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112 total results
Comments (106)
Welcome to Connect, @isabellereine. You’re not crazy but you certainly are complicated! ☺️ For being only...
https://connect.mayoclinic.org/comment/1197279/
has tentatively diagnosed you with mastocytosis ... provided by Mayo Clinic (link below) mastocytosis ... www.mayoclinic.org/diseases-conditions/systemic-mastocytosis ... which is a medication for controling mastocytosis
Hi Still ongoing As mastocytosis and carcinoidnsyndorme both rare pathways aren't clear and GPS have no...
https://connect.mayoclinic.org/comment/860513/
Hi
Still ongoing
As mastocytosis
RVD weekly on 28 day cycles x 4 then transplant for MM in December. I am...
https://connect.mayoclinic.org/comment/638311/
frustrated nothing is addressed for mastocytosis
One other think that is often overlooked, is that if you are "histamine intolerant" in the...
https://connect.mayoclinic.org/comment/910452/
people connecting it with MCAS and mastocytosis ... They are checking for mastocytosis and
I have a suspected case and have had two major episodes. Just to be clear, this...
https://connect.mayoclinic.org/comment/742099/
to be clear, this is different than mastocytosis
Hello @slarson18, I would like to add my welcome to Connect along with @pamandrewsrn and @smbryce1....
https://connect.mayoclinic.org/comment/134388/
- Systemic mastocytosis care at Mayo ... www.mayoclinic.org/diseases-conditions/systemic-mastocytosis
There is an incredible Facebook page for Mastocytosis and Mast Cell Disorders. Over 19,000 people in...
https://connect.mayoclinic.org/comment/943392/
is an incredible Facebook page for Mastocytosis
The FDA have noe approved Atrotripomen which research has proven can not Cure, but significantly extends...
https://connect.mayoclinic.org/comment/1217303/
significantly extends life expectancy of Mastocytosis
Hi @caw67. Welcome to Mayo Connect and thank you for the link to information for people...
https://connect.mayoclinic.org/comment/943443/
link to information for people with Mastocytosis
I've recently learned that mast cell activation or mastocytosis can cause osteoporosis. I have other symptoms...
https://connect.mayoclinic.org/comment/1000642/
learned that mast cell activation or mastocytosis
@wyom1998 What is your medical team recommending for treatment of the systemic mastocytosis? Are they considering...
https://connect.mayoclinic.org/comment/665185/
recommending for treatment of the systemic mastocytosis
My team is not specifically treating mastocytosis, but feel that my bone marrow transplant process will...
https://connect.mayoclinic.org/comment/666693/
team is not specifically treating mastocytosis
I had been on Depo-Provera for a number of years and it had been studied that...
https://connect.mayoclinic.org/comment/701299/
now...and the diagnosis of systemic mastocytosis
After all the testing, the MRG showed very mild neuropathy in one foot. The MRG doctor...
https://connect.mayoclinic.org/comment/676962/
She looked at my back and said Mastocytosis ... link(https://www.nhs.uk/conditions/mastocytosis
Facebook has several groups that may be of help- mast cell disorders forum has over 38000...
https://connect.mayoclinic.org/comment/1014806/
turned away MCAS patients, but will see mastocytosis
Hello @lean1, and welcome to Connect. I'm so sorry that your daughter is going through this....
https://connect.mayoclinic.org/comment/134298/
Here's a link to The Mastocytosis Society
Have you found anyone yet in So Cal? I thought I did in Encino, but he...
https://connect.mayoclinic.org/comment/757141/
#39;t think they treated MCAD, only mastocytosis
MCAS symptoms are very similar to a ton of other things. To be diagnosed with MCAS...
https://connect.mayoclinic.org/comment/1321093/
understanding is Mayo Rochester sees for Mastocytosis
Hi Vanessa, as I am looking for answers for myself, I came across your post. Did...
https://connect.mayoclinic.org/comment/872576/
mast cell disorder (most likely a Mastocytosis
Unfortunately a lot of the specialists are being overwhelmed by patients who think they have mast...
https://connect.mayoclinic.org/comment/134327/
currently seem to be focused primarily on mastocytosis
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