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88 total results
Comments (84)
I was diagnosed in 2022 with WM w/ IgM neuropathy. 12 Rituxan infusions latter neuropathy not...
https://connect.mayoclinic.org/comment/898515/
I was diagnosed in 2022 with WM w/ IgM ... neuropathy. 12 Rituxan infusions latter ... neuropathy not better. ... I thought IgM anti MAG are peripheral ... neuropathies.
Hello @3charlie, Welcome to Connect. There is some information on the test but I'm not sure...
https://connect.mayoclinic.org/comment/1199561/
drc-20355691
Since you mentioned IgM ... and neuropathy, you might find it helpful ... scan through the other discussions on IgM ... and neuropathy. ... search=Igm+neuropathy.
I was diagnosed with MGUS in July 2025 and with SMM four days ago, in March...
https://connect.mayoclinic.org/comment/1529382/
have 10-15 percent kappa dominant IGM ... have bioclonal gammopathy, with an IGM ... kappa monoclonal protein of .35 and an IGM ... My primary symptom at this point is neuropathy ... hopefully slow the progression of my neuropathy
Thanks Jerry, sorry you have a similar LPL to Anna. Hers is LPL IgG with Kappa...
https://connect.mayoclinic.org/comment/1527062/
IWMF web site today, although not IgM ... infusions in December which put my Igm ... range (down from 900) , it helped my neuropathy ... is more likely to cause neuropathy ... not so much neuropathy, ' thanks
Hi. I was diagnosed with MGUS IGM lambda in 2014 and have peripheral neuropathy. I understand...
https://connect.mayoclinic.org/comment/1522080/
I was diagnosed with MGUS IGM lambda ... in 2014 and have peripheral neuropathy
Hi yes my wife has LPL IgG with Kappa Free Light Chains and MYD88 WT with...
https://connect.mayoclinic.org/comment/1496460/
Chains and MYD88 WT with systemic Neuropathy ... around 2 years ago because of the Neuropathy ... horrible illness and LPL IgG or other non IgM ... interest to know how others with non IgM ... LPL and Neuropathy presented?
@jonyb I can only imagine the frustration. My heart hurts for your wife, and you. It’s...
https://connect.mayoclinic.org/comment/1496761/
studies and/or clinical trials for non IgM ... I have not had any neuropathy pre/post ... light chain makes a difference in neuropathy
@vicmar Hi Vicki! I'm glad I came across this site. I've been told LPL/Waldenstroms is fairly...
https://connect.mayoclinic.org/comment/1477689/
I have very high IgM (over 3500), which ... I think accounts for the crazy neuropathy
@pbettend Hello! Interesting to hear more about people taking BTK inhibitors. Calquence (acalabrutinib) is a bit...
https://connect.mayoclinic.org/comment/1486603/
the Zanubrutinib should help with neuropathy ... Waldenstroms lymphoma, plus lower my IgM
@co64 Hi Sue! Thanks for reaching out. I am done with treatment, feeling great. Im so...
https://connect.mayoclinic.org/comment/1477256/
Then my “idiopathic neuropathy” went ... My IgM, had been up to 1200, is now
@ffr I'm sorry to hear about your mom's situation. My neuropathy just involves numbness in my...
https://connect.mayoclinic.org/comment/1475163/
My neuropathy just involves numbness ... Interestingly, neuropathy can be a side ... of chemo, so since I already have neuropathy ... having joint aches, along with high IgM
@tracypage WM specialists recognize that neuropathy does happen with IgM at those levels. WM experts do...
https://connect.mayoclinic.org/comment/1454553/
tracypage WM specialists recognize that neuropathy ... does happen with IgM at those levels
@circawdm I think your MGUS type also may cause more issues. It seems IgM has different...
https://connect.mayoclinic.org/comment/1453723/
It seems IgM has different types of ... potential neuropathies that mostly relate ... to IgM being a heavier immunoglobulin ... started really feeling this when my IgM ... down to 900 but I don’t notice lesser neuropathy
@ryder23 In regard to your findings, an elevated Kappa can be seen in other conditions such...
https://connect.mayoclinic.org/comment/1174230/
I was diagnosed IgM kappa MGUS 13 years ... ago due to a neuropathy.
My IGM was the high one too. My Kappa FLC are now 379 which puts the...
https://connect.mayoclinic.org/comment/1146299/
My IGM was the high one too. ... I believe I may have peripheral neuropathy
I have WM with only IgM of 850 now 550 but have Anti-mag > 70000 for...
https://connect.mayoclinic.org/comment/1073831/
I have WM with only IgM of 850 now 550 ... My neuropathy is still progressing -
Curious to hear more from you and others and possible symptoms. I‘ve been diagnosed a year...
https://connect.mayoclinic.org/comment/944093/
been diagnosed a year ago with MGUS IGM ... Kappa Light Chain and in 2019 with neuropathy ... up I was diagnosed with small fibre neuropathy ... think there is a connection as my neuropathy
Good morning. I was diagnosed with MGUS IgM Kappa with a small fiber neuropathy in 2012....
https://connect.mayoclinic.org/comment/943970/
I was diagnosed with MGUS IgM Kappa ... with a small fiber neuropathy in 2012
Again, COVID in March 2020, 68 yrs old, Raynaud's Diagnosis March 2021, Gluten Neuropathy March 2021,...
https://connect.mayoclinic.org/comment/843900/
#39;s Diagnosis March 2021, Gluten Neuropathy ... IgG, IgE, IgM levels normal.
Hello @savomic, Welcome to Connect. While we wait wait for others to share their experience, I...
https://connect.mayoclinic.org/comment/778224/
positive DADS, involves deposits of IgM ... often linked to a rare demyelinating neuropathy ... acquired demyelinating sensory (DADS) neuropathy ... patients with treatable immune-mediated neuropathies ... /demyelinating-neuropathies/mag/
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