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826 total results
Comments (757)
My diagnosis, AL Amyloidosis with cardiac involvement, GI tract and peripheral/autonomic nervous system, My most problematic...
https://connect.mayoclinic.org/comment/381157/
My diagnosis, AL Amyloidosis with cardiac
So appreciate this! I'll be starting treatment for MGNS + amyloidosis shortly, which will reduce further...
https://connect.mayoclinic.org/comment/1034668/
ll be starting treatment for MGNS + amyloidosis
@Hi, Teresa. No, not much treatment, I think, other than tape to the next toe. Except...
https://connect.mayoclinic.org/comment/92105/
That is the norm in most forms of Amyloidosis
See a hematologist/oncologist who is willing to work with the labs I mentioned elsewhere, or go...
https://connect.mayoclinic.org/comment/149851/
Most Amyloidosis is fatal, but if you
I can't find any doctor near me (Delaware) to treat my amyloidosis lichen type. Johns Hopkins...
https://connect.mayoclinic.org/comment/381221/
doctor near me (Delaware) to treat my amyloidosis
I have never heard of Light Chain Amyloidosis. Could you inform me about this because I've...
https://connect.mayoclinic.org/comment/163067/
I have never heard of Light Chain Amyloidosis
@sousou Hi, Saida. Your statement about more than one doctor finding nothing wrong hit a note...
https://connect.mayoclinic.org/comment/179549/
story free at HTTPS://bit.Ly/1w7j4j8 "Amyloidosis ... I have a form of Amyloidosis. ... "What the doctor should know about Amyloidosis ... Anyway, what you describe fits Amyloidosis ... subject is from Mayo's Morey Gertz, MD, "Amyoidosis
I had IgA kappa MGUS for 8 years, diagnosed this summer with SMM. They tested me...
https://connect.mayoclinic.org/comment/1158835/
They tested me for amyloidosis (fat ... I need a kidney biopsy to rule out amyloidosis ... number of peer-reviewed papers on AL amyloidosis
@kellye5 A suggestion. Check your dX again to whether your autoimmune disorder is systemic or localized....
https://connect.mayoclinic.org/comment/107457/
body is impacted by one or more of my Amyloidosis
@kgoodwin9 Yes to all you said. One thing you should know is that that there over...
https://connect.mayoclinic.org/comment/161427/
that there over 1,000 mutations of Amyloidosis ... good place to start is by reading the Amyloidosis ... I would suggest you read my Amyloidosis
I would love to connect with someone who has MM and amyloidosis like I do just...
https://connect.mayoclinic.org/comment/874406/
connect with someone who has MM and amyloidosis
@margiebanks Hi, Margie One possibility, and probably the most likely thing, is that you got Chronic...
https://connect.mayoclinic.org/comment/65155/
AI package, A form of Light Chain Amyloidosis ... humidity. httpjs://bit.Ly/1w7j4j8 "Amyloidosis
Hello Anonymous, Multiple Myeloma is a cancer of the plasma cells of the bone marrow, while...
https://connect.mayoclinic.org/comment/50124/
plasma cells of the bone marrow, while Amyloidosis ... In patients with amyloidosis, the light
In my case the entire left side of my heart increased over several years. My breathing...
https://connect.mayoclinic.org/comment/1343603/
but I'm now I also have Cardiac Amyloidosis
I did have alcohol septal ablation at Mayo and it did work. I do however still...
https://connect.mayoclinic.org/comment/1314074/
have stiff heart syndrome (cardiac amyloidosis
I am so sorry for what you and your wife are going through. I can relate...
https://connect.mayoclinic.org/comment/978391/
said, “I think that you suffer from Amyloidosis ... husband to get a special CTScan for Amyloidosis ... husband was diagnosed with Cardiac Amyloidosis ... I am not saying that your wife has Amyloidosis ... Amyloidosis is a very tricky condition
The latest (of 5) neurologists took a long shot and tested me for amyloidosis as the...
https://connect.mayoclinic.org/comment/161639/
took a long shot and tested me for amyloidosis ... an indicator of multiple myeloma or amyloidosis
FDA approves polyneuropathy treatment for adults The FDA has approved Amvuttra, an RNA interference therapeutic for...
https://connect.mayoclinic.org/comment/717559/
hereditary transthyretin-mediated amyloidosis ... hereditary transthyretin-mediated (hATTR) amyloidosis ... unmet medical needs, such as hATTR amyloidosis ... the release, 164 patients with hATTR amyloidosis ... making Amvuttra a reality for the hATTR amyloidosis
Good morning, @vmarra, the best thing that’s happened is that your mom is now in the...
https://connect.mayoclinic.org/comment/726680/
information from Mayo Clinic’s site for AL Amyloidosis ... www.mayoclinic.org/diseases-conditions/amyloidosis ... discussions with members who have AL Amyloidosis ... Diagnosed with AL Amyloidosis. ... connect.mayoclinic.org/discussion/diagnosed-with-al-amyloidosis-would-like-to-hear-from-someone-about-what
@olegraymare Hi! Very interested in your list of symptoms and signs. They are classic. For some...
https://connect.mayoclinic.org/comment/108634/
For some forms of Amyloidosis, that ... story free at HTTPS://bit.Ly/1w7j4j8 "Amyloidosis ... I have a form of Amyloidosis. ... "What the doctor should know about Amyloidosis ... Anyway, what you describe fits Amyloidosis
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