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209 total results
Comments (199)
Hi @helloitsme, your reaction to finding out you have NETs is normal. Even though NETs is...
https://connect.mayoclinic.org/comment/851198/
I take octreotide for my lung NETs/DIPNECH
Hi @grec I shared my details earlier in the thread if you want to scroll back....
https://connect.mayoclinic.org/comment/1048486/
tiny nodules lining the airways in DIPNECH
@albertklein Did your doctor say why? Do you have any respiratory issues? I would be concerned....
https://connect.mayoclinic.org/comment/913487/
I also have the very rare DIPNECH which
Hi @dak10 and @mimmy. Thank you for sharing your lung NETs info. I also have typical...
https://connect.mayoclinic.org/comment/835869/
have typical lung NETs along with DIPNECH
@windyshores I wonder if my oncology team kept seeing me after 5 years because I have...
https://connect.mayoclinic.org/comment/868967/
over 50 lung tumors from Lung NETS/DIPNECH
@scolio Thanks for the response and link. Interesting. I do have several CYP450 enzymes that are...
https://connect.mayoclinic.org/comment/863519/
finally diagnosed with lung NETS (rare)/DIPNECH
@gprior Thank you for the response. You’ve been through a lot. I’m sorry to hear of...
https://connect.mayoclinic.org/comment/1224889/
Yes, I have DIPNECH and lung NETs (typical
Hi @anjalima - I'm not sure about bone pain and Kisqali. I started taking Kisqali and...
https://connect.mayoclinic.org/comment/883810/
Lung NETS (neuroendocrine cancer)/DIPNECH
Hello @kdgranger and welcome to the NETs support group on Mayo Connect. I am glad that...
https://connect.mayoclinic.org/comment/945546/
neuroendocrine-cells-in-breast-and-lungs-dipnech
Hi mcohan, I recommend LACNETS.org for tons of info on NETS. It's a support organization, not...
https://connect.mayoclinic.org/comment/844935/
an ever rarer lung condition called DIPNECH
Thank you for responding. Yes, you do have a lot going on, definitely more than just...
https://connect.mayoclinic.org/comment/834751/
going on, definitely more than just DIPNECH
Hi Mike @mikecincy Sorry to hear you've joined the NETs club. It looks like you're doing...
https://connect.mayoclinic.org/comment/885633/
I have lung NETs/DIPNECH and the 50+
Hi @pb32680pbnew I had stage 1 BC 10 years ago, BRCA2+ so mastectomies and nothing else....
https://connect.mayoclinic.org/comment/883816/
tumors in my lungs due to lung NETS/DIPNECH
Hi @kristin3, I have over 50 typical carcinoid tumors/DIPNECH across both lungs. Because I have so...
https://connect.mayoclinic.org/comment/849316/
have over 50 typical carcinoid tumors/DIPNECH
Hi @splendrous 2008-2010: they didn't know what the 50+ nodules were, benign or cancer, so many...
https://connect.mayoclinic.org/comment/1179339/
(typical carcinoids) and advanced DIPNECH
Hi @pattirushing, octreotide and microwave ablation are the only two treatments I've had for my typical...
https://connect.mayoclinic.org/comment/845209/
#39;ve had for my typical carcinoids/DIPNECH
@silentfaith -- It sounds like your family has been hit hard with cancer just like mine...
https://connect.mayoclinic.org/comment/875485/
, Lung NETS (rare 1 in 20,000) and DIPNECH
I also have the same condition . I am 72 , diagnosed 8 years ago ....
https://connect.mayoclinic.org/comment/1142709/
tell me I can live a long life with Diptech
I am coughing up blood tinged phlegm every day. This is how it was found. At...
https://connect.mayoclinic.org/comment/1048206/
The biopsy came back DIPNICH.
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