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Comments (3,278)

Hi Rachel I have a hemiplegic migrain from more tham 10 years and it causea sever...

https://connect.mayoclinic.org/comment/281895/

The Neuro change the topamax to Botox

Discussion: Unknown Cause or Idiopathic SFN

Support Group: Neuropathy

Posted: Nov 18, 2019

I can only speak through my son's journey, diagnosis at 17 yrs. They thought it was...

https://connect.mayoclinic.org/comment/280796/

Do you have level 4 neuro clinic for

Discussion: Reoccurring unexplained loss of consciousness

Support Group: Epilepsy & Seizures

Posted: Oct 28, 2019

Thank you so much, Becky! I am glad you have finally received a diagnosis and hope...

https://connect.mayoclinic.org/comment/280214/

I am trying to remain hopeful the neuro

Discussion: Autoimmune encephalopathy anyone?

Support Group: Autoimmune Diseases

Posted: Oct 28, 2019

Hello, I had a 6.8cm pheochromocytoma and had a right adrenalectomy March 17th. My scans do...

https://connect.mayoclinic.org/comment/846343/

Do I need a neuro endocrine tumor specialist

Discussion: What do I need to know about NETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 20, 2023

I tried taking a half of Quilpta last night before bed and no headache. Now we...

https://connect.mayoclinic.org/comment/848173/

can only get samples of it from my neuro

Discussion: Chronic severe nocturnal hypnic headaches

Support Group: Sleep Health

Posted: Apr 23, 2023

Thanks. I started LDN about a month ago and, now at 4.5 mg, appears to be...

https://connect.mayoclinic.org/comment/849109/

She also put in for a neuro consult

Discussion: Was just diagnosed with glaucoma, need support!

Support Group: Eye Conditions

Posted: Apr 25, 2023

@jwr - You asked me what I feel is helpful. The short answer is I go...

https://connect.mayoclinic.org/comment/836022/

According to my neuro doc, my PN seems

Discussion: Idiopathic Polyneuropathy: My endless journey to a near-diagnosis …

Support Group: Neuropathy

Posted: Apr 2, 2023

My rehabilitative and physical medicine specialist and my gynecologist refer me to pelvic floor PT. I...

https://connect.mayoclinic.org/comment/845983/

building strength (stamina) by a neuro-PT ... PT until I finished working with neuro-PT

Discussion: Low Back Pain May Be Sacroiliac Joint Inflammation, Special Treatment

Support Group: Bones, Joints & Muscles

Posted: Apr 19, 2023

@ray666 - Well you are certainly getting many helpful suggestions. Mind if I chime in?? Here...

https://connect.mayoclinic.org/comment/850454/

I stopped at two, both were neuro. ... when it came to small nerves, etc neuro

Discussion: "Rubbery" Legs?

Support Group: Neuropathy

Posted: Apr 27, 2023

They do think depakote is culprit, hadn’t had a seizure for 2 months when blood was...

https://connect.mayoclinic.org/comment/850457/

I do recall pediatric Neuro had him

Discussion: Blood test shows very High ammonia 78 high normal is 30.

Support Group: Epilepsy & Seizures

Posted: Apr 27, 2023

Hey! I am wondering if I have that. I have crazy ithing a stabbing all through...

https://connect.mayoclinic.org/comment/851149/

My neuro thinks it is SFN though. ... But neither neuro nor spinal surgeon

Discussion: Cervical myelopathy mistaken for neuropathy

Support Group: Neuropathy

Posted: Apr 28, 2023

Hi It's a good idea to see a neuro it could be a form of epilepsy...

https://connect.mayoclinic.org/comment/852195/

Hi It's a good idea to see a neuro

Discussion: Headache / Dizziness - HELP

Support Group: Brain & Nervous System

Posted: Apr 30, 2023

Thanks for the empathy - it is very frustrating. I've researched sarcomas extensively, as well as...

https://connect.mayoclinic.org/comment/852230/

sarcomas extensively, as well as NETs (neuro-endocrine

Discussion: Soft-Tissue Masses Not Diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 30, 2023

I become exhausted after phys exertion, too; however, my main concern in flying is Neuro fatigue....

https://connect.mayoclinic.org/comment/853278/

however, my main concern in flying is Neuro

Discussion: Airplane flight while still recovering from long haul COVID?

Support Group: Post-COVID Recovery & COVID-19

Posted: May 2, 2023

Sorry for all you guys are going through. Ask if an EMG test might give insight...

https://connect.mayoclinic.org/comment/853807/

rheumatologist was the one that steered me to neuro

Discussion: My wife has autoimmune disease. She has inflammation in legs and arms.

Support Group: Autoimmune Diseases

Posted: May 3, 2023

I am still going through withdrawal off of Lyrica that was compounded by being misdiagnosed almost...

https://connect.mayoclinic.org/comment/855289/

doctors that I have had over 15 yrs(neuro

Discussion: Endless withdrawal from benzos and pregabalin

Support Group: Addiction & Recovery

Posted: May 6, 2023

@terri672 As I said in my previous post, the disc replacement was the suggestion of my...

https://connect.mayoclinic.org/comment/224689/

done by an orthopedic surgeon or neuro

Discussion: Does any one have problems with fusion surgery in the neck?

Support Group: Spine Health

Posted: Nov 9, 2018

Hi, I am 63 yr old female and have been reading the boards relative to effexor...

https://connect.mayoclinic.org/comment/327978/

initial MRI in June, request referral to neuro

Discussion: New to living with Mild Cognitive Impairment (MCI)

Support Group: Brain & Nervous System

Posted: Nov 20, 2020

Have you considered a Lyme test? Has your PCP offered any tests, say, for autoimmunity, or...

https://connect.mayoclinic.org/comment/858998/

Another neuro?

Discussion: Need some insight. Cannot see neurologist for 7 months.

Support Group: Brain & Nervous System

Posted: May 12, 2023

Sorry to hear what you are going through. First question: Was your MRI a Neuro-MRI? A...

https://connect.mayoclinic.org/comment/859602/

First question: Was your MRI a Neuro-MRI ... A Neuro-MRI is a special type of MRI

Discussion: MRI was useless detecting anything relevant for neuropathy in feet.

Support Group: Neuropathy

Posted: May 14, 2023