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159 total results
Comments (141)
Hi there, I have the exact same symptoms as you and I am scheduled for a...
on the 29th to confirm or rule out AL ... in an area where you have the most neuropathy
Support Group: Autoimmune Diseases
Posted: Dec 14, 2023
Good morning! I don't know for sure, but now that I have PN and am learning...
than to say in an offhand way it was neuropathy ... ), my parents, grandparents, et al.,
Support Group: Neuropathy
Posted: Jun 29, 2023
I am no expert but it sounds similar to peripheral neuropathy……. Als twitches usually do not...
but it sounds similar to peripheral neuropathy ... Als twitches usually do not start randomly ... spasticity then twitch for it to be Als
I was tested for ALS, MS, MG, etc. 8 years ago not because of my fasciculations,...
I was tested for ALS, MS, MG, etc. 8 ... I was afraid I had ALS. ... was all part of my HNPP (Hereditary Neuropathy ... I was relieved it wasn't ALS!
Support Group: Brain & Nervous System
Posted: May 4, 2023
I don’t know if anyone has referenced this small “owner’s manual” for SFN; it’s available at...
Comprehensive Patient Guide to Small Fiber Neuropathy ... Paperback – by MD Todd Levine , et al ... available for patients with small fiber neuropathy ... available today about small fiber neuropathy ... Small fiber neuropathy is increasingly
Support Group: Neuropathy
Posted: Apr 1, 2022
@faithwalker007 I'm not in your league when it comes to surgeries, but I've had my share,...
almost certainly related to autonomic neuropathy ... But because neuropathy isn't curable ... control and therapy for depression et al
Support Group: Chronic Pain
Posted: Oct 5, 2020
The neuropathy panel is performed by Invitae. Go to Invitae.com to look at the various panels....
The neuropathy panel is performed by ... added that to the panel along with MS, ALS ... insurance carrier covered the cost of the neuropathy
Support Group: Neuropathy
Posted: Aug 14, 2020
Hello @lilotter, Welcome to Connect. Thank you for sharing your experience and what has helped you....
on some of the more rare types of neuropathy ... Dysimmune small fiber neuropathies - ... AL Oaklander -- "… dysimmunity ... the well-documented immune-mediated neuropathies ... retrospective study --- "… fiber neuropathy
Support Group: Neuropathy
Posted: Jul 14, 2020
I could be reading my own story. Very, very similar. I was seen at Mayo in...
diagnosed my Dysautonomia and left leg neuropathy ... punch biopsy to look for Small Fiber Neuropathy ... of the worst diagnoses, one being ALS
Support Group: Brain & Nervous System
Posted: Dec 12, 2019
Happy St. Patrick's Day I think everyone is Irish on this day. lol Anyway, due to...
to give me a diagnosis (more than neuropathy ... a plan of action to slow down the neuropathy ... The reason I al telling you all this
I've been on Gabapentin for years. Started at 100mg per day now I take 3200 mg...
headaches and twice as much pain from the neuropathy ... patients, epileptic, people with ME and ALS ... Pray that they find a good drug for neuropathy
Support Group: Neuropathy
Posted: Feb 13, 2019