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Comments (78)
@mahmoudbakry, you might also be interested in this related discussion: - Primary Myelofibrosis: Continue watch &...
https://connect.mayoclinic.org/comment/1046374/
interested in this related discussion:
- Primary ... Myelofibrosis: Continue watch & ... /connect.mayoclinic.org/discussion/primary-myelofibrosis
@ang3, I hope you saw the helpful posts from @cindyem and @hanya. You may also be...
https://connect.mayoclinic.org/comment/1261470/
interested in this related discussion:
- Primary ... Myelofibrosis with JAK2: Anyone have ... /connect.mayoclinic.org/discussion/primary-myelofibrosis-with-jak2
Hi Dillydally, There are several discussions where members are talking about myelofibrosis and treatments. Here are...
https://connect.mayoclinic.org/comment/675825/
discussions where members are talking about myelofibrosis ... are a couple to get you started:
- Myelofibrosis ... /connect.mayoclinic.org/discussion/myelofibrosis ... -24a025/
- Primary Myelofibrosis diagnosis ... /connect.mayoclinic.org/discussion/primary-myelofibrosis-diagnosis-in
Thanks for the summary. Yes I have Primary Myelofibrosis. I was diagnosed a year ago.
https://connect.mayoclinic.org/comment/1322127/
Yes I have Primary Myelofibrosis.
Hi @carolannt, if you would like to get a second opinion at Mayo Clinic, you can...
https://connect.mayoclinic.org/comment/963448/
a few other discussions about
- Primary ... Myelofibrosis https://connect.mayoclinic.org ... search=Primary+Myelofibrosis
In addition
Glad you popped over to this discussion group, Scott. I'm tagging fellow myelofibrosis members like @teriberi123...
https://connect.mayoclinic.org/comment/658685/
I'm tagging fellow myelofibrosis ... - Primary Myelofibrosis diagnosis ... /connect.mayoclinic.org/discussion/primary-myelofibrosis-diagnosis-in
I have been diagnosed with primary myelofibrosis for 6 yrs, after having elevated platelets, and after...
https://connect.mayoclinic.org/comment/1171967/
I have been diagnosed with primary myelofibrosis
There is a lot of information but the final comment was: The patient’s positive CALR mutation...
https://connect.mayoclinic.org/comment/1256039/
with morphological features favoring primary ... Myelofibrosis.
Thanks for catching that. Yes, I have primary myelofibrosis. I have an oncologist that is holding...
https://connect.mayoclinic.org/comment/1043713/
Yes, I have primary myelofibrosis.
Bad news last time at the doc office, the doctor told me that I suffer from...
https://connect.mayoclinic.org/comment/1044397/
doctor told me that I suffer from pmf primary ... myelofibrosis with low risk asymptomatic
Welcome, @rspriggle. I can only imagine your shock of receiving the diagnosis of primary myelofibrosis, especially...
https://connect.mayoclinic.org/comment/616932/
shock of receiving the diagnosis of primary ... myelofibrosis, especially in your 40s
My husband was diagnosed with primary myelofibrosis 1 month ago. The doctor hasn’t stated him on...
https://connect.mayoclinic.org/comment/1249038/
My husband was diagnosed with primary ... myelofibrosis 1 month ago.
Recently diagnosed with essential thrombocythemia and primary myelofibrosis with MPL mutation. Blood transfusions and iron infusions...
https://connect.mayoclinic.org/comment/764111/
with essential thrombocythemia and primary ... myelofibrosis with MPL mutation.
How does one know that Prostate cancer is progressing? What are the symptoms? What clues does...
https://connect.mayoclinic.org/comment/953505/
I also have primary myelofibrosis.
Welcome to Connect, @jtcat7. Looks like you have a full deck of mutations in your hand....
https://connect.mayoclinic.org/comment/1367613/
MF (myelofibrosis) the normally spongy ... information about MPNs and prefibrotic primary ... myelofibrosis which might help in answering ... myeloproliferative-neoplasms/treatments/what-is-prefibrotic-primary-myelofibrosis
Hi @marygantt, I totally relate to feeling confused by doctor’s recommendations! I was diagnosed with ET...
https://connect.mayoclinic.org/comment/1325811/
2025 and then my O/H changed that to primary ... myelofibrosis 2/2025. ... analysis came back very low and low for primary ... myelofibrosis.
My husband was diagnosed at 69, a year ago, with Primary Myelofibrosis including Jak2 mutation. A...
https://connect.mayoclinic.org/comment/693147/
diagnosed at 69, a year ago, with Primary ... Myelofibrosis including Jak2 mutation
My husband had Lymes and Erlichiosis (another tick-borne disease) 12-15 years ago. In 2021 he was...
https://connect.mayoclinic.org/comment/764388/
he was diagnosed with Jak2 MPN, or Primary ... Myelofibrosis.
Good evening I was diagnosed with primary myelofibrosis about a month ago. The bone marrow biopsy...
https://connect.mayoclinic.org/comment/1338019/
Good evening
I was diagnosed with primary ... myelofibrosis about a month ago.
I'm 77 and 6 yrs ago I was found to need a TAVR for severe aortic...
https://connect.mayoclinic.org/comment/1164101/
biopsy and that led to a diagnosis of primary ... myelofibrosis and in a few months treatment
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