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126 total results

Comments (113)

Welcome to Connect, @barbaraak I'd like to bring others into this discussion, like @lmp1 @myminnie @spangles...

https://connect.mayoclinic.org/comment/199417/

dawn_giacabazi, who have experience with Temodar ... related discussions: - Side effects of Temodar ... connect.mayoclinic.org/discussion/side-effects-of-temodar ... side effects have you experience with Temodar

Discussion: 2nd year of Temodar for GBM: Should I expect worse side effects?

Support Group: Brain Tumor

Posted: May 9, 2018

@kc2, thank you for your willingness to share your experiences. If you wish to connect with...

https://connect.mayoclinic.org/comment/1086435/

connect with others on temozolomide (Temodar ... search=Temodar How are you doing

Discussion: Pituitary Macroadenoma-Operate or Wait?

Support Group: Brain Tumor

Posted: Jun 13 8:06pm

My husband was 40 days on Temodar during brain radiation and then 12 cycles /2016/.astrocytoma grade...

https://connect.mayoclinic.org/comment/182091/

My husband was 40 days on Temodar during ... ,now the tumor is growing.He is on temodar

Discussion: Side Effects of Temozolomide (Temodar)

Support Group: Brain Tumor

Posted: Mar 16, 2018

I have had Radiation and Chemo and am on Temodar now. Should I come to the...

https://connect.mayoclinic.org/comment/381960/

had Radiation and Chemo and am on Temodar

Event: #MayoClinicNeuroChat on Brain Tumors

Posted: Feb 3, 2017

So good to hear from you @kansastumor. How are the side effects on Temodar (temozolomide)? Are...

https://connect.mayoclinic.org/comment/106466/

How are the side effects on Temodar

Discussion: Recently dx w/ anaplastic astrocytoma - was your treatment successful?

Support Group: Brain Tumor

Posted: Nov 29, 2016

I was diagnosed with GBM in April 2017 and given a 2 year life expectancy. I...

https://connect.mayoclinic.org/comment/211470/

the standard of care - radiation and temodar ... and now on the maintenance temodar

Discussion: Share Your Brain Tumor type & Years since Diagnosis

Support Group: Brain Tumor

Posted: Sep 11, 2018

For low grade brain tumor received SOC, Temodar and IMRT. Have experienced cognitive impairment vis a...

https://connect.mayoclinic.org/comment/214951/

low grade brain tumor received SOC, Temodar

Discussion: Glioblastoma Multiforme and Cognitive Loss

Support Group: Brain Tumor

Posted: Apr 18, 2019

I haven’t started yet, waiting till my next scan on 9/24. The oncologist wants me to...

https://connect.mayoclinic.org/comment/1098610/

oncologist wants me to take Avastin and Temodar

Discussion: Diagnosed with sarcoma? Let's share

Support Group: Sarcoma

Posted: Jul 3 12:12pm

I am having 6 weeks of radiation for a total of 6000 (?eGY) by linear accelerator,...

https://connect.mayoclinic.org/comment/1091933/

during the same time, I am taking temodar

Discussion: My Husband's journey with Glioblastoma

Support Group: Brain Tumor

Posted: Jun 22 4:12pm

Has anyone had experience with optune. Going to start optune with Temodar . How is the...

https://connect.mayoclinic.org/comment/270037/

Going to start optune with Temodar .

Discussion: Surgery or no surgery: possible low-grade glioma?

Support Group: Brain Tumor

Posted: Jun 17, 2020

My husband also has glioblastoma. He took his Temodar at night, a half hour after the...

https://connect.mayoclinic.org/comment/1022460/

He took his Temodar at night, a half

Discussion: My Husband's diagnosis of glioblastoma grade 4

Support Group: Brain Tumor

Posted: Feb 25 2:25pm

Thanks, Coleen. How would I get in touch with the other people you mentioned? I really...

https://connect.mayoclinic.org/comment/155374/

Just finished my first 5-day Temodar ... completing six weeks of radiation with Temodar

Discussion: astrocytoma in cerebellum, need advice

Support Group: Brain Tumor

Posted: Jul 15, 2017

Spangles, I'm glad you've connected with a few other members here. I will also tag additional...

https://connect.mayoclinic.org/comment/155379/

dawn_giacabazi who have had experience with Temodar

Discussion: astrocytoma in cerebellum, need advice

Support Group: Brain Tumor

Posted: Jul 15, 2017

Thanks Colleen ! My husband started this week with radiation along with the chemo pill ,...

https://connect.mayoclinic.org/comment/1034084/

radiation along with the chemo pill , Temodar

Discussion: Glioblastoma: My husband's journey, what's yours?

Support Group: Brain Tumor

Posted: Mar 15 12:32pm

My husband started temodar(temozolomide) Jan 10th 2024. He takes it before bed. The anti nausea med...

https://connect.mayoclinic.org/comment/1004371/

My husband started temodar(temozolomide ... worked for him is One hour before the temodar

Discussion: My Husband's diagnosis of glioblastoma grade 4

Support Group: Brain Tumor

Posted: Jan 26 8:49pm

Sorry to hear that eJacobs. My wife’s situation is similar to David’s daughters one. She is...

https://connect.mayoclinic.org/comment/154123/

She is still in the Temodar phase.

Discussion: Pleomorphic xanthoastrocytoma tumor (Pxa): help

Support Group: Brain Tumor

Posted: May 4, 2019

@daughterfuturemd, I don’t think I can be helpful. I never had radiation. I was on an...

https://connect.mayoclinic.org/comment/310282/

infused Chemo along with the oral chemo Temodar ... the insurance company not approving Temodar

Discussion: Radiation with or without Temodar for Glioblastoma?

Support Group: Brain Tumor

Posted: May 10, 2020

Hi Imp, I'm tagging a few other members, like @myminnie @spangles @chuck58201 @kansastumor @martyc2016 @caquigg1 and...

https://connect.mayoclinic.org/comment/182089/

dawn_giacabazi, who have experience with Temodar

Discussion: Side Effects of Temozolomide (Temodar)

Support Group: Brain Tumor

Posted: Jan 23, 2018

Yes....that was the plan for my husband, but he never got to start it as his...

https://connect.mayoclinic.org/comment/934335/

and that made the difference, as the temodar

Discussion: My Husband's journey with Glioblastoma

Support Group: Brain Tumor

Posted: Sep 22, 2023

Hi there. My husband has a Grade 3 AA, left temporal lobe, the tumor was 8cm...

https://connect.mayoclinic.org/comment/106457/

He completed 6 wks temodar/radiation ... then did 10 months temodar as a follow

Discussion: Recently dx w/ anaplastic astrocytoma - was your treatment successful?

Support Group: Brain Tumor

Posted: Jul 21, 2016