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833 total results
Comments (763)
My husband has been diagnosis with wild amyloidosis. We live in NJ. I would like to...
https://connect.mayoclinic.org/comment/380266/
husband has been diagnosis with wild amyloidosis
Had Rituxan and Bendamustine for MZL ,and was discontinued after two cycles due tom intolerance. Oncologist...
https://connect.mayoclinic.org/comment/845626/
for persistent Afib with cardiac amyloidosis
Thank you - I just got the results on the heart biopsy and it says "no...
https://connect.mayoclinic.org/comment/1197939/
the heart biopsy and it says "no amyloidosis
Yes. The physicians are looking for the type of Amyloid my husband has. He was diagnosed...
https://connect.mayoclinic.org/comment/910069/
He was diagnosed with Cardiac Amyloidosis
@ling123 Actually, all the diseases I mentioned are part of the Amyloidosis Light Chain system. There...
https://connect.mayoclinic.org/comment/212565/
diseases I mentioned are part of the Amyloidosis
Hello! Countrygirlusa here! It has been a while since I have written anything on this forum....
https://connect.mayoclinic.org/comment/1282662/
I received my SCT for AL Amyloidosis ... anyone who has been diagnosed with Amyloidosis
My husband has been suffering of weakness in whole body, edema in legs dizziness, low heart...
https://connect.mayoclinic.org/comment/871029/
where he was diagnosed with Cardiac Amyloidosis ... anyone being diagnosed with Cardiac Amyloidosis
@bonniecanby You should know that the symptoms you mention, anemia, pvc's and lots of pain, are...
https://connect.mayoclinic.org/comment/74558/
pvc's and lots of pain, are typical amyloidosis ... Morey Gertz of Mayo, and the Amyloidosis
I had a diagnosis in April 2011 of AL amiloidosis with one organ involved, my liver....
https://connect.mayoclinic.org/comment/88301/
had a diagnosis in April 2011 of AL amiloidosis ... a great pathologist who suspected amyloidosis ... has led to my diagnostic of amyloidosis
@fransav .. I went hunting .. I do NOT know if this related .. I am...
https://connect.mayoclinic.org/comment/60908/
yourself checked for some form of amyloidosis ... doctor you see is not experienced with amyloidosis ... Call the amyloidosis foundation or Mayo ... http://www.amyloidosis.org/
NavyLady, I recognize your problem, but I cannot do much about it but give some simple...
https://connect.mayoclinic.org/comment/209975/
samples to Mayo-MN to have it tested for Amyloidosis ... decisions that Mayo had confirmed I had no Amyloidosis ... could not rule out other Light Chain Amyloidosis
Hi I am on a similar treatment for AL amyloidosis kappa light chain. My treatment includes...
https://connect.mayoclinic.org/comment/1205328/
I am on a similar treatment for AL amyloidosis
@nanook1970 Just a little addition. Diarrhea and constipation swapping with each other are a very common...
https://connect.mayoclinic.org/comment/50839/
common symptom of several forms of Amyloidosis
I am having tremors in the hands, arms and legs which leads to falling down. I...
https://connect.mayoclinic.org/comment/104728/
have tremors and falling issues with Amyloidosis
Hi Edda, One can get scared reading about symptoms, side effects and diagnoses on the Internet....
https://connect.mayoclinic.org/comment/182462/
Amyloidosis (OldKarl's diagnosis) is ... www.mayoclinic.org/diseases-conditions/amyloidosis ... Nearly 70 percent of people with AL amyloidosis ... you're still worried about having amyloidosis
@grokking LA Sorry to hear about what you have, but don't be too upset. Truth is,...
https://connect.mayoclinic.org/comment/194230/
available from Mayo, NIH, Alnylam, Boston Amyloidosis ... at https://www.bit.Ly/1w7j4j8 "Amyloidosis ... about 10 years old, and expensive, is Amyloidosis
I have been following several who are taking Camzyos but I have never been prescribed this...
https://connect.mayoclinic.org/comment/1395697/
However I now have Cardiac Amyloidosis ... dealing with the HOCM but this Cardiac Amyloidosis
Hi. I have been using a Philips System One CPAP for about 12 years and just...
https://connect.mayoclinic.org/comment/660227/
tests indicating possible light chain amyloidosis
@ske22 Looks very much like my Gelsolin (AKA Finnish Amyloidosis) and/or Fukatin Limb Girdle Muscular Dystrophy.....
https://connect.mayoclinic.org/comment/337577/
much like my Gelsolin (AKA Finnish Amyloidosis
I have been recently diagnosed with AL Amyloidosis in March 2019. I was experiencing swelling of...
https://connect.mayoclinic.org/comment/88329/
have been recently diagnosed with AL Amyloidosis ... The diagnosis of Amyloidosis was made
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