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Comments (2,480)

I think I should mention that I have Type 1 Diabetes -on CGM, Lupus, IBS, Barrett’s...

https://connect.mayoclinic.org/comment/681106/

that I have Type 1 Diabetes -on CGM, Lupus

Discussion: Covid Recovery: How can I manage GI issues?

Support Group: Post-COVID Recovery & COVID-19

Posted: Feb 15, 2022

Me too.For a while doctors were testing me for Lupus and thyroid disorders because was so...

https://connect.mayoclinic.org/comment/79403/

while doctors were testing me for Lupus

Discussion: Mesenteric Panniculitis and Sclerosing Mesenteritis: Let's connect

Support Group: Digestive Health

Posted: Sep 28, 2017

@januaryjane It would be good to see your rheumatologist asap. You need to check your kidney...

https://connect.mayoclinic.org/comment/1256708/

test results show the potential for lupus

Discussion: Seeking diagnosis

Support Group: Autoimmune Diseases

Posted: Mar 13 6:37am

I have the same problems. I take Plaquenil and Systane eye drops. At first I was...

https://connect.mayoclinic.org/comment/1240993/

At first I was treated for lupus and

Discussion: Sjögren’s syndrome severe dry mouth with loss of taste. Also dry eyes

Support Group: Autoimmune Diseases

Posted: Feb 19 5:58pm

Your story is so similar to mine. So nice to talk to other people with this...

https://connect.mayoclinic.org/comment/1304700/

have sjogrens triggering all this and lupus

Discussion: Sensory Ganglionopathy help!!

Support Group: Neuropathy

Posted: May 15 11:27am

were you tested for discoid Lupus? I had the same thing and in the summer it...

https://connect.mayoclinic.org/comment/1147013/

were you tested for discoid Lupus?

Discussion: HELP with itching on back, stomach, breast and neck!

Support Group: Skin Health

Posted: Sep 25, 2024

Do you have any positive markers for RA. Sjogrens, Lupus, etc.? A&A blood tests are they...

https://connect.mayoclinic.org/comment/1074571/

Sjogrens, Lupus, etc.?

Discussion: Anyone out there with Autoimmune inner ear disease (AIED)?

Support Group: Autoimmune Diseases

Posted: May 25, 2024

Hi Windwalker. I don't know which one I had first; lupus or Reynaurds, but now I...

https://connect.mayoclinic.org/comment/197602/

't know which one I had first; lupus

Discussion: Raynaud's Syndrome: Anyone want to talk about Raynaud’s?

Support Group: Autoimmune Diseases

Posted: May 10, 2018

I don’t live anywhere near any of the Mayo Clinic’s , but have thought of trying...

https://connect.mayoclinic.org/comment/1328085/

Florida but she lives in Florida and has lupus ... I also have lupus and feel so badly

Discussion: Gastroparesis and lactobacillus probiotic

Support Group: Digestive Health

Posted: Jun 16 1:04am

I am curious about your “false” positive for lupus. Can you please elaborate on that and...

https://connect.mayoclinic.org/comment/1140698/

curious about your “false” positive for lupus ... and whether you have been tested for lupus

Discussion: Constant excruciating leg cramps

Support Group: Chronic Pain

Posted: Sep 13, 2024

@buzz23 I can feel your fatigue. I spent a few years very fatigued- sometimes on my...

https://connect.mayoclinic.org/comment/926090/

that most of your fatigue comes from lupus ... You seem to be on a few meds for lupus

Discussion: Drowning

Support Group: Autoimmune Diseases

Posted: Sep 7, 2023

I got diagnosed with Tumid Lupus about a year ago, my docs haven't tried any meds,...

https://connect.mayoclinic.org/comment/146236/

I got diagnosed with Tumid Lupus about ... I'm the 4th genaration to have Lupus

Discussion: Tumid Lupus with SLE Symptoms?

Support Group: Autoimmune Diseases

Posted: Sep 20, 2017

I know you said you are a nurse and can’t work. I’m curious if you tried...

https://connect.mayoclinic.org/comment/868052/

Long Covid mimics lupus for some. ... damage the cells so the treatment for lupus ... It’s the drug of choice for lupus.

Discussion: I am finally giving up COVID can have me

Support Group: Post-COVID Recovery & COVID-19

Posted: May 28, 2023

Is one of your doctors a rheumatologist? Did you have the lupus and RA screen and...

https://connect.mayoclinic.org/comment/1099179/

Did you have the lupus and RA screen

Discussion: PMR with only lower body pain?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 4, 2024

Could you please tell me how your doc came to this diagnosis? I was recently diagnosed...

https://connect.mayoclinic.org/comment/837524/

I was recently diagnosed with lupus,

Discussion: Undifferentiated Connective Tissue Disease

Support Group: Autoimmune Diseases

Posted: Apr 4, 2023

@terriann I never heard about neuropsychiatric SLE/Lupus. I will talk to my new rheumatologist about this...

https://connect.mayoclinic.org/comment/1071361/

never heard about neuropsychiatric SLE/Lupus ... My mom had Lupus/SLE, RA, fibromyalgia

Discussion: Neuropsychiatric Lupus

Support Group: Autoimmune Diseases

Posted: May 20, 2024

Welcome @kaydee01 ! If you don’t end up with a lupus diagnosis- check out the posts...

https://connect.mayoclinic.org/comment/864942/

If you don’t end up with a lupus diagnosis ... something-autoimmune-but-not-quite-lupus

Discussion: Does anyone have Tumid Lupus?

Support Group: Autoimmune Diseases

Posted: May 22, 2023

@daisydo It's tough enough dealing with an autoimmune disorder. But to hear "but you look fine"...

https://connect.mayoclinic.org/comment/647573/

was diagnosed in 1988 with Systemic Lupus ... protein levels to be related to the lupus

Discussion: What can cause ANA titre of 1:2560?

Support Group: Autoimmune Diseases

Posted: Oct 23, 2021

@dorrielee I have found keeping a journal of symptoms, when they occur, how strong they are,...

https://connect.mayoclinic.org/comment/313228/

When I was diagnosed with lupus in 1988 ... my guess is "yes" for how lupus

Discussion: Lupus diagnosis need help

Support Group: Autoimmune Diseases

Posted: Jun 11, 2020

I was taking two a day for 5 years, then down to one a day for...

https://connect.mayoclinic.org/comment/1162832/

Plaquenel is a drug used for Lupus patients

Discussion: Why is plaquenil so essential for my pmr medication treatment? No one

Support Group: Autoimmune Diseases

Posted: Oct 26, 2024