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826 total results
Comments (757)
Just a couple more quick notes. As I have searched for answers, the most difficult part...
pointed out to me that I had markers of amyloidosis ... But saying "I am an expert on amyloidosis
Support Group: Heart & Blood Health
Posted: Jan 7, 2017
@Predictable Sorry about that. I was trying to make the point that, with the stuff you...
over a thousand recognized forms of Amyloidosis ... , Lupus and more., all part of the Amyloidosis
Discussion: Stiff Heart
Support Group: Heart & Blood Health
Posted: Dec 20, 2017
@naturegirl53 A lot of what you are saying about yourself sounds like me, hereditary Gelsolin Amyloidosis...
sounds like me, hereditary Gelsolin Amyloidosis ... sent to ARUP or Mayo-Quant, or Boston Amyloidosis
Support Group: Digestive Health
Posted: Sep 11, 2018
An insightful message. I was diagnosed of HoCM in February 2022. I started taking medicines like...
the prognostic significance of AL Amyloidosis ... I was diagnosed of AL Amyloidosis in ... Dr) Satish Chandra Facilitator of Amyloidosis
Support Group: Heart & Blood Health
Posted: Mar 3, 2024
@750scar78 Hi, 750... Your note caught my eye just now, and I could not resist answering,...
systemic hereditary form of TransThyRetin Amyloidosis ... Some say it is part of the Amyloidosis ... story at https://bit.Ly/1w7j4j8 under "Amyloidosis
Support Group: Autoimmune Diseases
Posted: Jan 27, 2018
@lisamarie81 Hi, Lisa. We are regularly chewed out when we try to help the diagnosis along,...
First, get info on Amyloidosis, particularly ... story at https://bit.Ly/1w7j4j8 in the Amyloidosis ... Finally, look on the Mayo site for Amyloidosis
for @micheledeville When I went to to Mayo-AZ, things were very different. I went there having...
to learn as much as I could about amyloidosis ... We cannot rule out AL (light chain) amyloidosis ... other systemic, primary, familiar" amyloidosis
Support Group: Chronic Pain
Posted: May 26, 2017
Hi @beaudog, waiting for a diagnosis and treatment is always such a challenging time. I’m sure...
what Mayo Clinic shares about Cardiac Amyloidosis ... www.mayoclinic.org/departments-centers/cardiac-amyloidosis-clinic ... The first link is regarding Cardiac Amyloidosis ... /connect.mayoclinic.org/discussion/amyloidosis
Hey!!! I have the same stuff, but I know what mine is. These are marks of...
of Gelsolin, or also called Finnish Amyloidosis ... GSN is part of Amyloidosis, part of
Support Group: Autoimmune Diseases
Posted: May 26, 2022