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355 total results

Comments (305)

Check out Waldenstrom. Related to high protein M spike.

https://connect.mayoclinic.org/comment/977417/

Check out Waldenstrom.

Discussion: Should I be worried about my MGUS diagnosis and my M Spike rising?

Support Group: Blood Cancers & Disorders

Posted: Dec 8, 2023

Welcome @sagenest. It sounds like your diagnosis of Waldenstrom's is being managed by active surveillance or...

https://connect.mayoclinic.org/comment/963733/

It sounds like your diagnosis of Waldenstrom ... post to this existing discussion: - Waldenstrom ... /connect.mayoclinic.org/discussion/waldenstrom

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Nov 12, 2023

Hello 1oldsoul and thanks for the response. You asked about the determining factor from my biopsy...

https://connect.mayoclinic.org/comment/923949/

diagnosis of lymphoplasmacytic lymphoma / Waldenstrom

Discussion: Should Waldentrom's Patients Get Flu Shots?

Support Group: Blood Cancers & Disorders

Posted: Sep 4, 2023

@trixie1, recently (Jan 2023) the FDA approved zanubrutinib (Brukinsa) for the treament of chronic lymphocytic leukemia...

https://connect.mayoclinic.org/comment/912886/

lymphoma, marginal zone lymphoma and Waldenström

Discussion: Any new treatments for SMZL? What do you take for maintenance?

Support Group: Blood Cancers & Disorders

Posted: Aug 14, 2023

Hello Lori and group, IVIG infusions continue for autoimmune condition. Receiving every 3 weeks on a...

https://connect.mayoclinic.org/comment/912685/

weeks on a different schedule from Waldenstrom ... For Waldenstrom treatment I’m receiving

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Aug 14, 2023

I am sorry your husband is experiencing pleural effusion while taking Ibrutinib. I was on Ibrutinib...

https://connect.mayoclinic.org/comment/902391/

. - International Waldenstrom’s Macroglobulinemia

Discussion: With Waldenstrom, what side effects did you have with ibrutinib?

Support Group: Blood Cancers & Disorders

Posted: Jul 26, 2023

I’m 72, I was diagnosed with Waldenstrom’s Macroglobulinemia (malignant lymphoplasmacitic lymphoma) a year ago. During the...

https://connect.mayoclinic.org/comment/859945/

I’m 72, I was diagnosed with Waldenstrom

Discussion: Gleason 9: ADT before radiation

Support Group: Prostate Cancer

Posted: May 14, 2023

Hi @belcar45, "The liver is the largest organ in the human body. During development, liver size...

https://connect.mayoclinic.org/comment/856094/

While Waldenström's macroglobulinemia

Discussion: Waldenstrom’s Macroglobulinemia Liver size?

Support Group: Blood Cancers & Disorders

Posted: May 7, 2023

I also recently receive a diagnosis of Walderstrom’s. I am monitoring my lab work but you...

https://connect.mayoclinic.org/comment/786973/

also recently receive a diagnosis of Walderstrom

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 20, 2022

I was just diagnosed with Waldenstrom’s and my first appointment at Mayo in Phoenix is the...

https://connect.mayoclinic.org/comment/762008/

I was just diagnosed with Waldenstrom

Discussion: What’s the science on diet and MGUS/SMM?

Support Group: Blood Cancers & Disorders

Posted: Oct 16, 2022

Hi Dana, the only thing they could do to save me from my heart failing is...

https://connect.mayoclinic.org/comment/737073/

because my blood is progressing into Waldenstrom ... because my blood is progressing into Waldenstrom

Discussion: Heart Rhythm Conditions – Welcome to the group

Support Group: Heart Rhythm Conditions

Posted: Aug 13, 2022

I understand your concern for you son and the trauma of seeing your body failing you....

https://connect.mayoclinic.org/comment/736360/

be developing a very rare form of Waldenstrom

Discussion: Follicular Lymphoma: looking to connect with others

Support Group: Blood Cancers & Disorders

Posted: Aug 11, 2022

@becky1024 I have been on low dose chemo since last August. The low dose is because...

https://connect.mayoclinic.org/comment/731696/

what Mayo Clinic has to say about Waldenstrom ... www.mayoclinic.org/diseases-conditions/waldenstrom-macroglobulinemia

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Jul 28, 2022

I find your post informative because I was diagnosed with MGUS in 2019. It’s a blood...

https://connect.mayoclinic.org/comment/729097/

into Non Hodgkin’s Lymphoma or worse Waldenstrom

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jul 21, 2022

What’s your classification IgA, IgG or I’m Kappa light chain IgM MGUS. My older brother James...

https://connect.mayoclinic.org/comment/728931/

Non Hodgkin’s Lymphoma or possibly Waldenstrom

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Jul 20, 2022

Hello my name is Mariana and my children's father was diagnosed with Waldenstrom this month. He...

https://connect.mayoclinic.org/comment/691625/

children's father was diagnosed with Waldenstrom

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Mar 21, 2022

Welcome, Beverly. Being told you have lymphoma and the treatment is watch and wait can be...

https://connect.mayoclinic.org/comment/680909/

lymphoma (LPL) is sometimes called Waldenström ... See here: - Waldenstrom macroglobulinemia ... /connect.mayoclinic.org/discussion/waldenstrom

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Feb 14, 2022

I was diagnosed with Waldenstrom macroglobulinemia July of 2021. I went to the emergency room for...

https://connect.mayoclinic.org/comment/663018/

I was diagnosed with Waldenstrom macroglobulinemia ... sent to Mayo, it was determined I had Waldenstrom

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2021

Hi, my goodness, your husband has a lot going on right now and you too, as...

https://connect.mayoclinic.org/comment/624876/

Waldenstrom and marginal zone lymphoma ... for complications of the lymphoma/Waldenstrom