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Comments (686)

Welcome to the forum. My rheumatologist would say you have a complicated set of conditions. I...

https://connect.mayoclinic.org/comment/1083256/

Kevzara (sarilumab) is also an IL-6 ... PMR https://www.drugs.com/tips/kevzara-patient-tips ... #:~:text=Kevzara%20is%20a%20brand%20

Discussion: PMR pain management with medical cannabis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 8 8:53pm

Elayne, I was diagnosed with PMR in Jan 23. Went to Kevzara when I was at...

https://connect.mayoclinic.org/comment/1029227/

Went to Kevzara when I was at 2.5 prednisone

Discussion: Start Methotrexate with Prednisone right away or wait?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 7 10:28am

I’m 63 and not eligible for Medicare yet. My insurance initially said no to Kevzara but...

https://connect.mayoclinic.org/comment/880313/

My insurance initially said no to Kevzara

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 17, 2023

Thanks! Yes I did bring it up to my rheumatologist and he suggested putting me on...

https://connect.mayoclinic.org/comment/1089232/

rheumatologist and he suggested putting me on Kevzara

Discussion: Kevzara Side Effects?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 18 1:55pm

I was one of the first folks on The Forum to go on Kevzara. I was...

https://connect.mayoclinic.org/comment/1141984/

first folks on The Forum to go on Kevzara

Discussion: Kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 15 12:37pm

Hi John, I was also put on Methotrexate for possible RA and PMR. My understanding is...

https://connect.mayoclinic.org/comment/1164060/

of side effects, I was started on Kevzara

Discussion: PMR and Methotrexate

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 28 11:23am

Just be careful-I assume you have the copay card? They pd for mine Oct, Nov, Jan...

https://connect.mayoclinic.org/comment/1014674/

may I suggest to you that you call Kevzara

Discussion: Kevzara and Prednisone Tapering before and during Kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 12 6:42pm

When your cortisol level is low, the body loses the ability to regulate inflammation. It seems...

https://connect.mayoclinic.org/comment/953745/

Have you decided to try Kevzara? ... Maybe Kevzara will work the same as

Discussion: How does Kevzara help with PMR symptoms and pain? I am being weaned

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 25, 2023

I can try to help. Just my info from here and google search. I have not...

https://connect.mayoclinic.org/comment/1079496/

I have not taken Kevzara. ... Kevzara and Acterma.

Discussion: Anyone have discomfort or pain when tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 2 12:08pm

I too have had trouble distinguishing between pmr symptoms and ordinary aches and pains. Long-standing hip...

https://connect.mayoclinic.org/comment/953442/

Regarding kevzara, at the suggestion ... am not entirely sure I want to take kevzara

Discussion: Wrist and finger pain while tapering prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 25, 2023

Yes! Absolutely! Cellcept weakens your immune system and going into the hospital for joint replacement or...

https://connect.mayoclinic.org/comment/1134123/

temporarily stop my Prednisone, and Kevzara

Discussion: Cellcept

Support Group: Autoimmune Diseases

Posted: Aug 31 6:37pm

Prednisone is for cancelling Inflammation. Inflammation is very hard on our body as well as certain...

https://connect.mayoclinic.org/comment/1135174/

I am also on injections of Kevzara for

Discussion: newly diagnosed

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 2 4:54pm

A biologic called Actemra (tocilizumab) was prescribed to me for PMR. However it isn't FDA approved...

https://connect.mayoclinic.org/comment/911994/

A similar biologic called Kevzara (sarilumab

Discussion: The lowest effective dose, how is it defined?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 12, 2023

I totally understand, I actually took one injection of Kevzara and it gave me fever and...

https://connect.mayoclinic.org/comment/1116350/

, I actually took one injection of Kevzara

Discussion: What justifies an increase in prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 2 8:53am

If your pain levels decrease on steroids, then yes, it means you have PMR. Steroids don’t...

https://connect.mayoclinic.org/comment/1122415/

Kevzara can help, but injections are ... years of prednisone and I’m now on Kevzara

Discussion: Fibro or PMR

Support Group: Fibromyalgia

Posted: Aug 12 4:57pm

You were wise to retire, @sandiw77, I can't imagine working with PMR. When I had it,...

https://connect.mayoclinic.org/comment/873904/

I hope the Kevzara works for you.

Discussion: Can we make PMR funny ? Can we fight the immune cells involved ?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 6, 2023

Great! I've been on the Kevzara nearly a month. I was out all day in the...

https://connect.mayoclinic.org/comment/1086112/

I've been on the Kevzara nearly

Discussion: Prednisone to Kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 13 9:35am

@wilmingtonemperor I wish you all the best and continued good health. Actually the potential side effects...

https://connect.mayoclinic.org/comment/975531/

m certain my internist knew about kevzara

Discussion: How long has PMR lasted - I'm trying to find the average

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 5, 2023

I saw my doc yesterday, I am back up to 20mg of prednisone after being down...

https://connect.mayoclinic.org/comment/972496/

of methotrexate and putting me on Kevzara ... https://www.kevzara.com/

Discussion: PMR flare at a drop from 8 to 7 mg of prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 29, 2023

I hear you. RN as well-just retired. Active climbing dunes, paddle boarding, walking etc…basically one day...

https://connect.mayoclinic.org/comment/963930/

Just started Kevzara.

Discussion: A month into my diagnosis with PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 13, 2023