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109 total results

Comments (99)

Sorry to hear about your issues. Follow up on getting DNA checked for the markers for...

https://connect.mayoclinic.org/comment/1197159/

DNA checked for the markers for CMT (Charcot

Discussion: Paraplegic with no diagnosis and multiple test

Support Group: Neuropathy

Posted: Dec 25, 2024

I’ve diagnosed w/UCTD and have been taking hydrochloriquine for 3 months with no improvement. I started...

https://connect.mayoclinic.org/comment/613699/

I also was diagnosed with Charcot Marie

Discussion: Undifferentiated Connective Tissue Disease

Support Group: Autoimmune Diseases

Posted: Jul 3, 2021

I understand my neuropathy (numbness and pain) are merely symptoms of possible wounds that may become...

https://connect.mayoclinic.org/comment/997794/

leg after a seven year bout with a Charcot

Discussion: Is the danger of feet amputation real for Neuropathy Sufferers?

Support Group: Neuropathy

Posted: Jan 15, 2024

I was diagnosed w/ PN in 1999 when I was 23. No one has been able...

https://connect.mayoclinic.org/comment/999589/

done some research and found out that Charcot-Marie-Tooth ... Does anyone here have Charcot-Marie-Tooth

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Jan 18, 2024

I am 77 yrs old and was diagnosed with MGUS 2 1/2 yrs ago by a...

https://connect.mayoclinic.org/comment/1090559/

neuropathy, which turned out to be Charcot-Marie-Tooth

Discussion: Anyone have MGUS and being treated for osteoporosis?

Support Group: Blood Cancers & Disorders

Posted: Jun 20, 2024

I was tested for Charcot-Marie-Tooth. They fully expected me to have it, but I didn’t. My...

https://connect.mayoclinic.org/comment/911127/

I was tested for Charcot-Marie-Tooth

Discussion: CIDP, While I am waiting for the tests, genetic?

Support Group: Neuropathy

Posted: Aug 11, 2023

Yes and mine is caused by a rare neurological disorder called Hereditary Nerve Pressure Palsy, it...

https://connect.mayoclinic.org/comment/676636/

Pressure Palsy, it also falls under Charcot-Marie

Discussion: Has anyone experienced internal vibrations?

Support Group: Brain & Nervous System

Posted: Jan 31, 2022

WHAT IS ARE RARE DISEASES? Ehlers Danlos Syndrome, Charcot-Marie-Tooth disease, Congenital muscular dystrophy, CRPS, and so...

https://connect.mayoclinic.org/comment/335017/

Ehlers Danlos Syndrome, Charcot-Marie-Tooth

Discussion: Living with Rare Disease and Chronic Pain: What's your story?

Support Group: Chronic Pain

Posted: Feb 14, 2021

John, is there any way to access the protocol without Facebook? My symptoms are very simiar...

https://connect.mayoclinic.org/comment/1028446/

forties I was screened for MS and Charcot-Marie

Discussion: Anyone here dealing with peripheral neuropathy?

Support Group: Neuropathy

Posted: Mar 6, 2024

I realize I commented on this thread without reading which thread it was. I actually asked...

https://connect.mayoclinic.org/comment/627701/

testing because one doctor said I had charcot-marie-tooth ... clarified that I do not have markers for charcot-marie-tooth

Discussion: Mayo Pain Rehab Clinic and Eating Disorders

Support Group: Chronic Pain

Posted: Aug 19, 2021

I have severe neuropathy in both feet to my knees. I also have Charcot feet. I...

https://connect.mayoclinic.org/comment/888755/

I also have Charcot feet.

Discussion: Do the bottoms of your feet swell up at night?

Support Group: Neuropathy

Posted: Jul 2, 2023

I just ran across this post searching for answers, because like you, I can't get an...

https://connect.mayoclinic.org/comment/720228/

second EMG I was given a diagnosis of Charcot ... Back to charcot Marie tooth, I was pretty

Discussion: Does Small Fiber Neuropathy also cause muscle spasms?

Support Group: Neuropathy

Posted: Jun 23, 2022

I have Charcot Marie Tooth disease, which is a peripheral neuropathy, and I cannot tolerate gabapentin...

https://connect.mayoclinic.org/comment/994757/

I have Charcot Marie Tooth disease,

Discussion: Can Gabapentin make neuropathy pain worse?

Support Group: Neuropathy

Posted: Jan 10, 2024

John - just noticed a post you did where you mentioned the hammer toes. In 2016...

https://connect.mayoclinic.org/comment/783254/

He checked my blood work for Charcot

Discussion: Neuropathy: Numbness only, no pain

Support Group: Neuropathy

Posted: Dec 10, 2022

That's wonderful, I have been living with syringomyelia since 1992, I had my first shunt put...

https://connect.mayoclinic.org/comment/884284/

Syringomyelia caused a Charcot joint

Discussion: Living with Syringomyelia

Support Group: Spine Health

Posted: Jun 24, 2023

I am a 59-year-old female who has had 2 lumbar surgeries (2nd one the placement of...

https://connect.mayoclinic.org/comment/1177511/

feel very little) which has created Charcot

Discussion: Neuropathy and Cervical Stenosis?

Support Group: Neuropathy

Posted: Nov 21, 2024

Mike, sorry it took so long to get back to you! In Illinois, even with a...

https://connect.mayoclinic.org/comment/1036209/

Northwestern first suspected MS or Charcot ... Fortunately for me a genetic test for Charcot

Discussion: How do doctors determine SFN is NOT ALS or MS?

Support Group: Neuropathy

Posted: Mar 18, 2024

Invitae.com does hereditary testing. My nieces's best buddy is a genetic counselor's and she uses them...

https://connect.mayoclinic.org/comment/829661/

CMT (Charcot Marie Tooth) is what my

Discussion: Does anyone recommend a portable, rechargable TENS unit for pain?

Support Group: Neuropathy

Posted: Mar 21, 2023

I have peripheral neuropathy I didn't know what it was for a long time. Numbness and...

https://connect.mayoclinic.org/comment/1112272/

done a DNA test came back that I have Charcot-Marie-Tooth

Discussion: Complications with Peripheral Neuropathy

Support Group: Chronic Pain

Posted: Jul 26, 2024

I was diagnosed with MGUSand CMT (Charcot-Marie-Tooth Disease), which is a rare peripheral neuropathy in 2022...

https://connect.mayoclinic.org/comment/1245363/

I was diagnosed with MGUSand CMT (Charcot-Marie-Tooth

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Feb 25 2:34pm