Connect
To narrow your search, try adding quotation marks around phrases.
Search tips
- Search by keywords or complete phrases.
- To narrow your search, try adding quotation marks around phrases.
- Example: "predictable behavior" will narrow the search results to only include content that has the exact phrase "predictable behavior" in it.
89 total results
Comments (78)
Hi @bjsdancer, I'm tagging @rcand10s who wrote about being diagnosed with Primary Myelofibrosis in 2013. I'm...
https://connect.mayoclinic.org/comment/101833/
wrote about being diagnosed with Primary ... Myelofibrosis in 2013.
I have a different diagnosis than you so you can look at my list and substitute...
https://connect.mayoclinic.org/comment/1308354/
go once a year to Mayo Clinic to a Primary ... Myelofibrosis (PMF) specialist. ... treatment of intermediate or high-risk myelofibrosis ... , including primary myelofibrosis or ... secondary myelofibrosis [post-polycythemia
JAK2 Myelofibrosis I have been on Ojjarra for almost three months. It is a half dose...
https://connect.mayoclinic.org/comment/1210536/
JAK2 Myelofibrosis
I have been on Ojjarra ... hands of the Mayo Clinic expert in Primary ... Myelofibrosis, Dr.
Hi again @davi0937, You have company as I was diagnosed with that also, but in February...
https://connect.mayoclinic.org/comment/1349931/
Do you know if you have primary or secondary ... myelofibrosis? ... I think you have primary myelofibrosis
Hi @nolan, welcome to Mayo Clinic Connect. You'll notice that I moved your message to this...
https://connect.mayoclinic.org/comment/194373/
thrombocythemia, polycythemia vera, primary ... myelofibrosis and others.
Hi ideachaser1, Thanks for sharing. I guess what I am asking is do you have megakaryocyte...
https://connect.mayoclinic.org/comment/1256239/
My BMB says says “consistent with primary ... myelofibrosis” so my diagnosis got ... with CALR mutation and diagnosis of myelofibrosis
I was originally miss diagnosed with polycythemia Vera. Because I was borderline anemic and I worked...
https://connect.mayoclinic.org/comment/1044688/
studied by a Pathologist revealed Primary ... Myelofibrosis.
Hi, I was diagnosed with ET January 2025 after routine physical from high platelets in lab...
https://connect.mayoclinic.org/comment/1347917/
Then my O/H changed my diagnosis to primary ... myelofibrosis in February 2025.
Hi, I found this old post, but yes, my O/H changed my diagnosis from ET on...
https://connect.mayoclinic.org/comment/1297863/
my diagnosis from ET on 1/10/25 to primary ... Myelofibrosis on 2/10/25.
Hello,how are you all ?❤️ Well ,my biopsy results:no evidence of granuloma or abnormal lymphoid cell...
https://connect.mayoclinic.org/comment/1049809/
doctors,
The first doc sees that I have primary ... myelofibrosis (PMF) with low risk asymptomatic
My hematologist about 6 yrs ago diagnosed me with primary myelofibrosis at 71 yrs old, after...
https://connect.mayoclinic.org/comment/1217600/
about 6 yrs ago diagnosed me with primary ... myelofibrosis at 71 yrs old, after
This is the first discussion I have seen concerning myelofibrosis. I was diagnosed with Primary myelofibrosis...
https://connect.mayoclinic.org/comment/1209703/
discussion I have seen concerning myelofibrosis ... I was diagnosed with Primary myelofibrosis
@tkp22, I can understand you're worried. It sounds like your health care team is being thorough....
https://connect.mayoclinic.org/comment/719785/
vera, essential thrombocythemia, or primary ... myelofibrosis.
Hi @bmarkable. Myelofibrosis (MF) and Myelodyplastic syndrome are two different blood conditons. Myelofibrosis (MF) is disorder...
https://connect.mayoclinic.org/comment/1084232/
Myelofibrosis (MF) and Myelodyplastic ... Myelofibrosis (MF) is disorder in which ... Myelofibrosis is part of a group of ... The symptoms associated with primary ... myelofibrosis differ and are associated
derikburger @derikburg My PV caused Myelofibrosis, I was diagnosed Dec. 30, 2022 . Jakafi, Hydroxyurea ,...
https://connect.mayoclinic.org/comment/817148/
derikburger @derikburg My PV caused Myelofibrosis ... Did you have PV or is it Primary ... Myelofibrosis?
@apr931 Hi there! I wanted to chime in on your question regarding the number 32. I...
https://connect.mayoclinic.org/comment/231785/
essential thrombocythemia (ET), or primary ... myelofibrosis (PMF).
Hi @casevin7 JAK2 is an acquired mutation so it is possible to develop it in the...
https://connect.mayoclinic.org/comment/870437/
https://www.healthline.com/health/myelofibrosis ... /what-is-primary-myelofibrosis#symptoms
You have elevate number of thrombocytes, also known as platelets, due to a cancer gene mutation...
https://connect.mayoclinic.org/comment/980340/
marrow study revealed that I have Primary ... Myelofibrosis.
Hi @tamlyn74, I had platelets similar to yours on my routine first time lab with new...
https://connect.mayoclinic.org/comment/1321000/
1/10/25 diagnosis for me of ET to primary ... myelofibrosis on 2/10/25 after my bone
Hi, I hope this discussion restarts! After having high platelets on a routine physical with lab...
https://connect.mayoclinic.org/comment/1351541/
mutation, I read that could be ET or myelofibrosis ... She changed my diagnosis to primary ... myelofibrosis after talking with the ... My risk analysis for myelofibrosis is
- First
- Previous
- 1
- 2
- 3
- 4
- Next
- Last
Connect