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Comments (2,757)
I'm currently doing Actemra infusions primarily for PMR. I started with Actemra injections and progressed to...
doing Actemra infusions primarily for PMR ... for PMR to "burn itself out&#34 ... PMR never did go into remission. ... I was able to taper off prednisone and ... which has to be tapered off slowly.
Discussion: Actemra
Support Group: Autoimmune Diseases
Posted: Dec 9, 2023
My ophthalmologist said something similar when he prescribed a 100 mg dose of prednisone for uveitis....
I tapered off prednisone quickly after ... tapers because I tapered off prednisone ... I wasn't so skilled after PMR was ... It took me more than 12 years to taper ... off prednisone when I took it for PMR
Will 3 mg be the lowest dose you have been on since the start of PMR?...
you have been on since the start of PMR ... receiving negative feedback from another PMR ... forum about using Actemra for PMR. ... thinking I wanted to get the inevitable PMR ... When we taper our prednisone dose lower
Posted: Dec 5, 2023
I think it’s a wonderful thing that you feel up to getting back out. I am...
I am also 64 and PMR has definitely ... to go just because when I started tapering ... prednisone my pain came roaring back ... reducing Actemra—sounds like you could taper
Discussion: GCA conserns
Posted: Nov 30, 2023
"He, rightfully, thought that I would not be on the Prednisone forever and I could easily...
thought that I would not be on the Prednisone ... endocrinologist until I had been taking prednisone ... for PMR for 10 years. ... it would be extremely difficult to taper ... off and I may need prednisone for the
Hi John, Thanks for your work with this forum. It’s a great resource for patients to...
I am in my 4th year with GCA, on prednisone ... Actemra infusions would allow me to taper ... off the prednisone, got to 1.5 mg and ... temporal pain and have had to go to 30 mg prednisone ... on health issues, have read up on PMR
Posted: Nov 13, 2023
For what it is worth ... I experienced infections while on prednisone. Most of my infections...
I experienced infections while on prednisone ... I was able to taper to a lower dose ... of prednisone while on leflunomide so ... some kind if it wasn't entirely a PMR ... I was able to taper off prednisone three
Good morning. I just had my 2d injection of Kevzara this morning, Nov 7. Administered by...
I tapered to 0 for 5 weeks and then ... diagnosed about Kevzara in trials for PMR ... for RA since 2017 and approved for PMR ... Next week I drop to 10mg of prednisone ... plan is to continue to reduce the prednisone
@lindaadel, If it were me, I would have a discussion with my rheumatologist. Seven months might...
little soon to expect to be off of prednisone ... and it took me 1 and half years to taper ... off of prednisone. ... Disease stratification in GCA and PMR ... daily pain log along with the dose of prednisone
Posted: Nov 5, 2023
I would interpret that as "...I haven't seen any PMR patients that didn't fix in the...
as "...I haven't seen any PMR ... still in great pain, she wanted me to taper ... from 20 to 15, told me I was probably prednisone
Are you prescribing prednisone to yourself? Did you diagnose yourself? When I was first diagnosed with...
Are you prescribing prednisone to yourself ... I thought I knew everything about tapering ... off prednisone. ... I was then allowed to taper myself off ... I could always taper off quickly in
Posted: Oct 25, 2023
I am so grateful to find this meeting place. I don't know anyone with PMR and...
I don't know anyone with PMR and ... I have been o Prednisone ever since ... and my rheumatologist is having me taper ... ....as in.."will I ever get of Prednisone
"I do a split dose and have been holding the morning to 10 mg and tapering...
been holding the morning to 10 mg and tapering ... 2023 , had to be bumped up to 30 mg Prednisone ... , tapering 2.5mg/month till reaching ... muskoskeletal manifestations in PMR
Posted: Oct 24, 2023
I’ve just started on Kevzara this week. Also taking MTX 17.5 mg weekly and currently on...
currently on Pred 8mg with continued slow taper ... I’ve had PMR for 16 months now and praying ... will be the catalyst to the end of Prednisone ... and PMR.
I might be the only person who thinks prednisone might have caused me to have PMR...
might have caused me to have PMR because ... I was always able to taper off prednisone ... ophthalmologist said I was "skilled" at tapering ... I tried to taper off prednisone in ... It was impossible for me to taper off
Posted: Oct 21, 2023
Interesting. By coincidence, I am taking acyclovir right now, 400 mg x 3/day. We'll see if...
for background, I was diagnosed with PMR ... and after an initial 20 mg/day of Prednisone ... 5 weeks later, in early April, and Prednisone ... tapering was begun. ... 2023, I'm down to 0.5 mg/day of Prednisone
Posted: Oct 15, 2023
Hello @mrspunkin, Welcome to Connect. You will notice that we moved your post into an existing...
. --- PMR with normal blood markers ... /connect.mayoclinic.org/discussion/pmr-with-normal-blood-markers ... mind sharing what starting dose of prednisone ... your rheumatologist has suggested a tapering
Posted: Oct 10, 2023
I started drinking a collagen powder supplement in my coffee and after about 2 months my...
coffee and after about 2 months my PMR ... didn’t put it together so I started prednisone ... So my dr diagnosed PMR. ... I am now 2 months into prednisone and ... beginning to taper down with good results
Posted: Oct 8, 2023
My spouse who is 84 was diagnosed with PMR in November of 2022. He stared on...
spouse who is 84 was diagnosed with PMR ... He stared on 15mg of prednisone. ... He tapered off in mid May. ... you are in complete remission from PMR
Posted: Oct 6, 2023
I contracted PMR within a week after my second mRNA Pfizer vaccination (note that Moderna was...
I contracted PMR within a week after ... I managed to taper off of my 10-mg. ... dose of prednisone in about a year, ... I then had to taper off of a 2-mg. dose ... of prednisone, which took a few months
Posted: Oct 5, 2023