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80 total results
Comments (71)
Hi Colleen, Thanks for asking... I worked hard last night to get some of the symptoms...
connective tissue disorders (Ehlers-Danlos Syndrome ... , Marfan Syndrome, Chiari Malformation ... (head pounds to beat of heart) Marfan ... Abnormal thumb joints Reynauds Syndrome
I just want to add this: Knowing that you have an enlarged aorta means you can...
RISK FACTOR: Certain genetic syndromes ... potentially fatal aortic dissection: Marfan ... syndrome, Loeys-Dietz syndrome, Turner ... syndrome and Vascular Ehlers-Danlos ... syndrome.
Support Group: Aortic Aneurysms
Posted: Dec 29, 2024
Hi @kariulrich thank you for sharing your experience! That is very helpful. I have no idea...
I've been evaluated for Marfan twice ... particular, so he also was leaning towards Marfans ... are more prevalent in people with Marfan ... Syndrome so that's the most likely
Support Group: Visiting Mayo Clinic
Posted: Nov 6, 2017
I am a 5'10", 165# female with a 4.0 ascending aortic anuerysm. I have normal blood...
Hopkins for genetic testing--mainly for Marfan ... Syndrom. ... Anyway, if I don't have Marfan,
Support Group: Aortic Aneurysms
Posted: Apr 7 5:27pm
-I requested an appointment with Mayo Clinic and was declined. Apparently there are several collagen based...
Apparently there are several collagen based syndromes ... -including Marfans but few people specialize ... and specializes in collagen based syndromes-anyone
Support Group: Autoimmune Diseases
Posted: Oct 9, 2018
My 12 year old has marfans syndrome and suffers from leg length discrepency, loose joints,low muscle...
My 12 year old has marfans syndrome ... would like to be in touch with other marfans ... patients or parents of marfans patients
Support Group: Heart & Blood Health
Posted: Feb 8, 2018
I am 70 and was diagnosed about 5 years ago. Yes it is slow moving and...
I have marfans syndrome which is a connective ... Marfans causes many things so every
Posted: Jan 21, 2022