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139 total results

Comments (116)

On recently did I learn I have Lupus (SLE). This news is not welcome at any...

https://connect.mayoclinic.org/comment/822002/

On recently did I learn I have Lupus ... (SLE). ... I expressed to my internist “just lupus

Discussion: Tumid Lupus with SLE Symptoms?

Support Group: Autoimmune Diseases

Posted: Mar 6, 2023

Interesting about lupus ( SLE) I was told an ANA lab test determines if a person...

https://connect.mayoclinic.org/comment/1340377/

Interesting about lupus ( SLE) I was ... lab test determines if a person has lupus ... NJH told you the rifampin caused the lupus

Discussion: Finished Antibiotic Treatment - On to Airway Clearance

Support Group: MAC & Bronchiectasis

Posted: Jul 3 11:39am

Check for Lupus SLE and Sjogren’s, MECFS MCAS and pots. All of these diseases can be...

https://connect.mayoclinic.org/comment/1370519/

Check for Lupus SLE and Sjogren’s, MECFS ... Took 4 years to get the lupus dx.

Discussion: Anyone experiencing muscle atrophy/muscle wasting due to Long COVID?

Support Group: Post-COVID Recovery & COVID-19

Posted: 5 days ago

I watched as predisone,40 years ago, as my Mom shrank from 5'6" to 5". Noone had...

https://connect.mayoclinic.org/comment/1227749/

most of them..from Chron's to Lupus ... SLE to Lupus Anticoagulation and more

Discussion: Prednisolone (Corticosteroid): Long term side effects

Support Group: Autoimmune Diseases

Posted: Feb 2 1:14pm

@terriann I never heard about neuropsychiatric SLE/Lupus. I will talk to my new rheumatologist about this...

https://connect.mayoclinic.org/comment/1071361/

never heard about neuropsychiatric SLE ... /Lupus. ... My mom had Lupus/SLE, RA, fibromyalgia

Discussion: Neuropsychiatric Lupus

Support Group: Autoimmune Diseases

Posted: May 20, 2024

I have been on Prolia for 3 years as I have severe Osteoporosis at 55. I...

https://connect.mayoclinic.org/comment/1340345/

I tested positive for Lupus SLE last

Discussion: Anyone with autoimmune problems taking Prolia for osteoporosis?

Support Group: Autoimmune Diseases

Posted: Jul 3 10:52am

thanks to this group .Sharing and reading others going through the same health issues has been...

https://connect.mayoclinic.org/comment/1102070/

are afraid because other illness Lupus ... SLE and thats a monster of its own

Discussion: Aortic Aneurysms – Introduce yourself & meet others

Support Group: Aortic Aneurysms

Posted: Jul 9, 2024

Hi - I’m glad it helped. And since you’ve said you’re relatively healthy, I want you...

https://connect.mayoclinic.org/comment/1296223/

for me, I was 60 and had 25 years lupus ... SLE and a history of HLH (rare and

Discussion: Ultra-high-risk multiple myeloma: My post-transplant update

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: May 4 8:09am

I have similar issues. I had hernia repairs yes plural, only had a liquid diet for...

https://connect.mayoclinic.org/comment/1115769/

I have Lupus sle, Chrons which alone

Discussion: Cortisol deficiency, but with weight gain

Support Group: Autoimmune Diseases

Posted: Aug 1, 2024

Kathyv66 Yes not just my observation re PMR and peripheral vascular disease . It’s a medically...

https://connect.mayoclinic.org/comment/1200486/

with rheumatoid arthritis or systemic lupus ... (SLE).

Discussion: Has anyone been diagnosed with peripheral vascular disease after PMR ?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 30, 2024

Hello @samflow, Welcome to Connect. Venting is OK. I would think with all you have been...

https://connect.mayoclinic.org/comment/1258799/

search=sjogren%27s -- "Lupus SLE ... search=Lupus%20SLE I know you have

Discussion: Pulmonologist says I should be dead by now

Support Group: Autoimmune Diseases

Posted: Mar 15 4:12pm

I got sick 4 days after 1st Pfizer. Dizziness, vertigo, tinnitus, head fullness sensation, daily crashes...

https://connect.mayoclinic.org/comment/1368443/

I tested positive for Lupus SLE.

Discussion: Anyone experiencing muscle atrophy/muscle wasting due to Long COVID?

Support Group: Post-COVID Recovery & COVID-19

Posted: Aug 11 2:08pm

Hello All, I just happened to stumble across this site. I too have had hives for...

https://connect.mayoclinic.org/comment/1325767/

I tested positive for Lupus SLE but ... Is there anyone else with either Lupus

Discussion: Hives at night: Alpha-gal syndrome?

Support Group: Skin Health

Posted: Jun 12 2:23pm

I’m new to this blog. I had a radical nephrectomy Oct 15. About a month out...

https://connect.mayoclinic.org/comment/1195436/

I do have lupus SLE but it has been

Discussion: Doctor is concerned about Kidney GFR numbers: Should I be?

Support Group: Kidney & Bladder

Posted: Dec 22, 2024

On July 31, 2025 my husband and I met with my hematologist and he said he...

https://connect.mayoclinic.org/comment/1362035/

He suggested I go off my LUPUS meds ... I have Lupus SLE.

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Aug 2 10:25am

1) there are two primary types of lupus, though if I’m honest I find this distinction...

https://connect.mayoclinic.org/comment/1356542/

1) there are two primary types of lupus ... There is cutaneous lupus (CLE) and systemic ... lupus (SLE). ... can (in theory) have cutaneous only lupus ... ”, you have cutaneous (skin) lupus.

Discussion: How is lupus diagnosed? ANA negative, skin biopsy positive

Support Group: Autoimmune Diseases

Posted: Jul 26 12:45am

I was diagnosed July 2024 with anal rectal cancer. Went through 6 weeks of chemo and...

https://connect.mayoclinic.org/comment/1280262/

be over, unfortunately, I also have Lupus ... SLE and it delayed healing process.

Discussion: Anyone else have Anal cancer: What treatments did you have?

Support Group: Colorectal Cancer

Posted: Apr 12 2:57pm

Hi. I'm new to this site and read your post. Immediately, I could see everything you...

https://connect.mayoclinic.org/comment/221441/

So, Doctors did not consider lupus ( ... SLE) for many years. ... had almost every symptom of systemic lupus ... One day I decided to attend a lupus ... the members, I was convinced I had lupus

Discussion: Lupus or not Lupus?

Support Group: Autoimmune Diseases

Posted: Oct 26, 2018

4 days after vaccine I got very ill and haven’t been the same. Symptoms are multi...

https://connect.mayoclinic.org/comment/1305419/

years Positive ANA for Sjogren’s and Lupus ... After another year, confirmed dx of Lupus ... SLE. ... tests and these tests showed I have Lupus ... SLE.

Discussion: Post Covid weird symptoms

Support Group: Post-COVID Recovery & COVID-19

Posted: May 16 11:08am

I was normal and healthy before I got the first Pfizer shot. 4 days after the...

https://connect.mayoclinic.org/comment/1317082/

with MECFS; MCAS; POTS, Sjogren’s and Lupus ... SLE. ... Was dx with Lupus in January and the ... m hoping it’s not MS on top of the Lupus ... SLE.

Discussion: Internal vibrations still affecting anyone?

Support Group: Post-COVID Recovery & COVID-19

Posted: May 31 9:06am