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Comments (821)

Welcome Toolman 53! I too have had a combination of GBS and CIDP although my timeline...

https://connect.mayoclinic.org/comment/1170525/

have had a combination of GBS and CIDP ... in the hospital and now I feel the CIDP

Discussion: CIDP diagnosis after severe GBS long ago, where do I start?

Support Group: Neuropathy

Posted: Nov 9 8:34am

Hi there Bryan- I'm sorry to hear about your health issues. SPS is a member of...

https://connect.mayoclinic.org/comment/49585/

Myesthinia Gravis, Sjogren's, CIDP

Discussion: Stiff Person Syndrome: Want to connect with others

Support Group: Brain & Nervous System

Posted: Sep 4, 2019

I have exactly the same types of shooting pains like you. Sometimes they’re in the most...

https://connect.mayoclinic.org/comment/1041607/

neurologist, and he attributes it to my CIDP

Discussion: Electric Shocks anywhere in my body

Support Group: Chronic Pain

Posted: Mar 28 10:49am

Hi kuriousmind, my huband had cognitive decline and would fall and couldn't get up. He's 71...

https://connect.mayoclinic.org/comment/1048564/

The second said he had CIDP and so we

Discussion: Short Term memory loss

Support Group: Brain & Nervous System

Posted: Apr 10 4:06pm

Relocating to Phoenix at some point and called Mayo Clinic for an appt. I was told...

https://connect.mayoclinic.org/comment/1031626/

finding some kind of hope with my CIDP

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Mar 11 10:46am

There are excellent neuropathy centers with lots of experience in GBS. The Neuropathy Association (neuropathy.org) lists...

https://connect.mayoclinic.org/comment/55500/

In addition the GBS/CIDP Foundation ... International (http://www.gbs-cidp.org

Discussion: GBS (Guillain-Barre Syndrome)

Support Group: Brain & Nervous System

Posted: Aug 27, 2011

I’ve had lip sores from biting them for over 10 yrs now. My upper and lower...

https://connect.mayoclinic.org/comment/1029231/

I’m assuming it’s part of my CIDP ,

Discussion: Chronic tongue and lip biting while eating

Support Group: Brain & Nervous System

Posted: Mar 7 10:32am

What you are experiencing sounds very similar to my experience. But in addition to the testing...

https://connect.mayoclinic.org/comment/1087899/

me suspecting and confirming I had CIDP

Discussion: Spreading Sensory Peripheral Neuropathy - What next?

Support Group: Neuropathy

Posted: Jun 16 11:46am

I had symptoms of CIDP for years and had normal EMGS x 3. It wasn’t until...

https://connect.mayoclinic.org/comment/1100665/

I had symptoms of CIDP for years and

Discussion: Leg Weakness and Mobility Issues

Support Group: Autoimmune Diseases

Posted: Jul 7 3:21am

Hello @txamo, Welcome to Mayo Clinic Connect. You will notice that we have moved your post...

https://connect.mayoclinic.org/comment/238696/

post to an existing discussion "CIDP

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Sep 28, 2020

Like @jeffrapp , any contact, even loose socks, cause burning pain for me. The irony is...

https://connect.mayoclinic.org/comment/1014006/

But she doesn't have CIDP.

Discussion: Cold feet due to neuropathy - need help

Support Group: Neuropathy

Posted: Feb 11 8:24pm

I was diagnosed with peripheral sensorimotor polyneuropathy last year with symptoms mostly in my feet and...

https://connect.mayoclinic.org/comment/896792/

The EMG resulted in a diagnosis of CIDP

Discussion: CIDP Support Group

Support Group: Autoimmune Diseases

Posted: Jul 16, 2023

Hello! I’m 76 years old woman and I was just diagnosed with anti Mag. Originally it...

https://connect.mayoclinic.org/comment/910945/

Originally it was just CIDP and my neurologist

Discussion: Anti Myelin Associated Glycoprotein Antibodies

Support Group: Neuropathy

Posted: Aug 10, 2023

New here and to the Mayo forum in general. I was first misdiagnosed in 2020 then...

https://connect.mayoclinic.org/comment/1034696/

2020 then properly diagnosed in 2021 CIDP

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Mar 16 1:20pm

My husband, age 71, was told he had CIDP and given infusions which didn't seem to...

https://connect.mayoclinic.org/comment/819166/

husband, age 71, was told he had CIDP

Discussion: Anyone been diagnosed with CIDP? It's very rare

Support Group: Autoimmune Diseases

Posted: Mar 1, 2023

A gentle reminder that the topic of this discussion is CIDP (chronic inflammatory demylinating polyneuropathy). For...

https://connect.mayoclinic.org/comment/238715/

that the topic of this discussion is CIDP

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Oct 2, 2020

Thank your help! What is CIDP? i will research it also. Is there anything that can...

https://connect.mayoclinic.org/comment/1044203/

What is CIDP?

Discussion: Anyone familiar with MAST cell activation syndrome?

Support Group: Autoimmune Diseases

Posted: Apr 2 12:20pm

Do you still have your foot drop? I had no idea what it was. I only...

https://connect.mayoclinic.org/comment/1034374/

I have CIDP. ... eventually led to my diagnosis of CIDP ... what I am experiencing is related to CIDP

Discussion: Thigh weakness/foot drop after spine surgery

Support Group: Spine Health

Posted: Mar 15 9:57pm

I have found that my walker with over size tires made it possible to get around...

https://connect.mayoclinic.org/comment/1134044/

I have CIDP, but it doesn't affect

Discussion: Preparing to Age in Place

Support Group: Aging Well

Posted: Aug 31 2:53pm

@debgio11 Hi, Deb. I am a 54 year old female with small fiber neuropathy, cervical spondylitic...

https://connect.mayoclinic.org/comment/1051075/

MRN, and bloodwork to rule out MS/CIDP ... I understand that CIDP needs a spinal

Discussion: Am I getting the best treatment for my SFN?

Support Group: Neuropathy

Posted: Apr 15 9:23am