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507 total results

Comments (460)

Hi Tom, There are quite a few members in the Connect forum who have been diagnosed...

https://connect.mayoclinic.org/comment/1076631/

Myeloproliferative disorder such as ET, PV or Myelofibrosis

Discussion: Is my treatment a bit aggressive?

Support Group: Blood Cancers & Disorders

Posted: May 28, 2024

Hello Lori. Thank you for your response and congratulations in apparently overcoming leukemia. My Wife has...

https://connect.mayoclinic.org/comment/912090/

hydroxyurea actually promotes escalation to Myelofibrosis

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Aug 13, 2023

Does anyone here have experience with 5q deletion? A little background: My age 77 husband was...

https://connect.mayoclinic.org/comment/226237/

megaloblastoid and slightly dysplastic; no myelofibrosis

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Sep 10, 2019

Hi ideachaser1, Thank you for sharing. My BMB says what you posted about yours. I am...

https://connect.mayoclinic.org/comment/1259636/

me a memo that I might have Primary Myelofibrosis

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 16 2:38pm

Posted by wiggins32 @wiggins32, We are rare; so it doesn't matter, we are skipped, ignored and...

https://connect.mayoclinic.org/comment/800143/

all my life; first time anemia from Myelofibrosis

Discussion: Need Help - Hematology won't do testing

Support Group: Blood Cancers & Disorders

Posted: Jan 22, 2023

Good morning, @miguy Your friend has a bit of a blood cancer journey ahead of him...

https://connect.mayoclinic.org/comment/697411/

www.mayoclinic.org/diseases-conditions/myelofibrosis

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 9, 2022

I was diagnosed with ET in May 2015. A good doctor in Venezuela South America diagnosed...

https://connect.mayoclinic.org/comment/792319/

severe leg pains being from possible myelofibrosis

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Jan 4, 2023

I have gotten my platelets down to 388,000 but it has take a long time and...

https://connect.mayoclinic.org/comment/792897/

hemorrhage (P=0.008), and transformation to myelofibrosis

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Jan 5, 2023

Good morning, @pinkflamingo. Your @name made me smile and think fondly of Florida this spring morning....

https://connect.mayoclinic.org/comment/836087/

https://www.healthline.com/health/myelofibrosis

Discussion: Blood Cancer - JAK2 - Autoimmune- Confusion

Support Group: Blood Cancers & Disorders

Posted: Apr 2, 2023

My platelets were 1.4 million in June 2025. My new oncologist at Virginia Cancer Institute performed...

https://connect.mayoclinic.org/comment/1422367/

biopsy & diagnosed Prefibrotic Myleofibrosis

Discussion: Seeking opinion about where to get a second opinion.

Support Group: Blood Cancers & Disorders

Posted: Oct 24 9:08am

@davi0937 Wondering if you found a group specific to mylofibrosis. I too was diagnosed this June...

https://connect.mayoclinic.org/comment/1431943/

Wondering if you found a group specific to mylofibrosis

Discussion: Are their support groups for Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Nov 6 6:32am

Myleofibrosis turned into LeukemiaAny survivors ? Share your story with me

https://connect.mayoclinic.org/comment/1430263/

Myleofibrosis turned into LeukemiaAny

Discussion: When to start worrying about blast percentage changes?

Support Group: Blood Cancers & Disorders

Posted: Nov 3 7:20pm

Good morning, @sudutoo. I hope you have your reading glasses on! You have a lot of...

https://connect.mayoclinic.org/comment/1050553/

ET, PV (polycythemia vera) or MPF (myelofibrosis

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Apr 14, 2024

Hi doreen78, First off, no, I have not been told I am in remission from any...

https://connect.mayoclinic.org/comment/1292137/

H who said I probably have Primary Myelofibrosis

Discussion: Has anyone told they went into remission without treatment?

Support Group: Blood Cancers & Disorders

Posted: Apr 28 3:43pm

It took me several days, but finally found good questions for my PV and Myelofibrosis (9...

https://connect.mayoclinic.org/comment/802843/

found good questions for my PV and Myelofibrosis

Discussion: JAK2 negative with high platelets

Support Group: Heart & Blood Health

Posted: Jan 28, 2023

congrats! I think Posted by samlupowitz @samlupowitz, 2 days ago yep; Florida Here too (Allergy to...

https://connect.mayoclinic.org/comment/802880/

Florida and Just got diagnosed with Myelofibrosis

Discussion: Myelofibrosis or long Covid?

Support Group: Blood Cancers & Disorders

Posted: Jan 28, 2023

Hello, are you still discussing myelofibrosis? I was diagnosed in 2011. Presumably, it was already in...

https://connect.mayoclinic.org/comment/132611/

Hello, are you still discussing myelofibrosis

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 25, 2020

Hello @cupofsunshine…that name just brings a smile to my face. I agree with @becsbuddy, you gave...

https://connect.mayoclinic.org/comment/890254/

type of a chronic leukemia called Myelofibrosis

Discussion: Can anyone share their bone marrow transplant caregiver experience?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jul 4, 2023

with platelets that high your very lucky you didnt have a clot form, TIA or even...

https://connect.mayoclinic.org/comment/1404569/

wear it out as we progress toward mylofibrosis

Discussion: Diagnosed with Polycythemia Vera in August. I was given Hdroxyurea

Support Group: Blood Cancers & Disorders

Posted: Sep 29 2:19pm

Hi, I feel for your frustration. I, too, am experiencing some frustration too as my O/H...

https://connect.mayoclinic.org/comment/1250438/

“might be transitioning to Primary Melofibrosis

Discussion: I may have low grade lymphoma or it could be from inflammation

Support Group: Blood Cancers & Disorders

Posted: Mar 4 3:09pm