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Comments (445)

Interesting. I was diagnosed with Sarcoidosis in the 90's. The only treatment I was ever offered...

https://connect.mayoclinic.org/comment/1397412/

I was diagnosed with Sarcoidosis in

Discussion: Erosive Osteoarthritis

Support Group: Bones, Joints & Muscles

Posted: Sep 20, 2025

@gingerw @cehunt57 @ralfie A drop in kidney function absolutely can be caused by factors other than...

https://connect.mayoclinic.org/comment/1246642/

Drop in my kidney function was due to sarcoidosis

Discussion: Chronic Kidney Disease of Unknown origin

Support Group: Kidney Conditions

Posted: Feb 27, 2025

I have had several PET Scans for my cardiac sarcoidosis. Yes you do need to follow...

https://connect.mayoclinic.org/comment/1491582/

had several PET Scans for my cardiac sarcoidosis

Discussion: Sarcoid Cardiac Pet Scan

Support Group: Autoimmune Diseases

Posted: Jan 27 7:34am

Hi, I was diagnosed with MAC, COPD and Sarcoidosis six months ago - have been on...

https://connect.mayoclinic.org/comment/117953/

was diagnosed with MAC, COPD and Sarcoidosis

Discussion: MAC antibiotics and side effects

Support Group: MAC & Bronchiectasis

Posted: Oct 17, 2016

I'm 53. I'm overweight 237. I have degenerative disc disease (3 lumbar surgeries) 8 metal rods...

https://connect.mayoclinic.org/comment/1347596/

I April I was diagnosed with Sarcoidosis

Discussion: Hypothyroidism: What medications work for you?

Support Group: Diabetes & Endocrine System

Posted: Jul 13, 2025

Hello! I too was put on prednisone for an acute episode of sarcoidosis in my eye...

https://connect.mayoclinic.org/comment/615983/

prednisone for an acute episode of sarcoidosis

Discussion: Transplant: Has anyone tapered off prednisone after decades of use?

Support Group: Transplants

Posted: Jul 12, 2021

it helps hot flashes ? At what strength? I take 300mg 3 times a day. The...

https://connect.mayoclinic.org/comment/92311/

the prednisone to try to shrink the sarcoidosis

Discussion: Anyone here dealing with peripheral neuropathy?

Support Group: Neuropathy

Posted: Jul 29, 2018

@amyintucson Hello Amy. I used to live in Tucson for 20 yrs. I lived in the...

https://connect.mayoclinic.org/comment/195756/

who now lives in Green Valley has Sarcoidosis

Discussion: Lactulose question

Support Group: Transplants

Posted: Jun 8, 2018

My husband has both sarcoidosis. And nuerosarcoidosis. I feel very defeated at this point.. i didnt...

https://connect.mayoclinic.org/comment/77302/

My husband has both sarcoidosis.

Discussion: Sarcoidosis: What treatments have you had with few side effects?

Support Group: Lung Health

Posted: Nov 8, 2016

Thank you so very much for the kind reply. One problem is that I have MAI...

https://connect.mayoclinic.org/comment/826637/

;issues" I also currently have Sarcoidosis ... first day that I found out that I have Sarcoidosis

Discussion: (MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

Support Group: MAC & Bronchiectasis

Posted: Mar 15, 2023

I’m not experiencing the pain in or around rib cage but severe shortness of breath which...

https://connect.mayoclinic.org/comment/130847/

I believe I had sarcoidosis since 2009

Discussion: Pulmonary Sarcoidosis: How are you dealing with it?

Support Group: Lung Health

Posted: Oct 24, 2018

I was diagnosed with Sarcoidosis on 5/30/23. I have some granulomas in my lungs and due...

https://connect.mayoclinic.org/comment/931613/

I was diagnosed with Sarcoidosis on

Discussion: Pulmonary Sarcoidosis: How are you dealing with it?

Support Group: Lung Health

Posted: Sep 17, 2023

Dear Linda.G - Mayo Clinic has some information available at http://www.mayoclinic.org/diseases-conditions/sarcoidosis/home/ovc-20177969 that may give you some...

https://connect.mayoclinic.org/comment/77277/

www.mayoclinic.org/diseases-conditions/sarcoidosis

Discussion: Sarcoidosis: What treatments have you had with few side effects?

Support Group: Lung Health

Posted: Aug 29, 2012

Interestingly enough, my husband started Wegovy (another GLP-1) to help lose weight, and he has Sarcoidosis,...

https://connect.mayoclinic.org/comment/1355300/

1) to help lose weight, and he has Sarcoidosis

Discussion: Has anyone used liraglutide to help manage an autoimmune condition?

Support Group: Autoimmune Diseases

Posted: Jul 24, 2025

Hi @chesneydell1965. I moved your message to this discussion, so you’re able to connect with others...

https://connect.mayoclinic.org/comment/77289/

connect with others who also have Sarcoidosis

Discussion: Sarcoidosis: What treatments have you had with few side effects?

Support Group: Lung Health

Posted: Aug 24, 2016

I have been diagnosed with a paralyzed diaphragm, from a sniff test & ct. I also...

https://connect.mayoclinic.org/comment/659984/

I also have sarcoidosis and I feel it

Discussion: Diaphragm Deconditioning After COVID

Support Group: Post-COVID Recovery & COVID-19

Posted: Dec 6, 2021

@macjane Hello Jane! Did I ever tell you that my cousin has sarcoidosis? She has it...

https://connect.mayoclinic.org/comment/187777/

I ever tell you that my cousin has sarcoidosis

Discussion: Long-term Antibiotics for Bronchiectasis & MAC

Support Group: MAC & Bronchiectasis

Posted: Apr 24, 2018

Been recently diagnosed with bronchiecstasis and don't really know a lot about it except what I...

https://connect.mayoclinic.org/comment/705688/

I have had sarcoidosis for a long time

Discussion: I was recently diagnosed with Bronchiectasis.

Support Group: MAC & Bronchiectasis

Posted: May 5, 2022

Hi @rayrachel, welcome to Connect. I'm Alyse, and I'm one of the community moderators here. I...

https://connect.mayoclinic.org/comment/77282/

other community members talking about sarcoidosis

Discussion: Sarcoidosis: What treatments have you had with few side effects?

Support Group: Lung Health

Posted: Mar 22, 2016

I was diagnosed with sarcoidosis over 18 years ago and likely had it for a good...

https://connect.mayoclinic.org/comment/77315/

I was diagnosed with sarcoidosis over ... No, I didn't, I had sarcoidosis which ... occurred frequently in patients with sarcoidosis

Discussion: Sarcoidosis: What treatments have you had with few side effects?

Support Group: Lung Health

Posted: Jan 1, 2017