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833 total results
Comments (763)
This scan can be used to find out if you have a rare disease called cardiac...
https://connect.mayoclinic.org/comment/754823/
have a rare disease called cardiac amyloidosis
the reason for him to go on PD is that it is a lesser strain on...
https://connect.mayoclinic.org/comment/215025/
than Hemodialysis, which is what the amyloidosis
In my case the entire left side of my heart increased over several years. My breathing...
https://connect.mayoclinic.org/comment/1343603/
but I'm now I also have Cardiac Amyloidosis
@Predictable Sorry about that. I was trying to make the point that, with the stuff you...
https://connect.mayoclinic.org/comment/169814/
over a thousand recognized forms of Amyloidosis ... , Lupus and more., all part of the Amyloidosis
Another note. Those periodic haematuria episodes are a by-product of AL Amyloidosis. And it is very...
https://connect.mayoclinic.org/comment/161999/
haematuria episodes are a by-product of AL Amyloidosis
@naturegirl53 A lot of what you are saying about yourself sounds like me, hereditary Gelsolin Amyloidosis...
https://connect.mayoclinic.org/comment/51158/
sounds like me, hereditary Gelsolin Amyloidosis ... sent to ARUP or Mayo-Quant, or Boston Amyloidosis
@desperada Hi, Desperada, I, too, have been diagnosed with Bronchiectasis, Chronic. NIH and Mayo (Morie Gertz)...
https://connect.mayoclinic.org/comment/212554/
an obligate sign for some forms of Amyloidosis ... Mine is a Lite Chain form of Amyloidosis
I have Light Chain Amyloidosis and the nature of this rare form is it attacks your...
https://connect.mayoclinic.org/comment/1293926/
I have Light Chain Amyloidosis and the
Are all MGUS, Smoldering Myeloma and Myeloma patients tested for Amyloidosis at outset/initial evaluation? or must...
https://connect.mayoclinic.org/comment/381169/
Myeloma and Myeloma patients tested for Amyloidosis
I consulted with three specialists - one at Mayo Clinic. All are MGUS/MM specialists. Even though...
https://connect.mayoclinic.org/comment/770463/
tests, related to but not MM, such as amyloidosis
An insightful message. I was diagnosed of HoCM in February 2022. I started taking medicines like...
https://connect.mayoclinic.org/comment/1026506/
the prognostic significance of AL Amyloidosis ... I was diagnosed of AL Amyloidosis in ... Dr) Satish Chandra
Facilitator of Amyloidosis
@750scar78 Hi, 750... Your note caught my eye just now, and I could not resist answering,...
https://connect.mayoclinic.org/comment/176781/
systemic hereditary form of TransThyRetin Amyloidosis ... Some say it is part of the Amyloidosis ... story at https://bit.Ly/1w7j4j8 under "Amyloidosis
@lisamarie81 Hi, Lisa. We are regularly chewed out when we try to help the diagnosis along,...
https://connect.mayoclinic.org/comment/186222/
First, get info on Amyloidosis, particularly ... story at https://bit.Ly/1w7j4j8 in the Amyloidosis ... Finally, look on the Mayo site for Amyloidosis
for @micheledeville When I went to to Mayo-AZ, things were very different. I went there having...
https://connect.mayoclinic.org/comment/95461/
to learn as much as I could about amyloidosis ... We cannot rule out AL (light chain) amyloidosis ... other systemic, primary, familiar" amyloidosis
Hi @beaudog, waiting for a diagnosis and treatment is always such a challenging time. I’m sure...
https://connect.mayoclinic.org/comment/726192/
what Mayo Clinic shares about Cardiac Amyloidosis ... www.mayoclinic.org/departments-centers/cardiac-amyloidosis-clinic ... The first link is regarding Cardiac Amyloidosis ... /connect.mayoclinic.org/discussion/amyloidosis
I have complete faith in Mayo Clinic…. I am here today by the Grace Of God...
https://connect.mayoclinic.org/comment/759217/
I had a stem cell transplant for Amyloidosis
@boomerexpert It is simple. If you get hereditary Gelsolin Amyloidosis, you will, as part of it,...
https://connect.mayoclinic.org/comment/65362/
If you get hereditary Gelsolin Amyloidosis
Anonymous: Relative to previous question about solid organ transplant and familial amyloidosis, concern is about wild...
https://connect.mayoclinic.org/comment/381217/
solid organ transplant and familial amyloidosis
Hi @annierae, Thank you so much for the update. I too, am glad that you don't...
https://connect.mayoclinic.org/comment/103099/
be concerned with the diagnosis of amyloidosis
@lisal64 .. Actually, yours seems to be a rather typical story. The part many folks don't...
https://connect.mayoclinic.org/comment/661954/
I have MM>Amyloidosis>Gelsolin ... gives a clue to Gelsolin (Finnish Amyloidosis
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