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731 total results

Comments (672)

Just wanted to pop on to say, you're in great hands with Mayo. My husband has...

https://connect.mayoclinic.org/comment/1238145/

I have a systemic form of vasculitis

Discussion: Seeking Support: First Mayo Appointment for Husband's Cancer

Support Group: Head & Neck Cancer

Posted: Feb 16 10:06am

I was diagnosed with PMR and possible GCA at 68 yo in July 2024. Was on...

https://connect.mayoclinic.org/comment/1291524/

It indicated some vasculitis.

Discussion: I’m just wondering how old most of you are with PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 27 8:25pm

I have vasculitis and not sure if Wegeners has been positivly identified in me. But I...

https://connect.mayoclinic.org/comment/806740/

I have vasculitis and not sure if Wegeners

Discussion: Looking for any food links regarding Vasculitis - Wegeners disease

Support Group: Autoimmune Diseases

Posted: Feb 5, 2023

@johnlo I have 2 forms of Vasculitis. One is Giant Cell Arteritis, the other one Polyarteritis...

https://connect.mayoclinic.org/comment/802488/

@johnlo I have 2 forms of Vasculitis

Discussion: PMR with normal blood markers

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 27, 2023

Hello @chris1466, I thought you might like to know Mayo Clinic already has a clinical trial...

https://connect.mayoclinic.org/comment/286644/

Improve Physical Health in Patients With Vasculitis

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 1, 2020

If the biopsy came back “polyarteritis,” one of your docs (rheumy, PCP/internist, derm) should be confirming...

https://connect.mayoclinic.org/comment/870067/

diagnosis algorithm for cutaneous vasculitis

Discussion: Polyarteritis anyone?

Support Group: Autoimmune Diseases

Posted: May 31, 2023

sidepockets - Thanks for the response. I don't recall whether those specific tests were done or...

https://connect.mayoclinic.org/comment/73382/

diseases - relapsing polychondritis, vasculitis

Discussion: Would like to hear from people with Sjogrens

Support Group: Autoimmune Diseases

Posted: Jul 10, 2012

I say if she is "pushing" you then get another opinion. I use to have a...

https://connect.mayoclinic.org/comment/1077293/

rheumatologist who was for years sure I had vasculitis

Discussion: Help Please: What are these Brown Spots on Skin?

Support Group: Skin Health

Posted: May 29, 2024

I am a 71-year-old female and have been trying to manage urticarial vasculitis for 2 years....

https://connect.mayoclinic.org/comment/780779/

have been trying to manage urticarial vasculitis

Discussion: Peripheral neuropathy Pain caused by Vasculitis

Support Group: Heart & Blood Health

Posted: Dec 4, 2022

I’m a 75 year woman that has bleeding and bruising on top of my forearms and...

https://connect.mayoclinic.org/comment/769734/

doctor took a biopsy and I did not have vasculitis

Discussion: Unsatisfactory explanation of recent bruising on forearms/hands

Support Group: Heart & Blood Health

Posted: Nov 5, 2022

hello and thanks for the response. i'm currently in occupational therapy because i have mobility and...

https://connect.mayoclinic.org/comment/725861/

hands and it feels like some sort of vasculitis

Discussion: Ankylosing spondylitis: anyone else?

Support Group: Spine Health

Posted: Jul 11, 2022

My pulmonologist called me last Friday and said that I tested positive for the Anca test....

https://connect.mayoclinic.org/comment/633833/

Anca is for vasculitis and my pulmonologist

Discussion: Just got second CT Scan says probably MAC. I am a K teacher

Support Group: MAC & Bronchiectasis

Posted: Sep 8, 2021

The fact that your daughter had a "minor cold" aka a virus prior to this outbreak...

https://connect.mayoclinic.org/comment/853494/

#34; (HSP) This is a small vessel vasculitis

Discussion: 11year old daughter, pain back of knees, now swollen ankles.

Support Group: Bones, Joints & Muscles

Posted: May 2, 2023

I started out with 6 little dark red spots on my legs woke up the next...

https://connect.mayoclinic.org/comment/108531/

was told i have leukocytoclasttic vasculitis

Discussion: Autoimmune diagnosing problem

Support Group: Autoimmune Diseases

Posted: Aug 2, 2016

I have autonomic/peripheral neuropathy caused by GPA/Wegeners (vasculitis) for 6 yrs. I take gabapentin for the...

https://connect.mayoclinic.org/comment/91378/

neuropathy caused by GPA/Wegeners (vasculitis

Discussion: Anyone here dealing with peripheral neuropathy?

Support Group: Neuropathy

Posted: Apr 10, 2016

You are smart about being willing to travel. Again, high Volume centers provide the best chance...

https://connect.mayoclinic.org/comment/1311693/

aneurysm is at 5 but I don’t have vasculitis

Discussion: 5.2 ascending aortic aneurysm- waiting for surgery (?)

Support Group: Aortic Aneurysms

Posted: May 24 8:43am

Ihave Churg Strauss disease aka, Polyarteritis nodosa Eosinophilic granulomatosis w/polyangitis I never linked the PMR with...

https://connect.mayoclinic.org/comment/806662/

commute to Portland where there is a vasculitis ... Not any corelation to Vasculitis that

Discussion: PMR with normal blood markers

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 5, 2023

Ah, guess work is still a part of everything. I understand what you are saying. I...

https://connect.mayoclinic.org/comment/756663/

potentially fatal like the other form of Vasculitis

Discussion: Do I really have PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 3, 2022

I am newly diagnosed with autoimmune hepatitis and biliary cholangitis and severe fatty liver I have...

https://connect.mayoclinic.org/comment/1347116/

cogans syndrome a firm of large vessel vasculitis

Discussion: Liver Diseases Support Group: Let’s connect

Support Group: Liver Diseases

Posted: Jul 13 10:39am

Hi Everyone, My name is Cricket1 and I hope everyone is having a tolerable day. I...

https://connect.mayoclinic.org/comment/98864/

a breakout of my Leucocytoclastic Vasculitis

Discussion: Chronic Pain members - Welcome, please introduce yourself

Support Group: Chronic Pain

Posted: Oct 4, 2019