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131 total results

Comments (120)

of Temodar on June 11th also at Mayo Scottsdale. He did very well with the radiation....

https://connect.mayoclinic.org/comment/1334790/

of Temodar on June 11th also at Mayo

Discussion: Offering hope: Dad's journey with Glioblastoma stage 4

Support Group: Brain Tumor

Posted: 10 hours ago

My husband started temodar(temozolomide) Jan 10th 2024. He takes it before bed. The anti nausea med...

https://connect.mayoclinic.org/comment/1004371/

My husband started temodar(temozolomide ... worked for him is One hour before the temodar

Discussion: My Husband's diagnosis of glioblastoma grade 4

Support Group: Brain Tumor

Posted: Jan 26, 2024

I have never been on an antidepressant, I read an article on Pub Med and asked...

https://connect.mayoclinic.org/comment/961024/

Temodar and radiation but decided to

Discussion: My Husband's journey with Glioblastoma

Support Group: Brain Tumor

Posted: Nov 8, 2023

@dgruk is your daughter tired all the time? Wondering how long it takes for the tiredness...

https://connect.mayoclinic.org/comment/154103/

decrease after the initial radiation and temodar

Discussion: Pleomorphic xanthoastrocytoma tumor (Pxa): help

Support Group: Brain Tumor

Posted: Dec 21, 2018

Hi Imp, I'm tagging a few other members, like @myminnie @spangles @chuck58201 @kansastumor @martyc2016 @caquigg1 and...

https://connect.mayoclinic.org/comment/182089/

dawn_giacabazi, who have experience with Temodar

Discussion: Side Effects of Temozolomide (Temodar)

Support Group: Brain Tumor

Posted: Jan 23, 2018

Diagnosed with GBM Sept 2023. I’m in my 18 month. Yes, live each day to the...

https://connect.mayoclinic.org/comment/1233504/

Still on Optune and Temodar (5/23).

Discussion: Offering hope: Dad's journey with Glioblastoma stage 4

Support Group: Brain Tumor

Posted: Feb 10 8:49am

Hi @bethanderson49, congrats on the successful operation to remove 80% of the tumor. Don't you just...

https://connect.mayoclinic.org/comment/326659/

ready for a 5-day cycle of double dose temodar ... also have some thoughts to add about temodar ... nausea with during the 42-day course of temodar

Discussion: Astrocytoma Grade 3 use of CBD Oil during chemo

Support Group: Brain Tumor

Posted: Nov 4, 2020

@daughterfuturemd, I don’t think I can be helpful. I never had radiation. I was on an...

https://connect.mayoclinic.org/comment/310282/

infused Chemo along with the oral chemo Temodar ... the insurance company not approving Temodar

Discussion: Radiation with or without Temodar for Glioblastoma?

Support Group: Brain Tumor

Posted: May 10, 2020

I wish your dad the best my friend, we were on the same treatment path, but...

https://connect.mayoclinic.org/comment/1333112/

Radiation (6 week) Temodar to follow

Discussion: Offering hope: Dad's journey with Glioblastoma stage 4

Support Group: Brain Tumor

Posted: 2 days ago

Hi so nice to hear your husband is doing well .Enjoy whatever you get .I wonder...

https://connect.mayoclinic.org/comment/239977/

same . we are doing radaition without temodar

Discussion: Glioblastoma Grade 4

Support Group: Brain Tumor

Posted: May 12, 2020

1/23 almost total resection at Mayo Jacksonville.grade 4 Methylation absent. Completed chemo and radiation.would not continue...

https://connect.mayoclinic.org/comment/961424/

and radiation.would not continue on temodar

Discussion: My Husband's journey with Glioblastoma

Support Group: Brain Tumor

Posted: Nov 9, 2023

My husband never was offered optune therapy. I don't know that we would have tried it...

https://connect.mayoclinic.org/comment/1025285/

didn't have the receptors for the temodar ... so I don't think the temodar helped

Discussion: My Husband's diagnosis of glioblastoma grade 4

Support Group: Brain Tumor

Posted: Mar 1, 2024

I am so very sorry for the journey your husband and yourself are currently experiencing. If...

https://connect.mayoclinic.org/comment/323018/

journey of radiation treatments with Temodar ... then I started the stronger dose of Temodar ... surgery, I can finally cease taking Temodar

Discussion: My Husband's journey with Glioblastoma

Support Group: Brain Tumor

Posted: Jan 20, 2021

Hi, I also have NETS and love being a part of discussion boards to learn and...

https://connect.mayoclinic.org/comment/710263/

Currently I am just on Temodar.

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 21, 2022

David, thank you so much for participating in this forum. My son Josef is 18. He...

https://connect.mayoclinic.org/comment/154145/

did proton radiation together with Temodar ... , then 10 cycles of Temodar together ... We did stop Temodar 2 months ago, he ... you mentioned your daughter was on Temodar ... I had asked if we can go back on Temodar

Discussion: Pleomorphic xanthoastrocytoma tumor (Pxa): help

Support Group: Brain Tumor

Posted: Jun 15, 2020

My 78 y/o wife was diagnosed with a glioblastoma stage on June 28, surgery to remove...

https://connect.mayoclinic.org/comment/112012/

treatments concurrent with 21 days of Temodar

Discussion: Meet fellow Caregivers - Introduce yourself

Support Group: Caregivers

Posted: Aug 29, 2016

Good news update here to offer encouragement to others. My husband had an MRI on 3/4/24...

https://connect.mayoclinic.org/comment/1028611/

He starts cycle 4 of Temodar this Friday ... treatments, SAGA trial at Mayo) and Temodar