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761 total results

Comments (701)

I was recently diagnosed with hypogammaglobulinemia back in December. Not only do I have that but...

https://connect.mayoclinic.org/comment/823727/

also have Sjogrens, Leukocytoclastic Vasculitis

Discussion: Hypogammaglobulinemia

Support Group: Autoimmune Diseases

Posted: Mar 9, 2023

I likely had this for a few years, but was newly diagnosed with a lip biopsy....

https://connect.mayoclinic.org/comment/954287/

flareup, which led to biopsy, but vasculitis

Discussion: Sjogren’s Syndrome – Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Oct 26, 2023

Thank you very much. I was seeing a immunologist but stopped when the levels were seen...

https://connect.mayoclinic.org/comment/1303774/

Already tested negative for vasculitis

Discussion: ANCA positive

Support Group: Autoimmune Diseases

Posted: May 14, 2025

I was diagnosed and hospitalized for nonspecific colitis with severe diarrhea and dehydration rece.ntly. I have...

https://connect.mayoclinic.org/comment/1301510/

Then developed vasculitis and took high

Discussion: Why do I have constant pain and constipation when ulcerative colitis i

Support Group: Autoimmune Diseases

Posted: May 11, 2025

After 5 years of Prednisone with relapses there is more than enough justification to try a...

https://connect.mayoclinic.org/comment/1391599/

If GCA or vasculitis is involved, maybe

Discussion: Weaning off of all medicine - prednisone and methotrexate

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 11, 2025

Started Burkinsa about six months ago. I've had an outbreak of purpura on my feet and...

https://connect.mayoclinic.org/comment/1365367/

results indicate it's a form of vasculitis

Discussion: Treatment for CLL: Any experiences with Brukinsa (zanobrutinib)?

Support Group: Blood Cancers & Disorders

Posted: Aug 6, 2025

You have persisted through a great deal of difficulty to arrive at a diagnosis for a...

https://connect.mayoclinic.org/comment/1077598/

Your vasculitis does require management

Discussion: Microscopic polyangiitis - Any help would be greatly appreciated

Support Group: Autoimmune Diseases

Posted: May 30, 2024

I understand your fear of going to a new doctor after having one that knows you...

https://connect.mayoclinic.org/comment/239818/

tests for MS, Churg-Strauss, Wegners, vasculitis

Discussion: Difficult case, several diagnosis, no solution yet

Support Group: Autoimmune Diseases

Posted: Feb 4, 2019

@longlostbrat - You follow your Mama instincts and take him tomorrow! I doubt that leukemia is...

https://connect.mayoclinic.org/comment/706556/

kind of immune system illnesses like vasculitis

Discussion: Five days in hospital, no answers: Leg pain and bruising

Support Group: Autoimmune Diseases

Posted: May 8, 2022

Hi I have ANCA vasculitis. Other than being tired or sleepy, I have no symptoms ever....

https://connect.mayoclinic.org/comment/682263/

Hi I have ANCA vasculitis.

Discussion: Sudden low blood oxygen levels: Anyone else have Vasculitis?

Support Group: Blood Cancers & Disorders

Posted: Feb 18, 2022

Thank you so much! I will look into these discussions. I do not know whether the...

https://connect.mayoclinic.org/comment/1058909/

if anything else is affected by the vasculitis

Discussion: Anyone out there with Behçet's and vasculitis?

Support Group: Autoimmune Diseases

Posted: Apr 28, 2024

@deb8 Good morning @deb8 . Ive not heard of this autoimmune disease before, but there are...

https://connect.mayoclinic.org/comment/655039/

How long have you had livedoid vasculitis

Discussion: Livedoid Vasculitis

Support Group: Autoimmune Diseases

Posted: Nov 17, 2021

Hi @colleenyoung, I appreciate so much you letting me know about the chat #Mayo Clinic Neuro...

https://connect.mayoclinic.org/comment/382294/

18 years figuting out my Cerebral Vasculitis

Event: #MayoClinicNeuroChat about Aneurysms and 3D Modeling

Posted: Mar 29, 2018

First, are you being seen by a thoracic surgeon at a center that does a high...

https://connect.mayoclinic.org/comment/1229514/

a PET scan to see if there is any vasculitis

Discussion: What makes ascending thoracic aortic aneurysms increase in size?

Support Group: Aortic Aneurysms

Posted: Feb 4, 2025

Hello @julie868. I see that you are new to the Connect community and I would like...

https://connect.mayoclinic.org/comment/292544/

being used to benefit patients with vasculitis

Discussion: Success with low dose naltrexone for Autoimmune disorders

Support Group: Autoimmune Diseases

Posted: Feb 13, 2020

Has a neurologist suggested or done a nerve and muscle biopsy? I had similar symptoms that...

https://connect.mayoclinic.org/comment/1024516/

written her thesis about small vessel vasculitis

Discussion: Seeking support, new to this nightmare

Support Group: Neuropathy

Posted: Feb 28, 2024

@marriedto41- I understand how frightened you and your wife must be. It is good that you...

https://connect.mayoclinic.org/comment/273683/

include it in rheumatic diseases - vasculitis

Discussion: Toddler has had fevers for over 3 weeks. No one knows why.

Support Group: About Kids & Teens

Posted: Aug 27, 2019

I know I’ve seen lists before but, of course, I can’t find them now. It’s me,...

https://connect.mayoclinic.org/comment/224285/

meningioma, a cavernoma, Leukocytoclastic Vasculitis

Discussion: Your Tips on How to Get Off to the Best Start with a New Specialist

Support Group: Visiting Mayo Clinic

Posted: Aug 25, 2019

@seaspray Hello, Karen. I've missed seeing you on this site. Hope all is well, you're doing...

https://connect.mayoclinic.org/comment/627691/

Also, vasculitis is the latest. ... , even more than before due to the vasculitis

Discussion: cPass New Antibody Test

Support Group: Post-COVID Recovery & COVID-19

Posted: Aug 19, 2021

Hi Catmom, I’m from the Chicago area also. I was diagnosed with IGA Vasculitis (small cell)...

https://connect.mayoclinic.org/comment/1095119/

I was diagnosed with IGA Vasculitis ... weaned onto Low Dose Naltrexone for my vasculitis

Discussion: Vasculitis - have you been re-biopsied?

Support Group: Autoimmune Diseases

Posted: Jun 27, 2024