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446 total results
Comments (422)
Both of my sons were diagnosed with CEBV and CFS/ME. It permanently changed the paths of...
https://connect.mayoclinic.org/comment/135032/
sons were diagnosed with CEBV and CFS ... /ME. ... you need a doctor specializing in CFS ... /ME that WILL listen and help! ... /ME.
Discussion: Treatment for chronic Epstein-Barr virus (EBV)
Support Group: Infectious Diseases
Posted: Jun 16, 2018
First, let me start off by saying— I am not a doctor. I work in the...
https://connect.mayoclinic.org/comment/827738/
First, let me start off by saying— I ... mentions the sella is filled with CFS
Discussion: Brain MRI Help
Support Group: Brain & Nervous System
Posted: Mar 17, 2023
RE: Mg... i get mine usu. @ Costco too. They are Extra St 400 mg tabs...
https://connect.mayoclinic.org/comment/102905/
I hope she didn’t mind me asking ? ... Osteo Arthritis on top of Fibro & CFS
Discussion: Restless Leg Syndrome
Support Group: Sleep Health
Posted: Apr 16, 2020
I sympathize with your son. I came down with mono twice approximately eight months apart when...
https://connect.mayoclinic.org/comment/733044/
etc… Here’s what finally helped me ... Google B12 injections , good responders CFS ... took in the study I read on B12 and CFS ... that the EBV virus is what caused me ... A friend gave me a B13 shot, I felt
Discussion: Treatment for chronic Epstein-Barr virus (EBV)
Support Group: Infectious Diseases
Posted: Aug 1, 2022
@sparkysparks I thought the same thing as John, B6. My wife, who has PN, has always...
https://connect.mayoclinic.org/comment/271359/
I must say you sure had me doing a lot ... mention, much of which were new words to me ... their firsthand experiences with BFS/CFS
Discussion: Peripheral Neuropathy and benign fasciculation syndrome.
Support Group: Neuropathy
Posted: Oct 4, 2020
Hi, this sounds a bit like post-covid/long covid to me, or MF/CFS. I'd also like to...
https://connect.mayoclinic.org/comment/973244/
bit like post-covid/long covid to me ... , or MF/CFS. ... assumption a doctor who also tried to rip me
Discussion: I am losing hope, drs have no answers for me…
Support Group: Women's Health
Posted: Dec 1, 2023
Hi @lisalucier, Thank you for responding. I do hope @johnbishop might have some helpful input. I've...
https://connect.mayoclinic.org/comment/167762/
thought it could be something like CFS ... /ME, but her response made it clear ... could even find a doctor who treated ME ... The first told me I'm in pain because
Discussion: What can cause ANA titre of 1:2560?
Support Group: Autoimmune Diseases
Posted: Sep 19, 2017
Thankyou so much for responding!Someone else had mentioned MCAS too.It is definitely possible that it is...
https://connect.mayoclinic.org/comment/1015392/
involved in what is going on with me.I ... they said it was negative.He told me ... that he would have to diagnose me with ... CFS even though all of my symptoms ... don't match up.I think CFS is a
Discussion: No Doctor can figure out what is wrong with me
Support Group: Infectious Diseases
Posted: Feb 13 11:32pm
Sorry I don't know what happened. I didn't hit post yet I wasn't done. Anyway I...
https://connect.mayoclinic.org/comment/119111/
mono, Epstein Barr virus and then cfs ... university that was doing research on CFS ... so they had tested me for everything ... I take modafinil to keep me awake.
Discussion: Fibromyalgia pain: Let's connect
Support Group: Fibromyalgia
Posted: Feb 21, 2018
Agreed, that was very misleading of them and extremely unhelpful. I’ve dealing and living with serious...
https://connect.mayoclinic.org/comment/897630/
dealing and living with serious cases of CFS ... I’ve found to be efficacious for me ... therapy or protocol to measurably assist me ... They’ve not only served me well by have ... became Ill and totally debilitated from CFS
Discussion: Fibromyalgia diagnosis and online classes
Support Group: Fibromyalgia
Posted: Jul 17, 2023
Hello Ellyons87…….Firstly, you are not imagining any of the symptoms you are feeling and describing. More...
https://connect.mayoclinic.org/comment/917237/
personally experiencing and debilitated by CFS ... /ME & FIBROMYALGIA for the past ... symptoms I was directly experiencing from CFS ... /ME and FIBROMYALGIA. ... You may write to me at anytime if I
Discussion: So confused - fibromyalgia and bones aching severely
Support Group: Fibromyalgia
Posted: Aug 22, 2023
Hello Dave, I am 69 years old and was diagnosed with PC in August of 2022...
https://connect.mayoclinic.org/comment/976055/
detectable cancer was a concern to me ... ’ve been severely debilitated from CFS ... loss of everything “TRT” provides me ... disabilities, it would be very difficult for me ... which would have been prescribed for me
Discussion: SBRT vs. Robot-assisted radical prostatectomy
Support Group: Prostate Cancer
Posted: Dec 6, 2023