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861 total results
Comments (787)
FDA approves polyneuropathy treatment for adults The FDA has approved Amvuttra, an RNA interference therapeutic for...
https://connect.mayoclinic.org/comment/717559/
hereditary transthyretin-mediated amyloidosis ... hereditary transthyretin-mediated (hATTR) amyloidosis ... unmet medical needs, such as hATTR amyloidosis ... the release, 164 patients with hATTR amyloidosis ... making Amvuttra a reality for the hATTR amyloidosis
Discussion: Living with Neuropathy - Welcome to the group
Support Group: Neuropathy
Posted: Jun 14, 2022
Welcome to Mayo Connect. I was diagnosed with WM in 2014. I am an IWMF (International...
https://connect.mayoclinic.org/comment/624405/
WM let alone a second diagnosis of Amyloidosis ... specialists who also specialize in Amyloidosis
Discussion: Waldenstroms and amyloidosis
Support Group: Blood Cancers & Disorders
Posted: Aug 8, 2021
@aman_23_23 Sad to say, you are experiencing what most of us with an rare autoimmune disease...
https://connect.mayoclinic.org/comment/101817/
First, you probably have some for of Amyloidosis ... Karl" Mine is hereditary Gelsolin Amyloidosis ... Hospital of Helsinki, Finland, Boston Amyloidosis
Discussion: Terrible fatigue for months, positive ANA
Support Group: Autoimmune Diseases
Posted: Sep 22, 2018
Sorry for what you both have been going through, it is stressful and frustrating. I hear...
https://connect.mayoclinic.org/comment/874734/
special tests diagnosed him with CARDIAC AMYLOIDOSIS ... marrow biopsy to confirm what type of Amyloidosis ... Amyloidosis is overlooked and it can
Discussion: Diarrhea, joint/muscle pain, nausea, lightheaded, night sweats, etc.
Support Group: Digestive Health
Posted: Jun 8, 2023
I know I say this a lot on these groups. "Stiff heart." and other such issues...
https://connect.mayoclinic.org/comment/102948/
, mine is apparently part of my AL Amyloidosis ... , Or another sort of Amyloidosis, and ... have found many MDs who will say "All amyloidosis
Discussion: Stiff Heart - diastolic heart failure
Support Group: Heart & Blood Health
Posted: Jan 14, 2017
@reagan1mc Hi, Reagan. First, Welcome. 2nd, You have bought a tough one. MCCD is one of...
https://connect.mayoclinic.org/comment/170421/
matter of what is MCCD and what is Amyloidosis ... of MCCD as the beginning stages of Amyloidosis ... Morey Gertz, of Mayo, Amyloidosis Diagnosis ... actually calls MCCD a mutation of Amyloidosis
Discussion: Connective tissue auto immune
Support Group: Autoimmune Diseases
Posted: Dec 29, 2017
Thought I would share this upcoming webinar - looks to be interesting for a lot of...
https://connect.mayoclinic.org/comment/1491593/
a special focus on hereditary ATTR amyloidosis ... R., who lives with hereditary ATTR amyloidosis
Discussion: Why only limited diagnosis of cusses or PN?
Support Group: Neuropathy
Posted: Jan 27 7:50am