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1,156 total results
Comments (1,069)
No I haven’t had PV. I started in 2016 with ET JAK 2 and was controlled...
https://connect.mayoclinic.org/comment/908930/
No I haven’t had PV.
I have pv cancer and am experiencing breathing issues. Evan with my oxygen level saying I'm...
https://connect.mayoclinic.org/comment/887400/
I have pv cancer and am experiencing
I'm not trying to disagree or judge..I'm an MdAnderson, Houston patient first for Breast Cancer, then...
https://connect.mayoclinic.org/comment/1439233/
Cancer, then Bowel Cancer, and now PV ... be part of a Research program for PV
Welcome to Connect, @qbf This is one of those situations where it’s not good to speculate....
https://connect.mayoclinic.org/comment/1008961/
PV (primary or secondary) or any blood ... kidney issues that can cause secondary PV ... Primary PV has a high red count and ... articles with information about both PV ... and Secondary PV.
Is it possible to live with Polycythemia Vera (PV) without phlebotomies? Everyone's situation is different. All...
https://connect.mayoclinic.org/comment/1235645/
possible to live with Polycythemia Vera (PV ... All I know is I have had PV for 6 years ... I was diagnosed with PV in 2018 after
Hi @jackiecarey, I moved your question about diet and polycythemai vera to this existing discussion: -...
https://connect.mayoclinic.org/comment/1092578/
previous posts and connect with fellow PV ... foods may play in your management of PV ... Jackie, how is your PV currently being
I am suspecting I'll be soon officially diagnosed with PV. I'm JAK2 and blood numbers trending...
https://connect.mayoclinic.org/comment/193900/
be soon officially diagnosed with PV ... fasting and autophagy are beneficial to PV
@lynnevb do you have ET or have you progresssed to PV? Why does your doctor say...
https://connect.mayoclinic.org/comment/1422446/
have ET or have you progresssed to PV
Yea for some reason they never tell you that? I found out also by reading about...
https://connect.mayoclinic.org/comment/1204222/
I’ll be on it for life with having PV ... Expensive and the only other choice for PV
I’m 78, diagnosed in 2021 with pv. On hydroxyurea 1000mg and hematocrit stays at 45. Itching...
https://connect.mayoclinic.org/comment/833829/
I’m 78, diagnosed in 2021 with pv.
I have been taking 5ml Jakafi twice a day for three years. It has been a...
https://connect.mayoclinic.org/comment/1174412/
It has been a life changer for PV side
And how are you doing now? I was diagnosed with PV about 7 months ago at...
https://connect.mayoclinic.org/comment/1110110/
I was diagnosed with PV about 7 months ... I too never heard of PV, and I’m pretty
@gjb1 - My EPO is high as well. In my case the high EPO makes sense,...
https://connect.mayoclinic.org/comment/231784/
I'm still confused by my PV diagnosis ... possible that I'm in early stage PV
I was diagnosed with pv and put on hu plus baby asprin. Had a few phlebotomy...
https://connect.mayoclinic.org/comment/952262/
I was diagnosed with pv and put on hu ... one know if there is any hope for pv
Hi @ausableriver, Polycythemia Vera is a condition where the bone marrow makes too many red blood...
https://connect.mayoclinic.org/comment/1003392/
two types of this condition…Primary PV ... Secondary PV is the more common of the ... primary or secondary, you just have PV ... done to determine the cause of your PV ... the best option for everyone with PV
Sorry, I am not aware of EPO. I was originally on Hydroxiria but developed so many...
https://connect.mayoclinic.org/comment/599508/
The only difference between ET and PV ... ET is manageable by pill..PV requires
Hello, have just read read posts about sleep apnea. I have had PV with JAK2 for...
https://connect.mayoclinic.org/comment/856718/
I have had PV with JAK2 for six years ... Anyone new to PV/ JAK2 keep positive
@rivieramaya2009 I was at the Infusion Center for a phlebotomy (JAK2, PV)and the nurse asked me...
https://connect.mayoclinic.org/comment/1435935/
Infusion Center for a phlebotomy (JAK2, PV
Hi @rmegg, while you’re waiting for other members to share their experience with iron infusions for...
https://connect.mayoclinic.org/comment/999967/
experience with iron infusions for PV ... Does anyone have information on PV with ... discussion/does-anyone-have-information-on-pv-with-a-low-hemoglobin-red-count
Any info on donating blood if you have PV? Seems like a real shame watching my...
https://connect.mayoclinic.org/comment/850591/
info on donating blood if you have PV
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