Clear Search

To narrow your search, try adding quotation marks around phrases.

Search tips
  • Search by keywords or complete phrases.
  • To narrow your search, try adding quotation marks around phrases.
  • Example: "predictable behavior" will narrow the search results to only include content that has the exact phrase "predictable behavior" in it.
88 total results
Comments (84)
I was diagnosed in 2022 with WM w/ IgM neuropathy. 12 Rituxan infusions latter neuropathy not...
I was diagnosed in 2022 with WM w/ IgM ... neuropathy. 12 Rituxan infusions latter ... neuropathy not better. ... I thought IgM anti MAG are peripheral ... neuropathies.
Posted: Jul 19, 2023
Hello @3charlie, Welcome to Connect. There is some information on the test but I'm not sure...
drc-20355691 Since you mentioned IgM ... and neuropathy, you might find it helpful ... scan through the other discussions on IgM ... and neuropathy. ... search=Igm+neuropathy.
Support Group: Neuropathy
Posted: Dec 29, 2024
I was diagnosed with MGUS in July 2025 and with SMM four days ago, in March...
have 10-15 percent kappa dominant IGM ... have bioclonal gammopathy, with an IGM ... kappa monoclonal protein of .35 and an IGM ... My primary symptom at this point is neuropathy ... hopefully slow the progression of my neuropathy
Thanks Jerry, sorry you have a similar LPL to Anna. Hers is LPL IgG with Kappa...
IWMF web site today, although not IgM ... infusions in December which put my Igm ... range (down from 900) , it helped my neuropathy ... is more likely to cause neuropathy ... not so much neuropathy, ' thanks
Posted: 4 days ago
Hi yes my wife has LPL IgG with Kappa Free Light Chains and MYD88 WT with...
Chains and MYD88 WT with systemic Neuropathy ... around 2 years ago because of the Neuropathy ... horrible illness and LPL IgG or other non IgM ... interest to know how others with non IgM ... LPL and Neuropathy presented?
Posted: Feb 2 1:07pm
@jonyb I can only imagine the frustration. My heart hurts for your wife, and you. It’s...
studies and/or clinical trials for non IgM ... I have not had any neuropathy pre/post ... light chain makes a difference in neuropathy
Posted: Feb 2 6:55pm
@vicmar Hi Vicki! I'm glad I came across this site. I've been told LPL/Waldenstroms is fairly...
I have very high IgM (over 3500), which ... I think accounts for the crazy neuropathy
Support Group: Neuropathy
Posted: Jan 8 6:54pm
@co64 Hi Sue! Thanks for reaching out. I am done with treatment, feeling great. Im so...
Then my “idiopathic neuropathy” went ... My IgM, had been up to 1200, is now
Support Group: Neuropathy
Posted: Jan 8 8:16am
@ffr I'm sorry to hear about your mom's situation. My neuropathy just involves numbness in my...
My neuropathy just involves numbness ... Interestingly, neuropathy can be a side ... of chemo, so since I already have neuropathy ... having joint aches, along with high IgM
Support Group: Neuropathy
Posted: Jan 5 12:59pm
@circawdm I think your MGUS type also may cause more issues. It seems IgM has different...
It seems IgM has different types of ... potential neuropathies that mostly relate ... to IgM being a heavier immunoglobulin ... started really feeling this when my IgM ... down to 900 but I don’t notice lesser neuropathy
Posted: Dec 5, 2025
Curious to hear more from you and others and possible symptoms. I‘ve been diagnosed a year...
been diagnosed a year ago with MGUS IGM ... Kappa Light Chain and in 2019 with neuropathy ... up I was diagnosed with small fibre neuropathy ... think there is a connection as my neuropathy
Posted: Oct 8, 2023
Hello @savomic, Welcome to Connect. While we wait wait for others to share their experience, I...
positive DADS, involves deposits of IgM ... often linked to a rare demyelinating neuropathy ... acquired demyelinating sensory (DADS) neuropathy ... patients with treatable immune-mediated neuropathies ... /demyelinating-neuropathies/mag/
Support Group: Neuropathy
Posted: Nov 28, 2022