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49 total results
Comments (40)
Hi @bmarkable. Myelofibrosis (MF) and Myelodyplastic syndrome are two different blood conditons. Myelofibrosis (MF) is disorder...
https://connect.mayoclinic.org/comment/1084232/
Myelofibrosis (MF) and Myelodyplastic ... Myelofibrosis (MF) is disorder in which ... Myelofibrosis is part of a group of ... The symptoms associated with primary ... myelofibrosis differ and are associated
Hi @casevin7 JAK2 is an acquired mutation so it is possible to develop it in the...
https://connect.mayoclinic.org/comment/870437/
https://www.healthline.com/health/myelofibrosis ... /what-is-primary-myelofibrosis#symptoms
@apr931 Hi there! I wanted to chime in on your question regarding the number 32. I...
https://connect.mayoclinic.org/comment/231785/
essential thrombocythemia (ET), or primary ... myelofibrosis (PMF).
You have elevate number of thrombocytes, also known as platelets, due to a cancer gene mutation...
https://connect.mayoclinic.org/comment/980340/
marrow study revealed that I have Primary ... Myelofibrosis.
I was diagnosed with a myelodysplastic disorder over a year ago. Last fall a bone marrow...
https://connect.mayoclinic.org/comment/1104835/
marrow biopsy revealed that I have primary ... myelofibrosis. ... leading physician specializing in Myelofibrosis ... said that I probably won’t “die OF Myelofibrosis ... but WITH Myelofibrosis.
Hi @cindyem, I’m just double checking your reference to PMDS. Do you possibly mean myelofibrosis (MF)...
https://connect.mayoclinic.org/comment/1043541/
Do you possibly mean myelofibrosis ( ... have a JAK2 mutation which can cause myelofibrosis ... https://www.healthline.com/health/myelofibrosis ... /what-is-primary-myelofibrosis
~~~~ ... https://www.healthline.com/health/myelofibrosis
Good questions. I’m not a medical doctor. My career was at the diagnostic end (lab). Therefore,...
https://connect.mayoclinic.org/comment/981500/
I had Primary myelofibrosis.
Welcome to Connect @jv4430. There are a number bone marrow disorders related to the JAK2 gene...
https://connect.mayoclinic.org/comment/969785/
Essential Thrombocythemia (ET) or Primary ... myelofibrosis.
Hi @cindyem I just read another comment you posted about having PV and anemia. From information...
https://connect.mayoclinic.org/comment/884148/
essential thrombocythemia (ET), and primary ... myelofibrosis (PMF) are all treated
@pesterthief, I found this information: "Primary idiopathic myelofibrosis is a rare myeloproliferative condition which can present...
https://connect.mayoclinic.org/comment/1168109/
pesterthief, I found this information:
"Primary ... idiopathic myelofibrosis is a rare ... pmc.ncbi.nlm.nih.gov/articles/PMC6557368/#:~:text=Primary ... %20idiopathic%20myelofibrosis%20is%20a
et1055, I found this comment from Colleen, one of our monitors, on another thread. I myself...
https://connect.mayoclinic.org/comment/1168338/
myelofibrosi? ... pesterthief, I found this information:
"Primary ... idiopathic myelofibrosis is a rare ... pmc.ncbi.nlm.nih.gov/articles/PMC6557368/#:~:text=Primary ... %20idiopathic%20myelofibrosis%20is%20a
Hi Steve, Becky has the JAK2 mutation which, from my understanding, makes primary ET more likely,...
https://connect.mayoclinic.org/comment/1154236/
which, from my understanding, makes primary ... myeloproliferative disorder, such as ET, PV, myelofibrosis
I was diagnosed with Myelofibrosis almost 2 1/2 years ago. Lost 50 pounds, have tremendous fatigue,...
https://connect.mayoclinic.org/comment/1005596/
I was diagnosed with Myelofibrosis almost ... coming from the ECD as opposed to the Myelofibrosis ... Bad primary!!! ... that you think are coming from your Myelofibrosis
Hi @sonja239. I understand your duress with having received news that you have two myeloproliferative blood...
https://connect.mayoclinic.org/comment/1097321/
https://www.healthline.com/health/primary-thrombocythemia ... You mentioned MF…myelofibrosis. ... Myelofibrosis is a bone marrow cancer ... www.mayoclinic.org/diseases-conditions/myelofibrosis ... enlarged spleen can be a side effect of myelofibrosis
Fantastic. If you scroll to the bottom of this information from Mayo Clinic, you'll find a...
https://connect.mayoclinic.org/comment/1103248/
www.mayoclinic.org/diseases-conditions/myelofibrosis ... For myelofibrosis, some basic questions ... What are the alternatives to the primary
Hi...I have a condition called Myeloid/lymphoid neoplasms with PCM1-JAK2. My first indication of something wrong was...
https://connect.mayoclinic.org/comment/132623/
wrong was in the summer of 2017 My primary ... Frauenshuh Cancer Center where the term myelofibrosis
Just to let you all know my friend lost his battle with this dreaded disorder on...
https://connect.mayoclinic.org/comment/169689/
Myelodysplastic Syndrome, unspecified / Myelofibroisis ... taking his Lasix from him till he seen primary ... suggested going to the ER or to his primary ... Myelodysplastic Syndrome, unspecified / Myelofibroisis
Good morning, @sudutoo. I hope you have your reading glasses on! You have a lot of...
https://connect.mayoclinic.org/comment/1050553/
ET, PV (polycythemia vera) or MPF (myelofibrosis ... https://www.healthline.com/health/primary-thrombocythemia
I have gotten my platelets down to 388,000 but it has take a long time and...
https://connect.mayoclinic.org/comment/792897/
The composite primary end point was ... hydroxyurea group to have reached the primary ... hemorrhage (P=0.008), and transformation to myelofibrosis
I had horrible thorax itching years before being diagnosed with Myelofibrosis. No specialist could determine the...
https://connect.mayoclinic.org/comment/875274/
years before being diagnosed with Myelofibrosis ... My primary at that time laughed at me ... itching was likely the first sign of the Myelofibrosis
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