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4,144 total results
Comments (3,929)
Hello @ranchan, Welcome to Connect, an online community where patients and caregivers share their experiences, find...
What a great question and one that a ... lot of us who have had neuropathy for ... found that talks about it. "What ... next appointment that she might find helpful ... idiopathic small fiber peripheral neuropathy
Support Group: Neuropathy
Posted: Aug 29, 2021
I also have neuropathy without pain in both my feet (undiagnosed - awaiting dr appt). Just...
I also have neuropathy without pain ... my lower extremities… I don’t know what ... Nice to hear that acupuncture might help
Support Group: Neuropathy
Posted: Aug 2, 2023
Thanks for sharing your istory. You've clearly informed yourself about your condition, and clearly there is...
some positive news about acupuncture helping ... peripheral neuropathy, so I decided ... worked with felt e-stimulation might help ... I don't know what will happen if
Support Group: Neuropathy
Posted: Aug 2, 2023
@richlub I wanted to welcome you to Connect. I'm sorry you are having so much pain...
the worry that comes with wondering what ... It helps get the body better aligned ... Neuropathy - "Myofascial Release ... on my remaining discs, and it may help ... What they told me was it takes 6 weeks
Support Group: Spine Health
Posted: Aug 26, 2023
Only God can predict our end. The doc at Mayo gave me 11 months with chemo...
too, have balance issues due to the neuropathy ... Typing can be an issue since the neuropathy ... I think prayers have helped a lot. ... That started what turned into a whirlwind
I've been blessed with a relatively pain free life until CIDP kicked in. Before that I...
past, I tried all of the traditional neuropathy ... , and Lyrica was the only one that helped ... gradually less and less relief, down to what ... off that on my own to see if it was helping ... health has greatly improved with the help
Support Group: Chronic Pain
Posted: Aug 30, 2023
Hi @missbutterfly2be, You mentioned in an earlier post that you have Parkinson's Disease. While we wait...
. --- Tackling Neuropathy, Fatigue ... //www.parkinson.org/blog/awareness/neuropathy ... --- Numb Feet & Toes: What&#39 ... treatments or topicals to see if they help
Support Group: Autoimmune Diseases
Posted: Sep 2, 2023
Hi Jackie @jackieorr, Welcome to Connect. It can be difficult living with neuropathy and worrying about...
It can be difficult living with neuropathy ... and worrying about what the future ... /neuropathy-overview Here are some ... getting-involved-in-hopes-of-finding-help ... I shared my neuropathy journey in another
Support Group: Neuropathy
Posted: Sep 3, 2023
I have Sjogren's small fiber neuropathy manafesting as sensory ataxia. For over two years now no...
I have Sjogren's small fiber neuropathy ... two years now no one seemed to know what ... , now I need to find programs that help
Oh my, I feel your pain in every word you write. I have gotten to the...
But still no one k ows what has caused ... the peripheral neuropathy. ... I take a little percocet but it helps ... No one is being helped now I believe ... Well I do what I can.
Support Group: Neuropathy
Posted: Sep 4, 2023
I am 49 and was diagnosed with lumbosacral plexopathy in July (which is a rare form...
plexopathy in July (which is a rare form or neuropathy ... I am hopeful they can figure out what ... dosage IV steroids every 2 weeks which help ... My depression also stems from what my ... I feel terrible that they have to help
Support Group: Neuropathy
Posted: Oct 19, 2023
I had been told by one oncologist that "GCA" (Gem+Cis+Abrax) was a particularly nasty combo, but...
GCA for me (hair loss aside) is more neuropathy ... whichever is easiest/closest." What ... my steroid load by 1/3, which has helped ... a lot, filling in the gaps really helps
Support Group: Pancreatic Cancer
Posted: May 3, 2023
I have had long COVID for 3 years. I used to exercise and eat really well....
and beating this is not trying to do what ... This has helped. ... I do have POTS and Neuropathy, GI issues ... have learned breathing exercises that help ... for the smallest issues has really helped
Hi. I'm fairly new to this blog. I have allodynia on my back since it started...
don't think it's diabetic neuropathy ... Gabapentin helps keep me sane. ... What is PRC?
Support Group: Neuropathy
Posted: Oct 31, 2023
Hello @andiedeluca1949, welcome. So glad you receive some relief from Gabapentin. Sanity is key! Thanks for...
Thanks for asking what PRC is - it stands ... medications that treat allodynia and neuropathy ... , what self-help tools have you tried
Support Group: Neuropathy
Posted: Nov 2, 2023
Hello everyone; I also have neuropathy. It started when the pain in my neck became unbearable....
Hello everyone; I also have neuropathy ... ER, hoping and praying they would help ... and legs, I use pregabalin for the neuropathy ... which does little to help with the ... What in the hell happened to you?
Support Group: Neuropathy
Posted: Oct 28, 2023
Hi @smithtn, I would like to add my welcome to Connect along with @marchelle and others....
has some references that might be helpful ... : --- Small and Long Fiber Neuropathy ... – What's the difference? ... There is no real cure for neuropathy ... Support Group to see if any might be helpful
Support Group: Neuropathy
Posted: Nov 6, 2023
I shared this message with a few of you privately, but it bears posting for all....
discussion, for example about TENS for neuropathy ... consequences: – members unsubscribe from the Neuropathy ... What Can You Do? You can help. ... Here are some phrases that can help ... I hope this helps explain the unseen
Support Group: Just Want to Talk
Posted: Oct 6, 2020
Dear Sundance: I understand your concern about side effects because sometimes you can’t tell whether your...
surgery because now I have peripheral neuropathy ... prescribed 200 mg. @ bedtime and it does help ... This is probably not helping you but ... I don’t know what the answer is but ... what I do know is that not being able
Support Group: Chronic Pain
Posted: Nov 20, 2023
@jerryw CONGRATUATIONS on becoming a Grandpa. Grandson or Grandaughter? I was afraid my post might make...
yourself crazy if you worry about “what ... remember my Lyrica dose but neither helped ... the neuropathy or seizures. ... mainly fentanyl patches, which did help ... have any questions just ask, my life, what
Discussion: Supplements
Support Group: Neuropathy
Posted: Dec 1, 2023