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Comments (968)

@bjbates53 Have you had this severe fatigue since you were first diagnosed? Has it gotten worse?...

https://connect.mayoclinic.org/comment/938290/

cidp-chronic-inflammatory-demylinating-polyneuropathy

Discussion: CIDP/GBS

Support Group: Autoimmune Diseases

Posted: Sep 28, 2023

Has anyone had any experience with axonal sensory Polyneuropathy? I have been to two neurologist with...

https://connect.mayoclinic.org/comment/1050925/

experience with axonal sensory Polyneuropathy

Discussion: Sensory axonal polyneuropathy Results

Support Group: Neuropathy

Posted: Apr 15 4:57am

I do experience the never ending buzzing vibrations. I had a core sample done a few...

https://connect.mayoclinic.org/comment/1149089/

I was diagnosed with peripheral polyneuropathy

Discussion: Has anyone experienced internal vibrations?

Support Group: Brain & Nervous System

Posted: Sep 29 9:04am

I have Polyneuropathy and have had it for 6 years. I have been asked to be...

https://connect.mayoclinic.org/comment/728507/

I have Polyneuropathy and have had it

Discussion: Diagnosed with moderate/severe poly neuropathy: sensory motor

Support Group: Neuropathy

Posted: Jul 19, 2022

As an Aquatherapy fan for my polyneuropathy, I struggle in and out of swim suits with...

https://connect.mayoclinic.org/comment/806215/

As an Aquatherapy fan for my polyneuropathy

Discussion: Swim Suits for Neuropathy Hands

Support Group: Neuropathy

Posted: Feb 4, 2023

@luvpsu10, I know you're not alone with your feeling about starting new medications when it comes...

https://connect.mayoclinic.org/comment/836036/

. -- Axonal Sensorimotor Polyneuropathy

Discussion: Looking to connect with people who have non-diabetic neuropathy

Support Group: Neuropathy

Posted: Apr 2, 2023

I am a 55 year old active male and after first getting PN last April with...

https://connect.mayoclinic.org/comment/839700/

was diagnosed with idiopathic axonal polyneuropathy

Discussion: Dramatic small sensory nerve loss -EDS/autoimmune cause? Need ATLrheum

Support Group: Autoimmune Diseases

Posted: Apr 8, 2023

Thanks so much for your reply. Your experience with the spinal stimulator is very interesting. I...

https://connect.mayoclinic.org/comment/158639/

is my Portal Idiopathic Progressive Polyneuropathy

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Jun 8, 2020

Thanks, If it were me, I might be asking him why does he think it's neuropathy....

https://connect.mayoclinic.org/comment/639626/

neuropathy/tests-diagnosing-small-fiber-polyneuropathy

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Sep 27, 2021

@cyp238ress If you have elevate proteins in your spinal fluid, you may be at early stages...

https://connect.mayoclinic.org/comment/1110410/

chronic inflammatory demyelinating polyneuropathy

Discussion: MULTI-LEVEL CERVICAL DDD - SHARE INSIGHTS ON SURGERY PLEASE!!!

Support Group: Spine Health

Posted: Jul 23 10:08am

Hi @summertime4 My understanding is that peripheral neuropathy is what all neuropathy is called that is...

https://connect.mayoclinic.org/comment/159169/

So you can have polyneuropathy (many

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Nov 4, 2020

@penn I also have been diagnosed with small fiber neuropathy and sensory Polyneuropathy. My rheumatologist thinks...

https://connect.mayoclinic.org/comment/1062874/

small fiber neuropathy and sensory Polyneuropathy

Discussion: Does anyone find that a type of shoe helps your foot neuropathy?

Support Group: Neuropathy

Posted: May 5 8:01pm

@hiroko right now I cannot walk very far. My legs are getting weak from severe polyneuropathy....

https://connect.mayoclinic.org/comment/922584/

legs are getting weak from severe polyneuropathy

Discussion: What are your tips for staying independent at your own home?

Support Group: Aging Well

Posted: Sep 1, 2023

My husband was just told he has "Distal Sensory Axonal Polyneuropathy", by his fourth neurologist this...

https://connect.mayoclinic.org/comment/771261/

he has "Distal Sensory Axonal Polyneuropathy ... Chronic Inflammatory Demyelinating Polyneuropathy

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Nov 9, 2022

I was diagnosed with MGUS 2012 and only use haematologists for blood tests, MR scans and...

https://connect.mayoclinic.org/comment/781489/

I also have polyneuropathy and heart ... So far I feel, that the polyneuropathy

Discussion: MGUS monitoring: What tests do you have done regularly?

Support Group: Blood Cancers & Disorders

Posted: Dec 6, 2022

Hi @maddholly, Welcome to Connect. I have idiopathic small fiber PN. Once I found out alcohol...

https://connect.mayoclinic.org/comment/158021/

Alcoholic Polyneuropathy Issues &amp ... - https://www.alcohol.org/comorbid/polyneuropathy

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Oct 28, 2019

I was diagnosed with MDS/MPN-RS-T in 2018. I have three mutations -JAK2, SRFS2 and IDH1-R132H. My...

https://connect.mayoclinic.org/comment/1042552/

also have Chronic Sensorimotor Axonal Polyneuropathy ... is worse - the blood cancer or the polyneuropathy

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Mar 30 7:06am

Yes- Along with my other symptoms of non- length dependent polyneuropathy - The acute attacks plus...

https://connect.mayoclinic.org/comment/1177856/

symptoms of non- length dependent polyneuropathy

Discussion: Small Fiber Neuropathy

Support Group: Neuropathy

Posted: Nov 22 5:50am

FDA approves polyneuropathy treatment for adults The FDA has approved Amvuttra, an RNA interference therapeutic for...

https://connect.mayoclinic.org/comment/717559/

FDA approves polyneuropathy treatment ... interference therapeutic for the treatment of polyneuropathy ... transthyretin-mediated (hATTR) amyloidosis with polyneuropathy ... of care for people living with the polyneuropathy

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Jun 14, 2022

Hi Karen, that must be frustrating when the optician couldn't help explain your symptom of your...

https://connect.mayoclinic.org/comment/708860/

10987654321 also have eye issues along with polyneuropathy

Discussion: Eyes and Neuropathy

Support Group: Eye Conditions

Posted: May 16, 2022