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Comments (10,000+)

Hopefully the time will go by fast. I struggled my first time around but made a...

https://connect.mayoclinic.org/comment/765036/

and was lucky the second time around PMR

Discussion: Tapering

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 24, 2022

I too find this. I was diagnosed with PMR at 59 yrs old. I have been...

https://connect.mayoclinic.org/comment/641778/

I was diagnosed with PMR at 59 yrs old

Discussion: PMR Dosages and Managing Symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 4, 2021

The dr’s tell us that PMR lasts 1-2 years. Several friends of mine fell into that...

https://connect.mayoclinic.org/comment/1207696/

The dr’s tell us that PMR lasts 1-2

Discussion: Titration down in steroids

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 9 1:16pm

You've probably seen from more recent posts that PMR pain came back with a vengeance. Now...

https://connect.mayoclinic.org/comment/236977/

probably seen from more recent posts that PMR

Discussion: PMR - Decreased prednisone and pain returned

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 1, 2019

I too do this, use a cushion as my knees are not good and I haven't...

https://connect.mayoclinic.org/comment/105115/

replacement ....just painful with PMR

Discussion: After knee replacement surgery

Support Group: Joint Replacements

Posted: Aug 26, 2018

Sally, I have had PMR since July 2017. Started on Prednisone 20 mg right away and...

https://connect.mayoclinic.org/comment/137668/

Sally, I have had PMR since July 2017

Discussion: How to address PMR pain while decreasing prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 16, 2018

Hello, Glad to have found this group. Recently diagnosed with PMR, I may have had it...

https://connect.mayoclinic.org/comment/1324031/

Recently diagnosed with PMR, I may have ... week, so never sure if the pain is PMR ... to discount the pain and cause the PMR

Discussion: New to this support group.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 10 5:02am

Don't get too discouraged. I was on Prednisone for 12 years before learning about Prednisone induced...

https://connect.mayoclinic.org/comment/1320385/

you still need Prednisone to treat PMR ... years since I was first diagnosed with PMR ... I was 52 when I was diagnosed with PMR

Discussion: Testing for Cortisol levels during taper of prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 4 4:20pm

I'm not taking prednisone and haven't for about a year. I do think I have "overwhelming...

https://connect.mayoclinic.org/comment/1292138/

#39;t living, I was diagnosed with PMR

Discussion: Is fatigue a symptom of PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 28 3:45pm

My rheumatologist made it easy for me to taper by giving me prescriptions for 5, 2.5...

https://connect.mayoclinic.org/comment/1240076/

off for 2 different occurrences of PMR

Discussion: Fear

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 18 2:43pm

Remember Kevzara hasn't yet been in use for the first complete treatment cycle (1 to 2...

https://connect.mayoclinic.org/comment/1242759/

difficulty getting of Kevzara is if my PMR

Discussion: Kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 22 7:35am

@cynthiak06 I've read all comments to your post .I suggest you see a rheumatologist and have...

https://connect.mayoclinic.org/comment/1031708/

check your inflammation you may have PMR

Discussion: Can anyone help?

Support Group: Autoimmune Diseases

Posted: Mar 11, 2024

Yes ... I agree ... PMR is difficult. The following link lists some unanswered questions in...

https://connect.mayoclinic.org/comment/970703/

PMR is difficult.

Discussion: PMR flare at a drop from 8 to 7 mg of prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 26, 2023

I had tapered off Prednisone when I caught COVID and I had a mild case that...

https://connect.mayoclinic.org/comment/815536/

Unfortunately, it triggered my PMR,

Discussion: Polymyalgia Rheumatica (PMR), prednisone and Coronavirus COVID-19

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 22, 2023

After my second flare up of PMR my Rheumatologist put me on Methotrexate, 6 tabs 1...

https://connect.mayoclinic.org/comment/767335/

After my second flare up of PMR my Rheumatologist

Discussion: Experience with Methotrexate?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 30, 2022

After almost a year, I recently dropped down from 4 mg prednisone to 3.5 mg, as...

https://connect.mayoclinic.org/comment/1148652/

normal bloodwork and still be in a PMR ... responses relative to this frustrating PMR

Discussion: PMR with normal labs and having severe thigh pain

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 28, 2024

@tobeybaby, I've had PMR twice and was able to taper off of prednisone both time without...

https://connect.mayoclinic.org/comment/1125627/

@tobeybaby, I've had PMR twice and ... the mornings for both times with the PMR

Discussion: Has anyone successfully weaned off prednisone without using a biologic

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 17, 2024

Hello PMR-pals ! @dadcue @johnbishop @linda7 I gained ~8 lbs during my year of PMR. Size...

https://connect.mayoclinic.org/comment/1105064/

Hello PMR-pals ! ... I gained ~8 lbs during my year of PMR

Discussion: PMR Weight Gain How to lose it!

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 13, 2024

Hi @cgm, Sorry to hear you are experiencing severe foot pain. I had a bad case...

https://connect.mayoclinic.org/comment/1075646/

the first time I was diagnosed with PMR ... fairly fast and then I just had the PMR

Discussion: Foot pain

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 27, 2024

@grammy 82 - you give good uplifting messages! Sebastian Unizony, MD who was on the Sarilumab...

https://connect.mayoclinic.org/comment/873199/

It all came together for me today - PMR ... A good friend responded to my PMR news

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 5, 2023