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827 total results
Comments (755)
@kgoodwin9 Yes to all you said. One thing you should know is that that there over...
https://connect.mayoclinic.org/comment/161427/
that there over 1,000 mutations of Amyloidosis ... good place to start is by reading the Amyloidosis ... I would suggest you read my Amyloidosis
Discussion: Anyone have the FGFR3 antibody gene?
Support Group: Neuropathy
Posted: Jan 2, 2018
Good morning, @vmarra, the best thing that’s happened is that your mom is now in the...
https://connect.mayoclinic.org/comment/726680/
information from Mayo Clinic’s site for AL Amyloidosis ... www.mayoclinic.org/diseases-conditions/amyloidosis ... discussions with members who have AL Amyloidosis ... Diagnosed with AL Amyloidosis. ... connect.mayoclinic.org/discussion/diagnosed-with-al-amyloidosis-would-like-to-hear-from-someone-about-what
Discussion: Recently diagnosed with AL Amyloidosis: Any advice?
Support Group: Blood Cancers & Disorders
Posted: Jul 14, 2022
@olegraymare Hi! Very interested in your list of symptoms and signs. They are classic. For some...
https://connect.mayoclinic.org/comment/108634/
For some forms of Amyloidosis, that ... story free at HTTPS://bit.Ly/1w7j4j8 "Amyloidosis ... I have a form of Amyloidosis. ... "What the doctor should know about Amyloidosis ... Anyway, what you describe fits Amyloidosis
Discussion: Autoimmune diagnosing problem
Support Group: Autoimmune Diseases
Posted: Jan 5, 2018
@reagan1mc Hi, Reagan. First, Welcome. 2nd, You have bought a tough one. MCCD is one of...
https://connect.mayoclinic.org/comment/170421/
matter of what is MCCD and what is Amyloidosis ... of MCCD as the beginning stages of Amyloidosis ... Morey Gertz, of Mayo, Amyloidosis Diagnosis ... actually calls MCCD a mutation of Amyloidosis
Discussion: Connective tissue auto immune
Support Group: Autoimmune Diseases
Posted: Dec 29, 2017
@kellye5 Your statement about more than one doctor finding nothing wrong hit a note with me....
https://connect.mayoclinic.org/comment/107462/
story free at HTTPS://bit.Ly/1w7j4j8 "Amyloidosis ... I have a form of Amyloidosis. ... "What the doctor should know about Amyloidosis ... Anyway, what you describe fits Amyloidosis ... subject is from Mayo's Morey Gertz, MD, "Amyoidosis
Discussion: Autoimmune Diseases and Fatigue
Support Group: Autoimmune Diseases
Posted: Jan 3, 2018
The latest (of 5) neurologists took a long shot and tested me for amyloidosis as the...
https://connect.mayoclinic.org/comment/161639/
took a long shot and tested me for amyloidosis ... an indicator of multiple myeloma or amyloidosis
Discussion: Kappa Light Chains and PN
Support Group: Neuropathy
Posted: Jul 26, 2017
Welcome to Mayo Connect. I was diagnosed with WM in 2014. I am an IWMF (International...
https://connect.mayoclinic.org/comment/624405/
WM let alone a second diagnosis of Amyloidosis ... specialists who also specialize in Amyloidosis
Discussion: Waldenstroms and amyloidosis
Support Group: Blood Cancers & Disorders
Posted: Aug 8, 2021
I know I say this a lot on these groups. "Stiff heart." and other such issues...
https://connect.mayoclinic.org/comment/102948/
, mine is apparently part of my AL Amyloidosis ... , Or another sort of Amyloidosis, and ... have found many MDs who will say "All amyloidosis
Discussion: Stiff Heart - diastolic heart failure
Support Group: Heart & Blood Health
Posted: Jan 14, 2017
Sorry for what you both have been going through, it is stressful and frustrating. I hear...
https://connect.mayoclinic.org/comment/874734/
special tests diagnosed him with CARDIAC AMYLOIDOSIS ... marrow biopsy to confirm what type of Amyloidosis ... Amyloidosis is overlooked and it can
Discussion: Undiagnosed for years and desperate
Support Group: Digestive Health
Posted: Jun 8, 2023
@aman_23_23 Sad to say, you are experiencing what most of us with an rare autoimmune disease...
https://connect.mayoclinic.org/comment/101817/
First, you probably have some for of Amyloidosis ... Karl" Mine is hereditary Gelsolin Amyloidosis ... Hospital of Helsinki, Finland, Boston Amyloidosis
Discussion: Terrible fatigue for months, positive ANA
Support Group: Autoimmune Diseases
Posted: Sep 22, 2018