...
https://connect.mayoclinic.org/comment/592867/
connective tissue disorders (Ehlers-Danlos Syndrome ... , Marfan Syndrome, Chiari Malformation ... (head pounds to beat of heart)
Marfan ... Abnormal thumb joints
Reynauds Syndrome
I just want to add this: Knowing that you have an enlarged aorta means you can...
https://connect.mayoclinic.org/comment/1199663/
RISK FACTOR: Certain genetic syndromes ... potentially fatal aortic dissection: Marfan ... syndrome, Loeys-Dietz syndrome, Turner ... syndrome and Vascular Ehlers-Danlos ... syndrome.
I’m sorry to hear about the challenges you’re facing with your ascending aortic aneurysm and the...
https://connect.mayoclinic.org/comment/1200343/
Conditions like Loeys-Dietz syndrome ... or Marfan syndrome could predispose
Hi @kariulrich thank you for sharing your experience! That is very helpful. I have no idea...
https://connect.mayoclinic.org/comment/173262/
I've been evaluated for Marfan twice ... particular, so he also was leaning towards Marfans ... are more prevalent in people with Marfan ... Syndrome so that's the most likely
I am a 5'10", 165# female with a 4.0 ascending aortic anuerysm. I have normal blood...
https://connect.mayoclinic.org/comment/1276617/
Hopkins for genetic testing--mainly for Marfan ... Syndrom. ... Anyway, if I don't have Marfan,
A 3.8 cm ascending aortic aneurysm is on the smaller side and, in most cases, doesn't...
https://connect.mayoclinic.org/comment/1237746/
connective tissue disorders (like Marfan ... or Loeys-Dietz syndrome), but it’s
@help123 Hello, Maran. I have so much to say, and offer, especially given your age and...
https://connect.mayoclinic.org/comment/724983/
@help123 Hello, Maran. ... talking about Central Sensitization Syndrome
I think it grows, (dialates) because the wall of the aorta becomes stretched and compromised perhaps...
https://connect.mayoclinic.org/comment/274652/
fever(from severe “scarlet fever“), Marfans ... Syndrome( inherited disorder), or some
hi, this is Thomas young i doin fact have marfans syndrom Im here for whatever i...
https://connect.mayoclinic.org/comment/88363/
this is Thomas young i doin fact have marfans ... syndrom Im here for whatever i havnt
As to mjm's concerns about imminent risk of a rupture/dissection, there are published risk statistics on...
https://connect.mayoclinic.org/comment/1125462/
unless there other risk factors, like Marfan ... 's syndrome or some identified genetic
I’ve had this throat issue since I was a teen and like your son went through...
https://connect.mayoclinic.org/comment/1069922/
indicators of having some form of marfans ... symdrome, you can’t tell by looking
Thank you, both. I know one of the primary recommendations will be to lose weight and...
https://connect.mayoclinic.org/comment/940564/
conditions popped pretty hot: Behcet's syndrome ... of things I clearly do not have: Marfan
My son is 16 and their saying he has every sign of Marfans syndrome. His aortic...
https://connect.mayoclinic.org/comment/309709/
their saying he has every sign of Marfans ... syndrome.
-I requested an appointment with Mayo Clinic and was declined. Apparently there are several collagen based...
https://connect.mayoclinic.org/comment/56552/
Apparently there are several collagen based syndromes ... -including Marfans but few people specialize ... and specializes in collagen based syndromes-anyone
My 12 year old has marfans syndrome and suffers from leg length discrepency, loose joints,low muscle...
https://connect.mayoclinic.org/comment/88370/
My 12 year old has marfans syndrome ... would like to be in touch with other marfans ... patients or parents of marfans patients
I would consider getting repaired as soon as possible. I was at 4.5 when they repaired...
https://connect.mayoclinic.org/comment/175085/
when they repaired mine but I have Marfans ... syndrome.
You may want to look into and consider being evaluated for connective tissue disorder (Like Ehlers...
https://connect.mayoclinic.org/comment/82574/
tissue disorder (Like Ehlers Danlos or Marfan's ... (I have Ehers Danlos Syndrome).
I am 70 and was diagnosed about 5 years ago. Yes it is slow moving and...
https://connect.mayoclinic.org/comment/673378/
I have marfans syndrome which is a connective ... Marfans causes many things so every
Hello, I just wanted to say that I am having the exact same issue. I started...
https://connect.mayoclinic.org/comment/700848/
heart murmur and am getting tested for Marfan ... 's syndrome.
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