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826 total results
Comments (757)
@buckett “Have any other males out there on this forum with MGUS seen this if cytogenetic...
https://connect.mayoclinic.org/comment/1221769/
Good news on the amyloidosis.
Yes. I have had to quit driving because I cannot really tell where my feet are,...
https://connect.mayoclinic.org/comment/92023/
From Amyloidosis.
If you missed the first one, the Foundation for Peripheral Neuropathy is having another webinar on...
https://connect.mayoclinic.org/comment/926908/
Polyneuropathy and Hereditary ATTR (hATTR) Amyloidosis
Yes, thanks. She has AL amyloidosis. She got her stem cells back Friday. When she is...
https://connect.mayoclinic.org/comment/273513/
She has AL amyloidosis.
@nick0820 Please keep us in the loop of communication! It's great you are not letting this...
https://connect.mayoclinic.org/comment/88332/
renal pathologist had said it might be amyloidosis
@predictable Hi, friend. You really make the case for one of my favorite points. That is,...
https://connect.mayoclinic.org/comment/169812/
From about 30 different mutations of Amyloidosis ... parts and Gelsolin and Cystatin-C Amyloidosis
I had a terribly painful experience with the first bone marrow biopsy, and my doctor said...
https://connect.mayoclinic.org/comment/1332963/
years later with progression of my amyloidosis
Thank you dp! I already see an oncologist, due to me having Amyloidosis, I had an...
https://connect.mayoclinic.org/comment/965432/
see an oncologist, due to me having Amyloidosis ... We trust him lots, plus my amyloidosis
Hello, @bob100! My name is also Sherry, and I was also diagnosed with AL amyloidosis in...
https://connect.mayoclinic.org/comment/1041681/
, and I was also diagnosed with AL amyloidosis ... would love to know if others with AL amyloidosis
@living_strong Telling you something that I have found important. I, too, have a faith base, and...
https://connect.mayoclinic.org/comment/150575/
my own disease, Hereditary Gelsolin Amyloidosis ... I bought "Amyloidosis - Diagnosis ... Because there are so many forms of Amyloidosis ... saying only "I suspect Karl has Amyloidosis
@carsonamy07 I have an idea, friend. For as far as I can go, this one is...
https://connect.mayoclinic.org/comment/217013/
Take a look at Hereditary Gelsolin Amyloidosis ... accuracy if you have some form of Amyloidosis ... deciLiter) you are almost sure to have Amyloidosis ... Anderson, Sloan Kettering, Boston Amyloidosis
Hi @colorslides25 Welcome to Connect! I remember my transplant doctor telling me it is better to...
https://connect.mayoclinic.org/comment/1282334/
I’m understanding, the SCT for AL Amyloidosis ... countrygirlusa…who had an SCT for AL Amyloidosis
Just got back a Positive Amyloid fat pad biopsy Everyone I talked to prior to the...
https://connect.mayoclinic.org/comment/1082452/
Does that mean I have Amyloidosis?!?
They look sort of like mine. If the larger spots have little lines, like a plowed...
https://connect.mayoclinic.org/comment/212942/
would be macular skin, perhaps from Amyloidosis
Not good about your arrhythmia. But it is what it is. Fortunately, one of my early...
https://connect.mayoclinic.org/comment/104254/
catch some of their videos on cardiac, amyloidosis
Yes, you may have to. Shortness of breath could be a factor. You may also need...
https://connect.mayoclinic.org/comment/1087017/
Also you could get cardiac amyloidosis
Lori, Thank you for your encouraging words. Some days are more difficult than others, but I...
https://connect.mayoclinic.org/comment/724431/
result of wild type and Al cardiac amyloidosis
I’m pretty sure it was raging a war inside my body. I had dizziness so bad...
https://connect.mayoclinic.org/comment/1073761/
Then was diagnosed with Amyloidosis.
@nikkig Do you have a local doctor you trust? If so, tell them you want to...
https://connect.mayoclinic.org/comment/51160/
tell them you want to be tested for Amyloidosis ... sent to ARUP or Mayo-Quant, or Boston Amyloidosis
@jimhd Jim, Many so-called professionals, such ad doctors, clergy and lawyers, assume that everyone is the...
https://connect.mayoclinic.org/comment/166604/
anything that would be a marker for Amyloidosis ... have some mutation of FreeLiteChain Amyloidosis
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