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274 total results
Comments (260)
May I ask what your cidp symptoms and if any treatments help you? Thanks.
https://connect.mayoclinic.org/comment/978393/
May I ask what your cidp symptoms and ... if any treatments help you?
I have CIDP DADS M. In 2022 and 2023 I had four infusions of Rituximab. My...
https://connect.mayoclinic.org/comment/970853/
I have CIDP DADS M. ... afraid of the fact it was a chemical treatment
Did you get the Summus laser treatments?. I am very much interested in trying it. My...
https://connect.mayoclinic.org/comment/966405/
Did you get the Summus laser treatments ... My CIDP is getting worse and my neurologist
I have CIDP and, prior to having immunoglobulin infusions, my legs were feeling like they had...
https://connect.mayoclinic.org/comment/964600/
I have CIDP and, prior to having immunoglobulin ... Since my treatments have begun, I have
I have been diagnosed with CIDP with DADSS. Tried IVIG but had bad reaction to this....
https://connect.mayoclinic.org/comment/945643/
I have been diagnosed with CIDP with ... …..covid slowed opportunity to get treatment
@sueborfl Good evening, sorry to hear that Gabapentin did not help your neuropathic pain, I know...
https://connect.mayoclinic.org/comment/911436/
I have CIDP and I started Gabapentin ... think I would be able to tolerate this treatment ... did go away and I am tolerating the treatment
Ok, here goes...my husband after seeing 4 neurologist was given the diagnosis of Distal axonal sensory...
https://connect.mayoclinic.org/comment/910729/
had him taking IVIG infusions for a CIDP ... Treatment was to stop drinking, not
I too am up for IVIG treatment for CIDP...I was keen to read responses to your...
https://connect.mayoclinic.org/comment/910512/
I too am up for IVIG treatment for ... CIDP...I was keen to read responses
Hi! Were you diagnosed just on one test EMG/nerve test? My diagnosis of CIDP were based...
https://connect.mayoclinic.org/comment/896960/
My diagnosis of CIDP were based on EMG ... was only recently diagnosed and my treatment
Hello @minfromtexas, I'm not sure that @bburleson1 is still following Connect as they were last active...
https://connect.mayoclinic.org/comment/893125/
may have some information on any new treatments ... or symptom management of CIDP. ... It contains treatments, diet, outlook ... and more.
"A person with CIDP ... Repurposing MS immunotherapies for CIDP
I hear you and I'm listening. Like you, my journey began with unknown causes for serious...
https://connect.mayoclinic.org/comment/855747/
The first one suspected Cidp but her ... countless tests I began receiving treatment ... The process from first symptoms to treatment
I was diagnosed with CIDP about two years ago after a misdiagnosis 8 years earlier. I...
https://connect.mayoclinic.org/comment/805664/
I was diagnosed with CIDP about two ... I fell once even with treatment but ... would be open to trying experimental treatment
Hello all, My heart goes out to each of you! I truly understand, I received a...
https://connect.mayoclinic.org/comment/763672/
One and a half years ago I developed CIDP ... have been doing research on care and treatment ... to do what works for them and one treatment
Thank you very much for your interest. We currently have a N.Y. Presbyterian Hospital-Columbia & Cornell...
https://connect.mayoclinic.org/comment/761973/
only way to tell if my husband has CIDP ... to keep increasing the time between treatments
Your story seems very similar to mine. After receiving my 4th covid vaccination in 1/2022 I...
https://connect.mayoclinic.org/comment/759858/
She said normal EKGs rule out CIDP. ... out there who could come up with a treatment
Second opinion was "maybe" he has CIDP. However, the doctor took it one step more and...
https://connect.mayoclinic.org/comment/755855/
opinion was "maybe" he has CIDP ... only way to really know if you have CIDP ... 6 weeks instead of 4 for infusion treatments
That’s wonderful news that your numbers are lower than first considered. I know, watch and wait...
https://connect.mayoclinic.org/comment/746730/
Getting started on the treatments for ... the CIDP will be a relief for you! ... ’s quite a trip from Thailand for treatment
Thank you for sharing your experience. I don't have CIDP, but I have some demyelination due...
https://connect.mayoclinic.org/comment/682259/
I don't have CIDP, but I have some ... I hope your treatments will help you
Hello folks, I have been reading everyone’s posts. I can relate to your neuropathy, I have...
https://connect.mayoclinic.org/comment/676424/
neuropathy, I have been diagnosed with CIDP ... what was going on or how to begin to treatment
Hi Amy, we’re not medical professionals in the Connect forum but we can rely on our...
https://connect.mayoclinic.org/comment/667567/
With treatment, it regenerated and I ... Without treatment, my symptoms all disappeared ... anything that may spur a new reaction CIDP
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