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121 total results

Comments (109)

There is a Facebook group for people with Small Fiver Neuropathy. Many people with Small Fiber...

https://connect.mayoclinic.org/comment/883040/

I had defects of genes related to Charcot

Discussion: Anybody else have these weird symptoms?

Support Group: Neuropathy

Posted: Jun 22, 2023

Hi, I have CMT -Inherited (Charcot Marie Tooth) and when I was in my 30's, I...

https://connect.mayoclinic.org/comment/1293410/

Hi, I have CMT -Inherited (Charcot

Discussion: polio and triple arthrodesis

Support Group: Bones, Joints & Muscles

Posted: Apr 30, 2025

Hi @cgthurin, welcome to Mayo Clinic Connect. Check out the Group Directory https://connect.mayoclinic.org/groups/ and join in...

https://connect.mayoclinic.org/comment/379480/

Do you have neuropathic joints (Charcot

Newsfeed Post: Finding the perfect shoe

Blog: Aging & Health: Take Charge

Posted: Apr 15, 2020

Good morning @cherylmcg You sound so positive even though you’ve got this long list of other...

https://connect.mayoclinic.org/comment/614989/

other diseases that you have like Charcot

Discussion: Undifferentiated Connective Tissue Disease

Support Group: Autoimmune Diseases

Posted: Jul 8, 2021

@lorifin777 When you ask about "cmt1x" are you referring to Charcot-Marie-Tooth Neuropathy? If so, here is...

https://connect.mayoclinic.org/comment/1141437/

#34;cmt1x" are you referring to Charcot-Marie-Tooth

Discussion: Pulmonary 🫁 mac disease

Support Group: MAC & Bronchiectasis

Posted: Sep 14, 2024

I believe that CBD is legal in all 50 states. Please note that this widely advertised...

https://connect.mayoclinic.org/comment/186493/

and the pins/needles effects of my Charcot

Discussion: Does CBD oil help you with your depression and/or anxiety?

Support Group: Depression & Anxiety

Posted: Jun 28, 2018

I have severe PN. It’s in both feet up to the bottom of my knees. I...

https://connect.mayoclinic.org/comment/889432/

I also have Charcot feet.

Discussion: Correlation between peripheral neuropathy and low RBC?

Support Group: Neuropathy

Posted: Jul 3, 2023

CIDP is rather obscure - a half dozen or so patients per 100,000 population. I found...

https://connect.mayoclinic.org/comment/1476025/

genetic analysis in order to exclude Charcot-Marie-Tooth

Discussion: GLP-1s, weight loss, and Neuropathy

Support Group: Neuropathy

Posted: Jan 6 4:48pm

I’ve diagnosed w/UCTD and have been taking hydrochloriquine for 3 months with no improvement. I started...

https://connect.mayoclinic.org/comment/613699/

I also was diagnosed with Charcot Marie

Discussion: Undifferentiated Connective Tissue Disease

Support Group: Autoimmune Diseases

Posted: Jul 3, 2021

Sorry to hear about your issues. Follow up on getting DNA checked for the markers for...

https://connect.mayoclinic.org/comment/1197159/

DNA checked for the markers for CMT (Charcot

Discussion: Paraplegic with no diagnosis and multiple test

Support Group: Neuropathy

Posted: Dec 25, 2024

I understand my neuropathy (numbness and pain) are merely symptoms of possible wounds that may become...

https://connect.mayoclinic.org/comment/997794/

leg after a seven year bout with a Charcot

Discussion: Is the danger of feet amputation real for Neuropathy Sufferers?

Support Group: Neuropathy

Posted: Jan 15, 2024

Yes and mine is caused by a rare neurological disorder called Hereditary Nerve Pressure Palsy, it...

https://connect.mayoclinic.org/comment/676636/

Pressure Palsy, it also falls under Charcot-Marie

Discussion: Has anyone experienced internal vibrations?

Support Group: Brain & Nervous System

Posted: Jan 31, 2022

I am 77 yrs old and was diagnosed with MGUS 2 1/2 yrs ago by a...

https://connect.mayoclinic.org/comment/1090559/

neuropathy, which turned out to be Charcot-Marie-Tooth

Discussion: Anyone have MGUS and being treated for osteoporosis?

Support Group: Blood Cancers & Disorders

Posted: Jun 20, 2024

I was tested for Charcot-Marie-Tooth. They fully expected me to have it, but I didn’t. My...

https://connect.mayoclinic.org/comment/911127/

I was tested for Charcot-Marie-Tooth

Discussion: CIDP, While I am waiting for the tests, genetic?

Support Group: Neuropathy

Posted: Aug 11, 2023

I was diagnosed w/ PN in 1999 when I was 23. No one has been able...

https://connect.mayoclinic.org/comment/999589/

done some research and found out that Charcot-Marie-Tooth ... Does anyone here have Charcot-Marie-Tooth

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Jan 18, 2024

John, is there any way to access the protocol without Facebook? My symptoms are very simiar...

https://connect.mayoclinic.org/comment/1028446/

forties I was screened for MS and Charcot-Marie

Discussion: Anyone here dealing with peripheral neuropathy?

Support Group: Neuropathy

Posted: Mar 6, 2024

I realize I commented on this thread without reading which thread it was. I actually asked...

https://connect.mayoclinic.org/comment/627701/

testing because one doctor said I had charcot-marie-tooth ... clarified that I do not have markers for charcot-marie-tooth

Discussion: Mayo Pain Rehab Clinic and Eating Disorders

Support Group: Chronic Pain

Posted: Aug 19, 2021

WHAT IS ARE RARE DISEASES? Ehlers Danlos Syndrome, Charcot-Marie-Tooth disease, Congenital muscular dystrophy, CRPS, and so...

https://connect.mayoclinic.org/comment/335017/

Ehlers Danlos Syndrome, Charcot-Marie-Tooth

Discussion: Living with Rare Disease and Chronic Pain: What's your story?

Support Group: Chronic Pain

Posted: Feb 14, 2021

I have severe neuropathy in both feet to my knees. I also have Charcot feet. I...

https://connect.mayoclinic.org/comment/888755/

I also have Charcot feet.

Discussion: Do the bottoms of your feet swell up at night?

Support Group: Neuropathy

Posted: Jul 2, 2023

Hey @charlie24 , Found this thread after doing a search for "diabetes mellitus pyoderma gangrenosum charcot...

https://connect.mayoclinic.org/comment/1419157/

diabetes mellitus pyoderma gangrenosum charcot

Discussion: Anyone here dealing with charcot foot disease?

Support Group: Neuropathy

Posted: Oct 19, 2025