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Comments (10,000+)

Hopefully through time your allergic reactions have lessened or gone away, but there is the grief...

https://connect.mayoclinic.org/comment/1276181/

I got new friends, groups/activities ... Regarding diet, wheat is in the group

Discussion: Allergic to Most Foods After Two Anaphylactic Reactions: Non-Allergy

Support Group: Autoimmune Diseases

Posted: Apr 7 8:03am

Honestly, I don't know if I have any tips! It was a really rare condition back...

https://connect.mayoclinic.org/comment/334497/

really weren't very many support groups

Discussion: People living with ET and taking Hydrea: Anybody setting records?

Support Group: Blood Cancers & Disorders

Posted: Feb 16, 2021

I can relate to ALL of this, more than you can possibly imagine. I held my...

https://connect.mayoclinic.org/comment/1263244/

NAMI family support groups have helped

Discussion: Dealing with adult son with mental health: Parents want to share?

Support Group: Mental Health

Posted: Mar 21 8:29am

@windyshores That is an excellent comment. It is really important that we make a distinction between...

https://connect.mayoclinic.org/comment/1159050/

studies and bone med talks and user groups

Discussion: Does anyone have a solution to help manage Reclast side effects?

Support Group: Osteoporosis & Bone Health

Posted: Oct 18, 2024

Yes, it is a blood cancer, but is manageable for many, depending on the treatment that...

https://connect.mayoclinic.org/comment/994654/

life but be cautious around large groups

Discussion: ET, Polycythemia, Jax2: Is this a blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Jan 9, 2024

@kimroepke Good Morning Zippy, Thank you for the information sent about your surgery and the impacts...

https://connect.mayoclinic.org/comment/965641/

also participate in many epilepsy groups ... Marc Starnes has created a very nice group ... This group is called SHARE!

Discussion: Have you had bad absence seizures withdrawing from Aptiom?

Support Group: Epilepsy & Seizures

Posted: Nov 16, 2023

Thanks-- it sounds like a lot, but many if not most days, I feel like I'm...

https://connect.mayoclinic.org/comment/951459/

for the links to the osteoarthritis groups ... be a member of the Daily Strength group

Discussion: MCTD (Mixed Connective Tissue Disease)

Support Group: Autoimmune Diseases

Posted: Oct 21, 2023

Hi @bohobruja Welcome to Mayo Connect. The National Institute of Health defines chronic myeloproliferative disorders as...

https://connect.mayoclinic.org/comment/786594/

myeloproliferative disorders as a group ... current ongoing conversations in both groups ... in the PV(over production of RBC) group ... white blood cells, are active in this group

Discussion: Does anyone else have more than one myeloproliferative disorder?

Support Group: Blood Cancers & Disorders

Posted: Dec 19, 2022

@eansgardengirl Hello, and welcome! I too have a new diagnosis of ET, and trying to navigate...

https://connect.mayoclinic.org/comment/778643/

resources like this one, and other online groups

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Nov 29, 2022

I sense your concern and kindness and thank you for your support and compassion. So many...

https://connect.mayoclinic.org/comment/771318/

find solutions, and these support groups