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361 total results

Comments (335)

Hi Beth, I'm sorry you are afflicted with a horrible ailment. The midsection spasms are familiar...

https://connect.mayoclinic.org/comment/287473/

specialist suspects I have abdominal dystonia

Discussion: undiagnosed movement disorder

Support Group: Brain & Nervous System

Posted: Dec 28, 2019

Good morning @kal12345678 Fifteen years is a long time to be dealing with Spasmodic Dysphonia and...

https://connect.mayoclinic.org/comment/791752/

spasmodic-dysphonia/ -Dealing with dystopia ... connect.mayoclinic.org/discussion/anyone-dealing-with-dystonia

Discussion: Type 2 Thyroplasty Surgery

Support Group: Ear, Nose & Throat (ENT)

Posted: Jan 3, 2023

Hello Maxine and Walt Your story is very similar to ours ( my wife Kari) like...

https://connect.mayoclinic.org/comment/1365898/

journey Gary and (Kari with focal dystonia ... Kari was diagnosed in 2016 with Focal dystonia

Discussion: Our journey w/DBS for Parkinson's

Support Group: Parkinson's Disease

Posted: Aug 7 4:28pm

Hi, I am 68, and I was diagnosed w/Parkinson's 3 yrs ago, after retirement. I recently...

https://connect.mayoclinic.org/comment/851810/

dealing w/dyskinesia alternating w/ dystonia

Discussion: Living with Parkinson's Disease - Meet others & come say hi

Support Group: Parkinson's Disease

Posted: Apr 30, 2023

Hi @melissa123, you may also be interested in these related discussions: - Essential tremors: Anyone experiencing...

https://connect.mayoclinic.org/comment/1110044/

(PD), multiple sclerosis (MS), or dystonia

Discussion: Husbands hands shake when he tries to do fine motor tasks

Support Group: Brain & Nervous System

Posted: Jul 22, 2024

Thank you for the helpful info. I've had trouble breathing for 2 years. Since then I...

https://connect.mayoclinic.org/comment/203075/

diaphragmatic myoclonus and abdominal dystonia

Discussion: Mysterious shortness of breath: What has helped you?

Support Group: Lung Health

Posted: Jun 25, 2020

Cathy, Dr. Arce's number is 904-383-1022. He's with Shands, Univerity of Florida, in Jacksonville. Talk to...

https://connect.mayoclinic.org/comment/214479/

I got Dystonia from my Mom's side

Discussion: Monthly shaking episodes that continue to progress. Anyone else?

Support Group: Brain & Nervous System

Posted: Nov 16, 2018

Hi Gabe, I haven't and I don't know if I will post on CrowdMed, their fees...

https://connect.mayoclinic.org/comment/672294/

Because I have Dystonia as well, I am

Discussion: Mysterious shortness of breath: What has helped you?

Support Group: Lung Health

Posted: Jan 18, 2022

I have not been diagnosed but I believe I have had this for 10 years. I...

https://connect.mayoclinic.org/comment/1321834/

When I got home I researched pelvic dystonia ... (I was diagnosed with generalized dystonia

Discussion: Pelvic pain - Persistent genital arousal disorder (PGAD)?

Support Group: Chronic Pain

Posted: Jun 6 4:02pm

Hello @d13 I see that you are interested in learning more about this rare disorder. Here...

https://connect.mayoclinic.org/comment/669768/

connect.mayoclinic.org/discussion/i-have-generalized-dystonia-and-hnpp-paraxial-vocal-cord-disorder-dysphagia-advanced

Discussion: Primary Progressive Aphasia

Support Group: Brain & Nervous System

Posted: Jan 10, 2022

I was given a tentative diagnosis last week of abdominal dystonia. When I stand erect, the...

https://connect.mayoclinic.org/comment/163077/

tentative diagnosis last week of abdominal dystonia

Discussion: Anyone dealing with Dystonia?

Support Group: Brain & Nervous System

Posted: Nov 12, 2019

I am happy to find this group. After over 6 years of seeking help, I was...

https://connect.mayoclinic.org/comment/200375/

consult with a new neuro: diagnosed with Dystonia

Discussion: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) treatments

Support Group: Just Want to Talk

Posted: May 17, 2018

I’ve getting Botox for 24 years now, and it literally has given me a normal life...

https://connect.mayoclinic.org/comment/1335702/

examination, he diagnosed me with cervical dystonia

Discussion: Headache and Migraine Group: Let’s connect

Support Group: Headache & Migraine

Posted: Jun 26 12:55pm

Thanks. Went down Dystonia path, I don't have that I believe. Or at least I had...

https://connect.mayoclinic.org/comment/992080/

Went down Dystonia path, I don't

Discussion: Functional Neurological disorder next steps

Support Group: Brain & Nervous System

Posted: Jan 5, 2024

Hi hope everyone is well, I haven't found many people on here with cervical dystonia. I...

https://connect.mayoclinic.org/comment/193098/

many people on here with cervical dystonia

Discussion: Cervical dystonia (Spasmodic Torticollis): Looking for support

Support Group: Spine Health

Posted: Nov 20, 2020

Hi Gabe, I just came across your post and read it thoroughly. I haven't read the...

https://connect.mayoclinic.org/comment/670121/

know if VCD is considered a type of Dystonia ... but I also have Dystonia. ... My Dystonia is "multifocal"

Discussion: Mysterious shortness of breath: What has helped you?

Support Group: Lung Health

Posted: Jan 11, 2022

Im in a confusing state with my neurological office. I also have cervical dystonia that causes...

https://connect.mayoclinic.org/comment/1341695/

I also have cervical dystonia that causes

Discussion: Encephalomalacia, anyone?

Support Group: Brain & Nervous System

Posted: Jul 5 1:18pm

I have seen many neurologists ( I’ve been under neurological care since my 3d TBI in...

https://connect.mayoclinic.org/comment/1369344/

I have cervical dystonia.

Discussion: Has anyone had a 2nd opinion for meige syndrome

Support Group: Brain & Nervous System

Posted: Aug 12 5:45pm

I do not want this to influence your decision. I have a Stimwave in my upper...

https://connect.mayoclinic.org/comment/234656/

Seizure or dystonia type activity began

Discussion: Has anyone had the Stimwave spine stimulator installed?

Support Group: Spine Health

Posted: Mar 25, 2021

Yes, think that's it. I was concerned that the tubing caring the dulatid to his neck/shoulder...

https://connect.mayoclinic.org/comment/255359/

He has dystonia, pain all over his body

Discussion: Pain pump, I have one, how about one for you?

Support Group: Chronic Pain

Posted: Dec 5, 2020