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468 total results

Comments (398)

I was with a spine clinic for many years and spent about 5 years in rehap...

https://connect.mayoclinic.org/comment/1123813/

I forgot to mention I have Ehlers Danlos

Discussion: Dizziness migraine comes and goes

Support Group: Infectious Diseases

Posted: Aug 14 7:09pm

Hello fellow Atlantic Canadians. I am in Nova Scotia. I have an aorta and celiac artery...

https://connect.mayoclinic.org/comment/1142962/

I suspect I might have Ehlers Danlos

Discussion: Ascending aneurysm how fast do they grow?

Support Group: Aortic Aneurysms

Posted: Sep 17 11:20am

Hi Charles. I’ve had over 45 surgeries for Ehlers Danlos which is a collegen issue that...

https://connect.mayoclinic.org/comment/1012661/

I’ve had over 45 surgeries for Ehlers

Discussion: Does anyone find that a type of shoe helps your foot neuropathy?

Support Group: Neuropathy

Posted: Feb 9 2:58pm

I believe so. I don’t have the records and not sure about the graft, but my...

https://connect.mayoclinic.org/comment/771098/

I also have Ehlers Danlos and supposedly

Discussion: Prolapse bowel surgery: What was your recovery like?

Support Group: Digestive Health

Posted: Nov 9, 2022

Hi: Yes, you can get that metal test done. I went to a Dentist that specializes...

https://connect.mayoclinic.org/comment/56546/

I have Ehlers Danlos Syndrome Take Care

Discussion: MCTD (Mixed Connective Tissue Disease)

Support Group: Autoimmune Diseases

Posted: Oct 3, 2018

Hi Scott, I have the pain going down my right leg and have had it for...

https://connect.mayoclinic.org/comment/98293/

#39;ve recently been diagnosed with Ehlers-Danlos

Discussion: Chronic Pain members - Welcome, please introduce yourself

Support Group: Chronic Pain

Posted: May 18, 2019

I have had severe bursitis and received shots for relief. However, in the years I've had...

https://connect.mayoclinic.org/comment/883372/

It is not EDS (Ehlers/Danlos), but a

Discussion: Chronic Buttock Pain

Support Group: Bones, Joints & Muscles

Posted: Jun 22, 2023

I don't know if I have already introduced myself here, so I will do it now...

https://connect.mayoclinic.org/comment/946425/

recently diagnosed with Hypermobile Ehlers

Discussion: Chronic Pain members - Welcome, please introduce yourself

Support Group: Chronic Pain

Posted: Oct 12, 2023

I had this off and on for years and would go get the shot and a...

https://connect.mayoclinic.org/comment/671724/

specializes in piriformis, hypermobility, Ehlers-Danlose

Discussion: Pain on right upper buttock cheek that does not radiate

Support Group: Bones, Joints & Muscles

Posted: Jan 17, 2022

I have a family member, woman, who is in her late 30's and was diagnosed with...

https://connect.mayoclinic.org/comment/291617/

late 30's and was diagnosed with Ehlers-Danlos

Discussion: Is this 30?

Support Group: Bones, Joints & Muscles

Posted: Jan 30, 2020

Hi All- I'm wondering if any of you have hypermobility (Ehlers-Danlos or Hypermobility Spectrum Disorder), and...

https://connect.mayoclinic.org/comment/1137434/

if any of you have hypermobility (Ehlers-Danlos

Discussion: PRP (platelet rich plasma) injection?

Support Group: Bones, Joints & Muscles

Posted: Sep 6 3:27pm

Hi there, I too have Tarlov Cysts. Mine are along my entire spine, but are currently...

https://connect.mayoclinic.org/comment/243337/

Many people with TCs also have Ehlers-Danlos

Discussion: Tarlov Cyst on the spine: Any advice?

Support Group: Spine Health

Posted: Feb 2, 2019

Hi, I've recently had an MR venograghy done at Mayo in Phoenix. I suffer from several...

https://connect.mayoclinic.org/comment/131872/

lots of issues (comorbitities due to Ehlers-Danlos ... congestion, Nutcracker, May Thurner, Ehlers-Danlos

Discussion: Median Arcuate Ligament Syndrome (MALS)

Support Group: Digestive Health

Posted: Mar 25, 2021

Well, my 2 (now adult) children and I have Ehlers-Danlos Syndrome (EDS). • My youngest has...

https://connect.mayoclinic.org/comment/114598/

2 (now adult) children and I have Ehlers-Danlos ... • We post about Ehlers-Danlos Syndrome

Discussion: Chronic Erythema Nodosum & Ehlers-Danlos Syndrome (EDS)

Support Group: Autoimmune Diseases

Posted: Dec 28, 2016

Try!…..do your research on the doctor and feel confident in whoever you pick. I use the...

https://connect.mayoclinic.org/comment/779416/

Ehlers Danlos never fails to challenge

Discussion: Foot fat atrophy and hammer toes

Support Group: Bones, Joints & Muscles

Posted: Nov 30, 2022

@upnorthmama, it must be so heart-wrenching to know that your daughter wants to seek help, but...

https://connect.mayoclinic.org/comment/796467/

daughter currently being seen at the Ehlers-Danlos

Discussion: Teen in mental health crisis: Any good resources?

Support Group: About Kids & Teens

Posted: Jan 14, 2023

I have had increasing episodes of increased heart rate over the past year but it is...

https://connect.mayoclinic.org/comment/270718/

due to my connective tissue disease, Ehlers-Danlos

Discussion: Heart Rhythm Episodes - AFib; Tachycardia, High Blood Pressure

Support Group: Heart Rhythm Conditions

Posted: Jul 31, 2019

Hi @lazyironman, I'm glad you found Connect! Scheduling the first appointment for the first day with...

https://connect.mayoclinic.org/comment/173267/

tissue disorder, either Marfan or Ehlers-Danlos

Discussion: First appointment at Mayo with Medical Genetics

Support Group: Visiting Mayo Clinic

Posted: Nov 6, 2017

Hello to everyone, My chronic pain is caused from Ehlers Danlos syndrome. I have had 15...

https://connect.mayoclinic.org/comment/781345/

everyone, My chronic pain is caused from Ehlers

Discussion: Chronic Pain members - Welcome, please introduce yourself

Support Group: Chronic Pain

Posted: Dec 5, 2022

Referral for Ehlers Danlos Syndrome I am looking to see if anyone in the Rochester or...

https://connect.mayoclinic.org/comment/592018/

Referral for Ehlers Danlos Syndrome

Discussion: Ehlers Danlos Syndrome - Who is the best doctor to see?

Support Group: Bones, Joints & Muscles

Posted: Apr 5, 2021