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468 total results
Comments (398)
Hi @gpowr23, welcome. Dr. Darce Knight heads the EDS Clinic at Mayo in Jacksonville. You may...
https://connect.mayoclinic.org/comment/1032284/
follow the EDS expert blog here: - Ehlers-Danlos ... https://connect.mayoclinic.org/blog/ehlers-danlos-syndrome ... https://connect.mayoclinic.org/blog/ehlers-danlos-syndrome
Discussion: Ehlers Danlos Syndrome, MCAS, POTS, and MALS
Support Group: Bones, Joints & Muscles
Posted: Mar 12 10:05am
@macrdo, interestingly Dr. Knight, an Ehlers Danlos specialist at Mayo Clinic recently posted this blog article...
https://connect.mayoclinic.org/comment/716251/
Knight, an Ehlers Danlos specialist ... https://connect.mayoclinic.org/blog/ehlers-danlos-syndrome ... EDS members, see this discussion: - Ehlers ... other EDS related discussions, enter Ehlers
Discussion: Chronic pain and other joint issues: Looking for answers
Support Group: Bones, Joints & Muscles
Posted: Jun 10, 2022
@spoeps and @mcolton16, there are several blog posts related to EDS and exercise that you may...
https://connect.mayoclinic.org/comment/718962/
https://connect.mayoclinic.org/blog/ehlers-danlos-syndrome ... https://connect.mayoclinic.org/blog/ehlers-danlos-syndrome ... https://connect.mayoclinic.org/blog/ehlers-danlos-syndrome
Newsfeed Post: POTS Part II: Treatment
Blog: Ehlers-Danlos Syndrome
Posted: Jun 19, 2022
Hi @shcraft. While we wait for @emo to share their experience with you. You may find...
https://connect.mayoclinic.org/comment/907196/
discussions useful: - Hypermobile Ehlers ... connect.mayoclinic.org/discussion/hypermobile-ehlers-danlos-care-team-in-arizona ... / – Ehlers Danlos Syndrome – Who is ... /connect.mayoclinic.org/discussion/ehlers-danlos-syndrome-new-diagnosis
Discussion: Specialists for Ehlers-Danlos Syndrome, SIBO, Aeortic Ectasia
Support Group: Bones, Joints & Muscles
Posted: Aug 3, 2023
Hi Grace, welcome to Mayo Clinic Connect. I'm glad you found this blog and the patient...
https://connect.mayoclinic.org/comment/633360/
other EDS-ers (people living with Ehlers ... – Ehlers Danlos Syndrome https:/ ... /connect.mayoclinic.org/discussion/ehlers-danlos-syndrome-new-diagnosis ... -1/ - Ehlers Danlos Syndrome (EDS)
Newsfeed Post: Ehlers-Danlos Syndromes Welcome
Blog: Ehlers-Danlos Syndrome
Posted: Sep 6, 2021
Welcome @josh42, I'm sorry to hear that your doctors don't seem to be listening to you....
https://connect.mayoclinic.org/comment/690877/
daughter have been diagnosed with Ehlers ... shared and might find helpful: --- Ehlers ... /connect.mayoclinic.org/discussion/ehlers-danlos-syndrome-new-diagnosis
Discussion: Undiagnosed Hip Pain
Support Group: Bones, Joints & Muscles
Posted: Mar 18, 2022
@mdwatnik1, I add my welcome. I'm glad that you are able to go to the Ehlers-Danlos...
https://connect.mayoclinic.org/comment/1019466/
glad that you are able to go to the Ehlers-Danlos ... You may wish to follow the Ehlers-Danlos ... https://connect.mayoclinic.org/blog/ehlers-danlos-syndrome
Discussion: Going to Mayo Clinic EDS Florida
Support Group: Visiting Mayo Clinic
Posted: Feb 20 7:52pm
@candace317, @mikaylar is right. Mayo Clinic in Jacksonville, Florida has a specialized EDS clinic as well...
https://connect.mayoclinic.org/comment/833482/
old, I think the Mayo Jacksonville Ehlers-Danlos ... Read more about the Florida Ehlers-Danlos ... https://connect.mayoclinic.org/blog/ehlers-danlos-syndrome
Discussion: How can I help my 15 year olds debilitating migraines from EDS?
Support Group: Bones, Joints & Muscles
Posted: Mar 28, 2023
Dr. Darce Knight still leads the EDS Clinic at Mayo Clinic in Jacksonville, Florida. Here's more...
https://connect.mayoclinic.org/comment/1011452/
www.mayoclinic.org/departments-centers/ehlers-danlos-syndrome-clinic-florida ... https://connect.mayoclinic.org/blog/ehlers-danlos-syndrome
Newsfeed Post: 4 Must-Read Books on EDS/HSD
Blog: Ehlers-Danlos Syndrome
Posted: Feb 7 5:49pm
Hi @nial1n, I'm not a doctor, so take this with a grain of salt. You might...
https://connect.mayoclinic.org/comment/957863/
symptoms-causes/syc-20350941 According to the Ehlers-Danlos ... and Mandibular Manifestations in the Ehlers-Danlos ... Syndromes https://www.ehlers-danlos.com ... eds-classification-non-experts/oral-mandibular-manifestations-ehlers-danlos-syndromes
Newsfeed Post: Head and Neck Concerns in EDS/HSD
Blog: Ehlers-Danlos Syndrome
Posted: Nov 2, 2023
Sherrie, I can imagine you're very worried for your daughter. How did the consult with the...
https://connect.mayoclinic.org/comment/694628/
following the EDS expert blog here: - Ehlers-Danlos ... https://connect.mayoclinic.org/blog/ehlers-danlos-syndrome
Discussion: Median Arcuate Ligament Syndrome (MALS)
Support Group: Digestive Health
Posted: Mar 30, 2022