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Comments (2,353)

Thank you for answering. I haven’t found a doctor yet who will discuss Sjogrens. My Rheumatologist...

https://connect.mayoclinic.org/comment/1017865/

found a doctor yet who will discuss Sjogrens ... to see someone who will discuss my Sjogrens

Discussion: Body and scalp itchimg

Support Group: Autoimmune Diseases

Posted: Feb 18, 2024

This in a way happened to me. I went with the sore tongue dry mouth head...

https://connect.mayoclinic.org/comment/1016244/

in my mouth and he tells me I have Sjogrens

Discussion: Mouth pain over a year, no help or end in sight

Support Group: Chronic Pain

Posted: Feb 15, 2024

Hi Thank y so much for replying I'm not positive for the antibodies bjt neither can...

https://connect.mayoclinic.org/comment/1014223/

positive antibodies that can go with sjogrens

Discussion: Sjogrens and dysautononia and mast cell activation

Support Group: Autoimmune Diseases

Posted: Feb 12, 2024

Is your tongue white? As soon as I mentioned the white tongue my dentist knew what...

https://connect.mayoclinic.org/comment/1013919/

because his wife was diagnosed with it Sojgrens

Discussion: Mouth pain over a year, no help or end in sight

Support Group: Chronic Pain

Posted: Feb 11, 2024

Has anyone with the Sjogren’s had trouble with stinging lips or red, painful, burning ears ?...

https://connect.mayoclinic.org/comment/1011951/

Has anyone with the Sjogren’s had trouble

Discussion: I have Sjogrens and dryness is progressively getting worse.

Support Group: Autoimmune Diseases

Posted: Feb 8, 2024

Hello. I was diagnosed with POTS as Long COVID is attacking my autonomic nervous system and...

https://connect.mayoclinic.org/comment/1011730/

system and now have all the symptoms of Sjogren

Discussion: Has anyone been diagnosed with an autoimmune disease after covid?

Support Group: Post-COVID Recovery & COVID-19

Posted: Feb 8, 2024

No, my doctor did not do any BTM tests prior to starting me on Prolia. I...

https://connect.mayoclinic.org/comment/1010485/

I do have Sjogren's but not sure

Discussion: How Long For Body To "Reset"?

Support Group: Osteoporosis & Bone Health

Posted: Feb 6, 2024

You can get a blood test to find out, although they are not 100% reliable. If...

https://connect.mayoclinic.org/comment/1010427/

If you have the symptoms, you have Sjogrens

Discussion: I have Sjogrens and dryness is progressively getting worse.

Support Group: Autoimmune Diseases

Posted: Feb 5, 2024

I’ve had three blood tests. I was told definitively “not Sjogrens”. Thank you for the information....

https://connect.mayoclinic.org/comment/1001136/

I was told definitively “not Sjogrens

Discussion: is there such a thing as zero negative Sjogren’s?

Support Group: Autoimmune Diseases

Posted: Jan 21, 2024

I’m 69, also diagnosed with DCIS grade 2, stage 0 in 2022. I had a lumpectomy,...

https://connect.mayoclinic.org/comment/1000900/

tamoxifen may be beneficial to your Sjogrens ... From what I’ve read Sjogrens progresses

Discussion: DCIS and Sjogrens

Support Group: Breast Cancer

Posted: Jan 20, 2024

I am sorry dloos that you have all these symptoms with as yet, no resolution. As...

https://connect.mayoclinic.org/comment/1000882/

a few of us have said, a negative Sjögren ... However when these ‘Sjögren suspicious

Discussion: is there such a thing as zero negative Sjogren’s?

Support Group: Autoimmune Diseases

Posted: Jan 20, 2024

Thank you so much for that information. We are hoping to get my sister on Plaquenil...

https://connect.mayoclinic.org/comment/1000113/

watch her suffer from the effects of Sjogren

Discussion: is there such a thing as zero negative Sjogren’s?

Support Group: Autoimmune Diseases

Posted: Jan 19, 2024

Hello, I have S.F.N. All of a sudden my body jumps when I'm laying down? Does...

https://connect.mayoclinic.org/comment/995124/

Also have Sojgren's Syndrome but

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Jan 10, 2024

I got both the Shingrix vaccine and the Moderna vaccine in the Spring of 2021 and...

https://connect.mayoclinic.org/comment/993591/

I was ultimately diagnosed with Sjogren

Discussion: Did anyone receive Glaxo Shingrix vaccine in June, July, August 2019?

Support Group: Autoimmune Diseases

Posted: Jan 8, 2024

Yes, I mostly post there. I’m Relatively new to Sjogrens . Things not going well ,...

https://connect.mayoclinic.org/comment/989801/

I’m Relatively new to Sjogrens .

Discussion: Sjogrens patients, saliva issues, flares?

Support Group: Autoimmune Diseases

Posted: Jan 1, 2024

I have had throat clearing for a year and a half. Seen ENT all clear there....

https://connect.mayoclinic.org/comment/989385/

point Gastro Doc said maybe related to Sjogrens

Discussion: Constant feeling of needing to clear my throat

Support Group: Digestive Health

Posted: Dec 31, 2023

HI, There is not one medication that has helped my S.F.N. Sjogren's. I see a Phycologist...

https://connect.mayoclinic.org/comment/988710/

Sjogren's.

Discussion: Anyone tried using red light therapy?

Support Group: Neuropathy

Posted: Dec 30, 2023

I haven’t. I’ve read Keith MCCormicks books, Vitamin K2 and the Calcium Paradox by Kate Rheaume-Bleue...

https://connect.mayoclinic.org/comment/981655/

to K2 in the form of MK-7, I have Sjogerns

Discussion: overwhelmed by so much (often conflicting) info on natural approaches

Support Group: Osteoporosis & Bone Health

Posted: Dec 16, 2023

I definitely speak your language. Most people have no idea what the daily regimen is with...

https://connect.mayoclinic.org/comment/979414/

I haven’t been diagnosed with Sjogrens

Discussion: How do you deal with dry eyes?

Support Group: Eye Conditions

Posted: Dec 12, 2023

Yes I have this. Even long before covid. I have lupus Sjogrens. Fibro nueropathy. They/ drs...

https://connect.mayoclinic.org/comment/978631/

I have lupus Sjogrens. ... They/ drs think it’s from Sjogrens.

Discussion: Difficulty regulating body temperature. Does anyone else have this?

Support Group: Autoimmune Diseases

Posted: Dec 11, 2023