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60 total results
Comments (51)
Hello @charlie24, So sorry to hear your husband has been diagnosed with pyoderma gangrenosum in addition...
pyoderma gangrenosum in addition to his CharcotMarieTooth ... Disease (CMT) diagnosis. ... here - https://www.mayoclinic.org/diseases-conditions ... search=Charcot.
Support Group: Neuropathy
Posted: Jul 26, 2025
WHAT IS ARE RARE DISEASES? Ehlers Danlos Syndrome, Charcot-Marie-Tooth disease, Congenital muscular dystrophy, CRPS, and so...
WHAT IS ARE RARE DISEASES? ... Ehlers Danlos Syndrome, Charcot-Marie-Tooth ... disease, Congenital muscular dystrophy ... Just because our disease is “rare” or ... the time of chronic Pain and rare disease
Support Group: Chronic Pain
Posted: Feb 14, 2021
Welcome @annehouseofdreams, @mhr31 posted earlier in this discussion that they were born with CMT and may...
— CMT=Charcot Marie Tooth Disease ... connect.mayoclinic.org/discussion/cmtcharcot-marie-tooth-disease-type ... -- (2015) A brief review of recent Charcot-Marie-Tooth
Support Group: Neuropathy
Posted: Jan 18, 2024
I have peripheral neuropathy I didn't know what it was for a long time. Numbness and...
done a DNA test came back that I have Charcot-Marie-Tooth ... disease with missing pmp22 gene along ... This disease is no fun and it's
Support Group: Chronic Pain
Posted: Jul 26, 2024
Hello @mhr31, Welcome to Connect. The weather affects my neuropathy also but I just have the...
. -- CMT=Charcot Marie Tooth Disease ... connect.mayoclinic.org/discussion/cmtcharcot-marie-tooth-disease-type
Support Group: Neuropathy
Posted: Feb 5, 2023
I just learned that I have small fiber neuropathy. They have not been able to find...
has triggered it, but my sister has Charcot ... Marie tooth disease so I am sure it
Support Group: Neuropathy
Posted: Sep 10, 2025
Hey all! Dad Root from Arvada, Colorado here. Five Grandkids and counting. Like my Dad before...
My symptoms seemed congruent with Charcot-Marie-Tooth ... disease. ... Doc told my wife & I that this disease
Support Group: Neuropathy
Posted: Oct 17, 2024
@jula73, Jula .. I am assuming that is your first name .. PLEASE correct me if...
osteoarthritis, GERD and a neuromuscular disease ... called CMT (Charcot Marie Tooth Disease ... educate yourself to our shared MAC disease
Sept 17th meeting for the 20 Year Celebration for the MN Neuropathy Association (www.neuropathy-mn.org). If others...
subspecialty interest in neuromuscular diseases ... Minnesota's multidisciplinary ALS and Charcot-Marie-Tooth ... and other motor neuron disorders, Charcot-Marie-Tooth ... disease, and quantitative sensory testing ... atrophy of late onset (called “Kennedy’s Disease
Support Group: Neuropathy
Posted: Aug 31, 2016
Looks like there is a definitive test: Found this:-We report a 14-month-old toddler. The child presented...
father of the child was diagnosed with Charcot-Marie-Tooth ... 1A disease, a genetic analysis of the ... performed confirming the diagnosis of Charcot ... - Marie-Tooth 1A in the child, too.