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48 total results
Comments (42)
@lydiamay1 I'm so sorry you are so young and caring for a child through such worry...
https://connect.mayoclinic.org/comment/275576/
The other thing to look into is Charcot ... Marie Tooth Disease, as I guess it
Hi @grandmar -- Ronnie. My husband John has dealt with Sensory Periphery Neuropathy for 20 years....
https://connect.mayoclinic.org/comment/157253/
His neuropathy is due to a genetic disease ... -- Charcot-Marie-Tooth disease (CMT
I am a 73-year-old female with a recent diagnosis of MAC along with a history of...
https://connect.mayoclinic.org/comment/62373/
osteoarthritis, GERD and a neuromuscular disease ... called CMT (Charcot Marie Tooth Disease
Hey all! Dad Root from Arvada, Colorado here. Five Grandkids and counting. Like my Dad before...
https://connect.mayoclinic.org/comment/1158585/
My symptoms seemed congruent with Charcot-Marie-Tooth ... disease. ... Doc told my wife & I that this disease
@jula73, Jula .. I am assuming that is your first name .. PLEASE correct me if...
https://connect.mayoclinic.org/comment/62366/
osteoarthritis, GERD and a neuromuscular disease ... called CMT (Charcot Marie Tooth Disease ... educate yourself to our shared MAC disease
Sept 17th meeting for the 20 Year Celebration for the MN Neuropathy Association (www.neuropathy-mn.org). If others...
https://connect.mayoclinic.org/comment/91617/
subspecialty interest in neuromuscular diseases ... Minnesota's multidisciplinary ALS and Charcot-Marie-Tooth ... and other motor neuron disorders, Charcot-Marie-Tooth ... disease, and quantitative sensory testing ... atrophy of late onset (called “Kennedy’s Disease
Hi @rivermaya34. So sorry to hear you have been diagnosed with HNPP. This is such a...
https://connect.mayoclinic.org/comment/1070799/
inherited neuropathies) and HNPP/CMT (Charcot ... Marie tooth disease) so much information
I too suffered for years not knowing what was wrong. Similar symptoms and every neurologist said...
https://connect.mayoclinic.org/comment/1061471/
and the genetic counselor for CMT (Charcot ... Marie Tooth Disease for which HNPP
I was born with CMT [CHARCO MARIE TOOTH] .CMT is a progressive neuromuscular disease that damages...
https://connect.mayoclinic.org/comment/806365/
I was born with CMT [CHARCO MARIE TOOTH ... CMT is a progressive neuromuscular disease
Looks like there is a definitive test: Found this:-We report a 14-month-old toddler. The child presented...
https://connect.mayoclinic.org/comment/70716/
father of the child was diagnosed with Charcot-Marie-Tooth ... 1A disease, a genetic analysis of the ... performed confirming the diagnosis of Charcot ... - Marie-Tooth 1A in the child, too.
Thanks for your response and you are correct, those symptoms I described are related to long...
https://connect.mayoclinic.org/comment/92877/
I also have a neuromuscular disease ... called CMT (Charco, Marie, Tooth) and
Good morning @cherylmcg You sound so positive even though you’ve got this long list of other...
https://connect.mayoclinic.org/comment/614989/
you’ve got this long list of other diseases ... wanted to ask though with the other diseases ... that you have like Charcot Marie tooth
Hi, @barbbie - I moved your post here to this existing discussion on Charcot Marie Tooth...
https://connect.mayoclinic.org/comment/70718/
here to this existing discussion on Charcot ... Marie Tooth so you can speak to others ... witnessed about the heritability of this disease
Hello Colleen (@colleenyoung), John (@johnbishop), and all! My husband John has Peripheral Neuropathy. Initially (approx. 20...
https://connect.mayoclinic.org/comment/156562/
years ago), it was diagnosed as "Charcot-Marie-Tooth ... all of the potential ties to other diseases
I truly feel for you because I went through the same thing when I was 13...
https://connect.mayoclinic.org/comment/1039877/
because of this rare neurological disease ... Hereditary Nerve Pressure Palsy or Charot ... Marie Tooth Disease (CMT) Not saying
Is Charcot-Marie-Tooth an autoimmune disease? No, CMT isn't an autoimmune disease. However, some mutations of the...
https://connect.mayoclinic.org/comment/844010/
Is Charcot-Marie-Tooth an autoimmune ... disease? ... No, CMT isn't an autoimmune disease
I just ran across this post searching for answers, because like you, I can't get an...
https://connect.mayoclinic.org/comment/720228/
second EMG I was given a diagnosis of Charcot ... Marie tooth, which is when I started ... Back to charcot Marie tooth, I was pretty ... I joined a support group for the disease
Hi Sheila, One possibility that could explain peripheral neuropathy in legs/feet and eyes could be a...
https://connect.mayoclinic.org/comment/844763/
neurologist preferably one listed on the Charcot-Marie-Tooth ... this is the most common cause of CMT disease
You need to get a neuromuscular neurologist who will order DNA testing, preferably whole genome sequencing...
https://connect.mayoclinic.org/comment/802431/
the costs of a chronic, disabling disease ... Also CMTA.org (Charcot-Marie-Tooth Association
I’ve diagnosed w/UCTD and have been taking hydrochloriquine for 3 months with no improvement. I started...
https://connect.mayoclinic.org/comment/613699/
full 3 months to rule out Sjornes disease ... I also was diagnosed with Charcot Marie ... Tooth and hypothyroidism. ... Another weird rare disease to add to
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