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1,156 total results
Comments (1,069)
Just following up. My Jak2 was negative and my EPO was 5. I don't know what...
https://connect.mayoclinic.org/comment/852226/
t know what that means as far as a PV
Hi! I hope your sons labs remain normal and he is healthy. That is a blessing....
https://connect.mayoclinic.org/comment/1467345/
being able to live a normal life with PV
@nypara66 I've never smoked or drank , he said that could've been a secondary cause. We...
https://connect.mayoclinic.org/comment/1466459/
did say in a small.percentage of PV
Hi Lori, thanks for all your amazing support and information. My family is finding the articles...
https://connect.mayoclinic.org/comment/875908/
positive but the oncologist said I have PV ... with the SIBO last year and then the PV ... positive could that mean it may not be PV ... re Jak2 negative, I can still have PV
Thanks. I wrote to my representatives in Congress and like you emphasized the Sickle Cell aspect....
https://connect.mayoclinic.org/comment/1287509/
known and certainly more known than PV
M the opposite! My iron is crashing? PV and Hydroxyurea also. They upped the pills saying...
https://connect.mayoclinic.org/comment/1301508/
PV and Hydroxyurea also.
Wow, that’s outrageous! I’m glad insurance helps pay for it. I’d have to pay 20% after...
https://connect.mayoclinic.org/comment/896629/
will meet every year now with the PV
Boy I wish my PLT count was below 400, which for over 5 years it has...
https://connect.mayoclinic.org/comment/1276671/
been close even with taking HU for PV
Welcome to Connect, @clareaq. Your experince shows the importance of working with a MPN specialist when...
https://connect.mayoclinic.org/comment/1017839/
myeloproliferative disorder such as PV
hi - I had two PFA consults this year, in June and Sept. Both EPs are...
https://connect.mayoclinic.org/comment/1186265/
be done with RF, nor cyro, due to PV
I have had ET for about 3 yrs . Had bone marrow biopsy cause platelets so...
https://connect.mayoclinic.org/comment/641259/
Et and pv both were mentioned in report
Wendy, physicians consider a number of factors when diagnosing PV because most diagnostic tests are not...
https://connect.mayoclinic.org/comment/890629/
number of factors when diagnosing PV ... polycythemia might well be diagnosed with PV ... a negative JAK2 because there are PV ... diagnosis, the treatments for both P and PV
While waiting for other members to respond to your question about upper body pain associated with...
https://connect.mayoclinic.org/comment/1364893/
about upper body pain associated with PV ... that they feel are contributed to PV ... host of other conversations with our PV ... diagnosed with Polycythemia Vera, (PV
Good morning, @ausableriver. Oh gosh, I know that feeling of defeat when we realize we’re not...
https://connect.mayoclinic.org/comment/878258/
I don’t have PV but I did have acute ... Other members with PV who might be able ... you’re having a really compressive PV ... others in this conversation regarding PV ... waiting for a firm diagnosis with your PV
Isabelle, I have PV and have great relief from that terrible itch after a shower by...
https://connect.mayoclinic.org/comment/1197983/
Isabelle,
I have PV and have great
I was wondering the same thing- that it took Jackie to do her own research. For...
https://connect.mayoclinic.org/comment/1195078/
hemoglobin are enough markers for PV
Say something to you my doctor put me on eliquis which is a button it had...
https://connect.mayoclinic.org/comment/887463/
When I first was diagnosed with it pv
Hopefully good news! Could be just Polycythemia, not PV. If so they’ll do tests to see...
https://connect.mayoclinic.org/comment/852367/
Could be just Polycythemia, not PV.
I have numbness in my hands as well! It’s all so new so I’m trying to...
https://connect.mayoclinic.org/comment/828599/
Crazy how sudden this PV comes….
The way I understand it MPN specialists are hematologists with sub speciality of MPN’s such as...
https://connect.mayoclinic.org/comment/797781/
sub speciality of MPN’s such as ET, PV
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