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Comments (696)

@jasonrex86 I have not done RFA but I have had a hepatic artery embolization to treat...

https://connect.mayoclinic.org/comment/1527291/

I continue to get monthly octreotide

Discussion: Pancreatic NETs: Looking to connect with anyone with insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 15 9:08am

The fact that things are stable is excellent! Frankly since there is no evidence of disease...

https://connect.mayoclinic.org/comment/1498538/

systemic, other than the laneeotide/octreotide

Discussion: Stable metastatic NET – should I be pushing harder for PRRT?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 5 8:33am

Just following up. I had the calcium stimulation test on Tuesday. The liver was positive for...

https://connect.mayoclinic.org/comment/843297/

The plan for now is to continue octreotide

Discussion: Recurrence in Liver after Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 14, 2023

I take octreotide injections and get inappropriate huge blood sugar spikes anytime I eat anything other...

https://connect.mayoclinic.org/comment/1356060/

I take octreotide injections and get ... pattern but has seen it with other octreotide

Discussion: Lanrotide & PRRT: Blood sugar and gluten

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 25, 2025

@aprils1957 So you are now with Dr. Pommier? I'm a bit confused. Is Dr. Pregna an...

https://connect.mayoclinic.org/comment/1541292/

Wondering, are you on Octreotide?

Discussion: I am 75 and have carcinoid tumors NET in lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 2 2:08pm

@nannybb I just wanted to share my experience with the Octreotide injections. I have been getting...

https://connect.mayoclinic.org/comment/1540260/

wanted to share my experience with the Octreotide

Discussion: Diagnosis Frustrated: How you were diagnosed with NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 1 9:26am

No on bland embolization, did not try lanretide, been on octreotide for 1 yr. had 4...

https://connect.mayoclinic.org/comment/1037570/

embolization, did not try lanretide, been on octreotide

Discussion: Treatment for GI NET with liver mets not working: Options?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 21, 2024

I wish to join a group with NET Pancreas with multiple Secondaries in Liver, and on...

https://connect.mayoclinic.org/comment/1294836/

multiple Secondaries in Liver, and on Octreotide

Discussion: I’m living with Pancreatic Neuroendocrine Cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 2, 2025

How did your embolization go? I have grade 2 metastatic to the liver with no known...

https://connect.mayoclinic.org/comment/1364518/

Octreotide shots are not keeping tumors

Discussion: Spreading NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 5, 2025

I am having the once per month injection of Octreotide (sp?). The drug has calmed my...

https://connect.mayoclinic.org/comment/1349207/

having the once per month injection of Octreotide

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 15, 2025

Thx for sharing. Did they say if her tumor was functioning or non functioning from the...

https://connect.mayoclinic.org/comment/1163510/

also recommended taking the monthly Octreotide

Discussion: NET on liver: Question about treatments when no symptoms

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 27, 2024

@spicerpa, thanks for reporting the good results of your pain managment with the celiac plexus block...

https://connect.mayoclinic.org/comment/1085535/

/connect.mayoclinic.org/discussion/octreotide-injections-and-celiac-block-for-pain

Discussion: Celiac Plexus Block if in Pain: Worked for me

Support Group: Pancreatic Cancer

Posted: Jun 12, 2024

Hi Cassandra my husband is in the same way you are, very sad, he has a...

https://connect.mayoclinic.org/comment/1394114/

very sad, he has a lot of medicine, octreotide

Discussion: Neuroendocrine Carcinoma with Liver Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 15, 2025

Im so sorry youre going through all this.🙏🏼 He has not. The surgeon did tell us...

https://connect.mayoclinic.org/comment/1347070/

The plan is to resume Octreotide in

Discussion: Anyone have lung NETs lining your pleura?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 13, 2025

Yes, every 28 days. I cannot even feel the injection. It was only after I had...

https://connect.mayoclinic.org/comment/134517/

specialist at Iowa said to try the Octreotide

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 20, 2017

@peggymariejackson @hopeful33250 @sherikayb @debbieguk @ce1b I see some of you have lung NETs, some GI NETs,...

https://connect.mayoclinic.org/comment/861008/

even though I don't have those, octreotide ... So I've been taking octreotide injections ... They also give octreotide for some GI ... Octreotide might be something to discuss ... Octreotide has been life changing for

Discussion: Net unknown cause of breathing problems

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 17, 2023

I have had a 111IN-Octreotide in 2013, and in 2014 a F-18 FDG PET/CT of the...

https://connect.mayoclinic.org/comment/186246/

I have had a 111IN-Octreotide in 2013

Discussion: Multiple abnormal hormone levels - Could it be autoimmune related?

Support Group: Autoimmune Diseases

Posted: Feb 26, 2018

I'm not familiar with the term, "centriest" @panorman3. Perhaps the term is "mesentery"? The mesentery is...

https://connect.mayoclinic.org/comment/1257878/

nets-mesentery-small-bowel-resection-lanreotide-octreotide-story